posted
Hi, I'm wondering if anyone else is having morning eye goop after starting antibiotics? And if so, do you know if it's the lyme or something else? My doctor thinks it's *something* dying off but it doesn't fit the standard die off. I've had it to some degree every morning. And at my 4 week herx it got worse.
Also I'm having daily nausea usually in waves starting mid-afternoon and ending around 9pm. Which we can't decide what is causing that. I was diagnosed equivocal for lyme and b. microti. After previously being sucessfully treated for mycoplasmas (21 days 250mg zithromax) at the end I felt a little better then worse again, so we retested lyme again from Igenex. I took 500mg/day of zithromax for 2 months, and 14 days of mepron (which made me sick as a dog). After starting the mepron I started getting nauseous a couple hours after I took it (and weepy). Once I stopped the nausea improved but hasn't gone away completely. We're changing my dosages to 1000mg of zithromax and adding 200mg hydroxychloroquine. And then I have a whole slew of vitamins and other drugs I take to keep me vaguely functional. The nausea is pretty awful though. In particular I seem to get motion sick and also some food smells seem to bring it on too. And then just randomly. Any helpful tips for nausea?
thanks!
Posts: 207 | From san francisco, ca | Registered: Mar 2005
| IP: Logged |
posted
hello...i know what you mean by "eye goop" although i had to laugh at the term.....anyway, my husband gets that on his eyes in his ears and on his forhead...our dr says it is an accumlation of yeast.....are you taking something to help with your yeast because YOU WILL have problems with it....you need to be taking acidopholis and diflucan....the first one(acid>) i have found cheapest at gnc....we both seem to need to take at least 5 a day to control our yeast as i his wife have lyme too....just be sure to take it at least 2 hours after yrs meds and always have something on your tummy when you take any meds it will help with the yucky feeling......good luck...Laurie in ohio
Posts: 17 | Registered: Feb 2005
| IP: Logged |
quote:Originally posted by Laurie362004: hello...i know what you mean by "eye goop" although i had to laugh at the term.....anyway, my husband gets that on his eyes in his ears and on his forhead...our dr says it is an accumlation of yeast.....
Weird...what color is your "eye goop"? Mine's grey. Though actually I pulled a cat hair out of my eye earlier and it was red...I'm hoping that was makeup! Pretty certain it's not yeast. My doctor is all about "getting rid of the yeast." But I never seem to get it, and I'm not allergic to it either. So I expect she would spot it out as that. Though I'm surprised at how well the happy bacteria I'm taking seem to be helping. I have been taking something called "pro-biotic" I can't remember the brand name though. I haven't had any signs of a yeast infection down yonder or thrush which normally if I just take zithromax for more than a week without the pro-biotic, I would get. I've been taking diflucan once a month just in case, but the eye goop doesn't seem to change related to that. Though if it is yeast we should be able to culture that. Maybe I should have her do that next week just in case. Thanks for the tip!
Posts: 207 | From san francisco, ca | Registered: Mar 2005
| IP: Logged |
posted
its probably your diet. i used to have TERRIBLE nausea everyday when i woke up and randomly at other times. it is because there are so many toxins in the typical american diet. I would espcially get nauseas before going to the bathroom, about to realase toxins. practically everything we eat is toxic and food for the lyme and mycoplasmas. I even had very high mercury levels from the food i was eating, most likely fish. also i had fairly high cadmium, arsenic, and even lead. i switched to raw vegan organic and i have hardly any nausea anymore, my complexion has cleared up nicely, and i have more energy. i would bet that you are very toxic and need to detox. also dont underestimate the mycoplasmas! they are very nasty little bugs, worse than the lyme i believe. you say that the mycos were "sucessefully treated" in 21 days. how do you know this? almost all antibiotcs do not kill mycoplasma, but instead stop it from growing. it is a very slow growing parasite and can lay dormant for a long time before springing back into action. i would highly recomend that you read up on mycoplasmas, to learn what is in your body. and figure out which ones you have by doing the full pannel with immuno sciences. i have been trying for years to treat the mycoplasmas with antibiotics without sucess. my good lyme doctor mucscle tested me too for the various parasites. he and i concluded that the heavy antibiotics had wiped out the lyme, but the mycoplasmas were still active. best of luck to you and everyone brett
Posts: 245 | From connecticut, the lyme state | Registered: May 2004
| IP: Logged |
quote:Originally posted by break the chains: its probably your diet. practically everything we eat is toxic and food for the lyme and mycoplasmas. I even had very high mercury levels from the food i was eating, most likely fish. also i had fairly high cadmium, arsenic, and even lead. i switched to raw vegan organic and i have hardly any nausea anymore, my complexion has cleared up nicely, and i have more energy. i would bet that you are very toxic and need to detox.
