lla2
Frequent Contributor (1K+ posts)
Member # 2364
posted
anyone have an mri with the contrast dye gadolinium? just wondering how it went and how long it took...this is at my request just because my head still feels so lousy,etc...
Lisa
[This message has been edited by lla2 (edited 29 March 2005).]
Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002
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Aniek
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Member # 5374
posted
I just had one a few weeks ago. The length of time depends on what part of the body the MRI is of. I had cervical spine and it took about 20 minutes. After the first few pictures, they came and injected the dye.
I felt a little sick as they injected the dye, but I've also been feeling a little sick whenever I get a blood test lately.
The only discomfort was because I have myoclonus. It of course got activated because I couldn't move, which meant I had this intense desire to move my head.
Posts: 4711 | From Washington, DC | Registered: Mar 2004
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lla2
Frequent Contributor (1K+ posts)
Member # 2364
posted
no problems afterward with the dye though...?
Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002
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posted
I've had 2 of these, one on head and one on cervical spine. I think the head one took about 45 min. and cp about 25 min. BOTH had dye. They weren't too bad, esp. the head b/c they had me with headphones where I could listen to music the whole time, and I got to select the style I wanted. I selected classical piano. It was so relaxing. Be prepared for the noise. It is really noisy in there and you can't move at all. It sounds like a lot of banging around. Just try to think of peacful things and other stuff. I was only trying to relax. The dye isn't bad, they just stick a needle in the arm when they are almost done. Another 5-10 minutes back in and then it's over. It's not like we haven't had needles in the arm over and over again.. Anyway, don't worry, it's not all that bad comparatively speaking. Now, the nerve test where they shock the nerves in the legs and arms , I think EMG, that is MUCH, MUCH worse.. Melinda
Posts: 409 | From TX | Registered: Mar 2004
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Monica
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Member # 224
posted
I'm with you Melinda. I've had 5 MRIs some with contrast and some without. I'd do it all over again if I had to.
But I've also had two EMGs and without question it is the worst test I have ever experienced.
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
I had an MRI about a year ago. I went to the hospital and when I found out they were going to inject gadolinium (contrast) in me I about freaked.
This is before I had a lyme DX, but I suspected Lyme.
I asked to speak to the radiologist on duty and he said "according to the FDA it is safe"
Yeah well, I don't really trust the FDA. So I asked what exactly it does. He said it shows the spots better IF there are spots. They can tell more about the spots.
So I asked "well what if there are no spots?" He said " if there are any spots at all they will show without the contrast. If there are no spots there is nothing for the gadolinium to enhance."
So, we first did the test without the contrast. They usually do it both ways. First without, then with.
So after doing it without he came and talked to me. He said it was so clean and normal that if it were him he would skip the second part. So I did. He also said " the FDA approved nutrasweet and anyone who knows anything about chemical compounds would not get near the stuff." So apparently he doesn't trust the FDA either.
He had to say it was safe as he works for the hospital. But he was insinuating that its really not that good.
Now, you gotta know........this really pissed my doctor off (the one who exclued Lyme based on a negative test)beacuse she ordered it without and with contrast.
She would not return my calls and well that was just as well. Asshole!
All that being said, if you had spots on a previous MRI then maybe contrast would be better....... Like everything else..... it depends on the situation.
My point was, I didn't want it if it was not necessary. In another siuation I may allow it. I just did'nt want crap injected into me that I didn't need. I mean I am trying to get rid of the toxins, not add to them.
Ya know dentists are still putting mercury in peoples mouths's. We spray our food with poison, etc., etc. We nuke ourselves with cell phones at our head.
Bet your sorry ya got me started, huh?
I keep all unatural substances out of and off of my body to the best of my abitlity. If some one can convince me something unnatural is necessary and the benefit outweighs the cost them I may do it.
