Hi All,
My LLMD hs kept me on IV Roc for yet another month (since Dec 7) and has now added Ketek.
Feedback please.
I can't seem to get the search to work.
Blessings,
Marblenose

When I first started on it, the herx went on for two weeks, and was a bad cold instead of the usual heavy flu symptoms. After I'd been on it for two months, it had reduced my symptoms to the point that whatever was left fell into clear co-infection categories. Although it can't cure my Lyme on its own, it is managing the symptoms to the point that I can consider a full-time job again, after five years.

I don't know the story on intracelluar vs. cephalosporin, but you are taking two of the best. When I started ketek, I'd already been on omnicef, flagyl, and zith for a long time.

The story with herxes always seems to be: we pray for a big one, because it shows the abx are working, and then when we get it, it's totally unbearable. During my first minocycline herx, I couldn't walk for a week and a half. Sometimes, I'd be paralyzed, or sleep continuously all day and night. It's lucky I had enough money to order in food.

I have the same anxiety thing with every abx that penetrates the nervous system. Right now, I literally have to take small doses of rifampin. I can't go without it or the bartonella comes back, and I can't take the full dose because I'll write 400 Lymenet posts a day and won't finish school.