Well actually I would have guessed that too, but I don't actually have much of anything in me. We tested for all that stuff and everything was surprisingly low. nickel was higher than anything, strangely. I've been eating organic for about 12 years now...and some large part was also vegetarian, but now I'm allergic to rice and soy so that's more problematic.
quote:Originally posted by break the chains: also dont underestimate the mycoplasmas! they are very nasty little bugs, worse than the lyme i believe. you say that the mycos were "sucessefully treated" in 21 days. how do you know this?
We retested and it came back negative? My understanding was that mycoplasmas are usually secondary to lyme. And in theory they don't have the same testing issues. But perhaps we should look into that more. At this point I'm on zithro and hydroxychlorquine, plus colliodal silver anyway so for now it's probably covered. On the plus side the abx for the mycoplasmas are probably the reason that I finally got an positive test to lyme. (well that and sending it to igenex.com)
So I talked to my doctor about the possibility of the eye goop being yeast and she said that it definately wasn't yeast.
The nausea got better somewhat. I think that the silver shots are causing weekly die off and then the two next days I seem to be nauseous. By the end of the week things seem less nausea filled.
And diet...yeah. I made the mistake of getting fish and chips. I won't ever ever do that again. I'd forgotten what nasty fried food does to my system. On the upside I don't think I'll be needing a colon cleanse anytime soon hahaha. It had been a couple years since I'd eaten anything like that...and I don't remember it doing more than bloating and discomfort. But appraently my body instantly rejects food that's bad for me.
My friend's friend is a chef and is going to help me do some cooking and figure out how to avoid my allergies and make gluten-free food and see how that goes. It's so hard to manage to eat when I'm so tired. So I think that will really help.
thanks ra
Posts: 207 | From san francisco, ca | Registered: Mar 2005
| IP: Logged |
posted
"I've been eating organic for about 12 years now..." thats good! i wish i had been for that long
"and some large part was also vegetarian, but now I'm allergic to rice and soy so that's more problematic."
i think meat is pretty bad for our health. conventional meat is far worse than organic because all sorts of nasty things are in it. whenever you ingest the flesh of another animal, or drink the milk you inherit all of the toxins that is contained in the volume. just as we have toxins stored away through our entire bodies so do animals. you might want to try raw vegan organic for a week and see if you notice any benifit. i used to have terrible nausea but now its not really a big problem. it did take a while after feeling bad detoxing to really start getting the benifits. i also have really bad food allergies, eating raw has been really good because its a whole new food set of super nutrition. i was not allergic to hardly anything. raw food is loaded with enzymes, life force, and nutrients that you loose when you cook it. also i know antibiotics can cause nausea and other symptoms. right now i actually am feeling a bit nauseated from the unusually large dose of minocycline i took yesterday.
"We retested and it came back negative? My understanding was that mycoplasmas are usually secondary to lyme. And in theory they don't have the same testing issues. But perhaps we should look into that more."
mycoplasma testing is done by pcr. pcr is looking for the actual dna of the organisms. it is much like fishing. sometimes you catch something sometimes you dont. it all depends on the number of fish in the pond, and how long you spend at it. there are 13 strains of mycoplasma i got one blood test done for and i came back as having 5 strains. two that are the cause of gulf war syndrome and some call gulf war 1 and gulf war 2. i think they were called that on the pcr test. when i got a lyme test done a few years ago by pcr to see if i still had lyme they had me go in to give blood everyday of the week for 5 days. 3 came back positive, and 2 negative. if i had just done one test there would have been a 40% chance of missing it based on those numbers.
it seems now by muscle testing done by a very prominant llmd that the mycoplasma is the primary infection and lyme has been halted by the antibiotics. many people are sick with mycoplasmas and they are just as sick as us if not more sick. like gulf war vets, syrnegative lyme patients, many chronic diseases like MS, CFS, fibro, and the list goes on and on.