Ok, well gotta go smoke a cig......... kidding.........
lla2
Frequent Contributor (1K+ posts)
Member # 2364
posted
robi..did yours show anything wrong with it? th0se are the same problems i'm having..mostly lightheadedness, dizziness and off balance woozy feeling...
thanks, Lisa
Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002
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posted
My brain MRI showed spots or lesions "consistent" with MS; one Neuro diagnosed MS; however, I was not satisfied and after one month of $30,000 copaxone injections, went for 2nd opinion. Neuro and lyme specialist, found no lesions on cerv. spine picture and said NO MS. She said the non specific lesions could be from chronic migraines or lyme either, nevertheless, must stay on preventive tx for h/a and lyme. I was in remission with lyme until 3 weeks ago and now am waiting result from Igenex on 2 (urine and blood) PCRs..will go back on 5th to see what she will do for tx. kind of scary, all my symptoms are back.. but thank God the h/a are pretty well held back by the topamax right now. She has been exellent in that regard. Good luck. Even if they find any spots, don't let them talk you into a diagnosis without getting at least an opinion from someone you really trust. Melinda
Posts: 409 | From TX | Registered: Mar 2004
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Sue vG
Frequent Contributor (1K+ posts)
Member # 3143
posted
I had a brain MRI done with gadolinium contrast (the contrast medium wouldn't be cadmium - too toxic).
It was interesting to note that before the contrast was administered, I was "entertaining" myself looking at the patterns moving on the back of my closed eyelids. After they injected the gadolinium, the patterns went away completely, leaving a "blank screen" for the remainder of the test.
I developed a heat rash-like rash on my chest as a result of the MRI. I was a little woozy, but did manage to drive home after the test. After subsequent MRIs without contrast, I learned that I just seem to get a rash from the MRI for some odd reason, not from the contrast.
The thing about gadolinium contrast is that no one else's experience can predict yours. Apparently some people have an adverse reaction to it, though most don't. Not sure how you would tell until you tried it.
Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
My moniker speaks for itself. I've had several MRIs all -. I wouldn't touch the dye anymore as it caused a burning sensation in my arms.
I'm also concerned about putting dyes of any kind in my body given my metals problems. The fact that some Lymies retain metals and toxins also concerns me.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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lla2
Frequent Contributor (1K+ posts)
Member # 2364
posted
well i know the dye doens't cross the bbb..so that 's good, that makes me feel alittle bit better about it...
i think i might try robi's way..see how it goes without, and ask if i need it with....
Lisa
Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002
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posted
Jordan had an MRI, MRV and MRA with contrast. He did OK with the contrast. It took at least an hour. Jordan had an open MRI for the 1st time and it was so much quieter.
Jordan always has a bad headache and some dizziness and it didn't make that worse.
His films were clear. Then he had a CT with contrast. That was clear also.
I still think part of Jordan's problem is increased intracranial pressure.
ArtistDi
Frequent Contributor (1K+ posts)
Member # 2297
posted
Lis, according to my drug allergist at Brigham and Women's Hospital, gadolinium is one of the more benign dyes. It does not have iodine in it, which makes many people react.
I am very sensitive to meds, etc, and I had gadolinium injected when I had a Hida Scan. You can also protect yourself a bit by taking two tablespoons of dye-free Benedryl, one Zantac (drug allergist recommended 150 mg, but I took 75) and your Klonopin. My drug allergist recommended this to me, along with predisone, but I always skipped the steriod.
She advised me to take this 6 hours before, or one hour before. I did six for the Hida as I couldn't have anything in the gut.
She says that very few people will react. See if the they will allow you to have some oxygen while you do the MRI. For both the Hida and most recent MRI of my pancreas, I was given oxygen. Helpful, and I did not react.
Posts: 1572 | From Hatfield, MA, USA | Registered: Mar 2002
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lla2
Frequent Contributor (1K+ posts)
Member # 2364
posted
di htat's great to know, as you and i have many similiar symptoms due to 'you know who'!
i will try the benedryl, and maybe do .5mg of klonopin to help me relax.
i called dr. jone's office today and they use the contrast when they order the tests as well..they say it's harmless and no prblems with lyme patients....
HOw are you ? HOw are you feeling/? been thinking about you lately....
thanks to all that answered.. a great help to me ..I really appreciate it.
lisa
Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002
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