"On the upside I don't think I'll be needing a colon cleanse anytime soon hahaha."
im actually veggy/greens/whatgrass juice fasting for a week and doing colon cleansing as part of that. the toxins are really coming out now, im at day 4.
"My friend's friend is a chef and is going to help me do some cooking and figure out how to avoid my allergies and make gluten-free food and see how that goes. It's so hard to manage to eat when I'm so tired. So I think that will really help."
like i said i got allergies really bad from oral antibioics, and im sure going on iv for 9 months didnt help that either. you should look into transdermal antibiotics. i know someone who got yeast and allergies as a result of taking doxy longterm to clear up the face.
eating/juicing raw veggies, greens, sprouts, and grasses will build your energy and it is likely you wont have to worry about allergies. there are some really great things you can make that are raw too. i make raw flax chips, sometimes with vegetable juice, and they are so good. you can make seed cheeses and all sorts of raw delights. check out some recepies on www.sadtoraw.com .
i hope you get feeling better brett
Posts: 245 | From connecticut, the lyme state | Registered: May 2004
| IP: Logged |
posted
"i think meat is pretty bad for our health. conventional meat is far worse than organic because all sorts of nasty things are in it." dioxins... actually are why I went organic. I had really bad endometriosis for years and organic seemed to help. Also the stuff they feed animals scares me. Plus they aren't treated very nicely. I'm lucky around here that organic is so easy to find, There are some smaller places that treat the animals better and provide organic meat. So I've done that for years. Tastes way better too.
" you might want to try raw vegan organic for a week and see if you notice any benifit." hmm I'm on the verge of being allergic to almond milk...and bananas, and anything with gluten, rice or soybeans are right out. So that's a large part of the problem. But some of those look like good options. I get a lot of protein from nuts currently as it's easier than cooking. I found these raw veggie snacks I like too... so been eating a lot of that. A lot of these types of things I feel hungry after eating....and I really can't afford to lose any weight as I'm pretty skinny now.
" raw food is loaded with enzymes, life force, and nutrients that you loose when you cook it." true but it can be harder to digest, also cooking some foods actually releases proteins so they can be absorbed.
"also i know antibiotics can cause nausea and other symptoms. " I'm suspecting that's probalby what it is. I'm not normally nauseous.
"mycoplasma testing is done by pcr." that's the one we did...everything was negative. I think we'll probably retest that we do a recheck on the lyme in a month or so. So I guess we'll see how that goees. From a bacterial standpoint it looks easier to kill than lyme as long as you aren't using a abx that uses the cell wall as the killing mechanism. so the zithro should work fine for that.
"it seems now by muscle testing done by a very prominant llmd that the mycoplasma is the primary infection and lyme has been halted by the antibiotics." hmm well I'll make sure we keep an eye on it.
"im actually veggy/greens/whatgrass juice fasting for a week and doing colon cleansing as part of that. the toxins are really coming out now, im at day 4." I've tried those before with very little result. I think I've been pretty good with my diet and that helps. Plus for a long while I was having surgery every couple years, and that is a pretty hard core cleansing. NOT fun.
I think beet juice is a good gentle detox and usually try to do that frequently. The others can be a little hard on your system.
"like i said i got allergies really bad from oral antibioics, and im sure going on iv for 9 months didnt help that either. you should look into transdermal antibiotics. i know someone who got yeast and allergies as a result of taking doxy longterm to clear up the face."
I'll ask about the tansdermals those sound interesting. My allergies are less bad than they were though so at this point things seem to be improving.
" i make raw flax chips, " Do those taste good to you? I think it's rather like eating cardboard.
Thanks for the link...I will use some of those in my new diet plan.
hope things are going well!
Posts: 207 | From san francisco, ca | Registered: Mar 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/