LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Next course serving Biaxin, Bicillin and Plaquenil...what's the best way to start up?

 - UBBFriend: Email this page to someone!    
Author Topic: Next course serving Biaxin, Bicillin and Plaquenil...what's the best way to start up?
JavaBeing
LymeNet Contributor
Member # 6321

Icon 1 posted      Profile for JavaBeing     Send New Private Message       Edit/Delete Post   Reply With Quote 
Okay, I've finally got into see Dr. H in Nevada City and now feel like I'm onto a protocol that will be more progressive in kicking the backside of this nonsense.

I'm staying on the Biaxin (going into 5th month at 500mg 2x/day) but will be adding Bicillin (2 injections per week, 1.2 million units each) and then plaquenil (2oomg 2x/day) to see if his guess on babs is right on or not.

A whole different approach from just the Biaxin, which I'm ready to get more aggressive...but did anyone else jump right into 2 shots a week and the plaquenil, or do you ramp up with these like I had to do with the Biaxin?

Not wanting to be wimpy, especially because it wasn't easy in finding a pharmacy that would order it, and much harder working with my insurance (HealthNet) to even consider paying for any of it (which I'm still working on...anyone else have HealthNet?)...I've just heard of some hard herxing by folks that wanted to dive in first, and then came up hard trying to catch their breath.

Any suggestions from those who've "been there, done that and got the lousy t-shirt to show for it"?

Many thanks for any suggestions...now I just need to find a block of ice big enough to sit on after those shots.

Health and Healing,
JavaBeing

PS I've noticed that my plaquenil was substitued with Hydroxchloroquine...will this be as effective?


Posts: 208 | From Portland, OR USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
firsttwin
LymeNet Contributor
Member # 5529

Icon 1 posted      Profile for firsttwin     Send New Private Message       Edit/Delete Post   Reply With Quote 
Java,

Hello there.

I only have info on the bicillin shots.

My husband gives them to me. First he takes them out of the fridge and sets them aside for about 1/2 hour to warm up. Then he preps my butt cheek with alcohol. He takes the needle and aims it like a dart so that it will go in fast and it doesn't hurt as bad. He pushes the medicine in very slowly so that it doesn't hurt and make a knot. If it starts to burn, I tell him to ease up. The slower the better. He averages anywhere from 5 to 8 minutes to give me my injection.

I hope whoever gives you yours, is gentle. Good luck and take care.

Maria


Posts: 164 | From Rising Sun, MD, USA | Registered: Apr 2004  |  IP: Logged | Report this post to a Moderator
Barngirl
Member
Member # 6391

Icon 1 posted      Profile for Barngirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
LOL, I don't have the t-shirt but I probably have the butt dimples from it.

LOL

I took 3 shots a week. I took them in the evening. I usually herxed soon after but I am not sure the mepron was also contributing to it. I would go straight to bed.

It is a good cocktail though. Did it for 2 months.

I know of others that did it for many months at 4 shots a week.

Deep us posted on how it is working for you.

Take care.


Posts: 62 | From MD | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
David95928
Frequent Contributor (1K+ posts)
Member # 3521

Icon 1 posted      Profile for David95928     Send New Private Message       Edit/Delete Post   Reply With Quote 
Based on something written by Dr. B's PA, I ramped up pretty gradually. It was one a week for four doses, then one every six days for four doses, etc...
Even so, the herxes were pretty bad. Of course, I had gone untreated at least twelve years so my bacterial load was probably really high. It is a good combination but it may be a rocky road for a while.
David

Posts: 2034 | From CA | Registered: Jan 2003  |  IP: Logged | Report this post to a Moderator
Aniek
Frequent Contributor (1K+ posts)
Member # 5374

Icon 1 posted      Profile for Aniek     Send New Private Message       Edit/Delete Post   Reply With Quote 
I didn't herx on plaquenil. It actually keeps down inflammation and therefore reduces my symptoms.
Posts: 4711 | From Washington, DC | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
JavaBeing
LymeNet Contributor
Member # 6321

Icon 1 posted      Profile for JavaBeing     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks everyone for your input...I feel kinda wimpy with just two shots of bicillin a week compared to y'all (Barngirl and David95928) Do you think ramping up to two doses is needed?

Were any of you on the Biaxin/Bicillin combo? I know the Biaxin doesn't cross the BBB much, does anyone know if the Bicillin does?

Firstwin--thanks very much for the heads up on "warming up" the bicillin first, I wasn't aware or told about that, but from what I've read it helps to decrease getting alot of bumps and scar tissue. As a cop, I've been called a harda$$ more than once, perhaps these folks were psychic?

Aniek--thanks for the input on the plaquenil...I hope my experience will be like yours. Have you ever had it substitued for the generic Hydroxcholoquine? If so, is it as effective, or should I stay with the 'accept no substitution' policy?

For those on the Bicillin, how hard was it to get your insurance to pay for it?

Thanks everyone for the help...now just gotta find someone to give the shots. My father-in-law offered, said he has many years experience giving shots to his cows. Hmmm...perhaps that's why cows always watch you from the corner of their eye when you go by them at those 4-H booths at the state fair.

I'm off to go get fitted for my ice block underwear..
JavaBeing


Posts: 208 | From Portland, OR USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
Ann in CA
LymeNet Contributor
Member # 97

Icon 1 posted      Profile for Ann in CA     Send New Private Message       Edit/Delete Post   Reply With Quote 
If you use your block of ice before the shot, you may not need if after! My first few shots were with a nurse, and she said I didn't need to ice the area before (as my LLMD's printed instructions suggested) so I was very sore for days. After my husband started giving the shots, we followed all the suggestions (ice the area, warm the bicillin--my husband uses his hands to bring it up to room temp, and inject slooowly.

I am on week 20 of one 1.2 shot. So far so good.

Best of luck to you.

Ann


Posts: 287 | From Northern California, USA | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
Ann in CA
LymeNet Contributor
Member # 97

Icon 1 posted      Profile for Ann in CA     Send New Private Message       Edit/Delete Post   Reply With Quote 
If you use your block of ice before the shot, you may not need if after! My first few shots were with a nurse, and she said I didn't need to ice the area before (as my LLMD's printed instructions suggested) so I was very sore for days. After my husband started giving the shots, we followed all the suggestions (ice the area, warm the bicillin--my husband uses his hands to bring it up to room temp, and inject slooowly.

I am on week 20 of one 1.2 shot. So far so good.

Best of luck to you.

Ann


Posts: 287 | From Northern California, USA | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
JavaBeing
LymeNet Contributor
Member # 6321

Icon 1 posted      Profile for JavaBeing     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks Ann!--Icing the target area before hand is another suggestion I wasn't told about when rx these shots. I know our LLMD are busy as all heck, but some of these simple "tricks" make all the difference in the world! Lyme is already enough pain in the backside without adding any more...

So I have my new arse-nal ready: warm up the meds, ice the area and rotate the injection sites..any thoughts on how to actually give the shot?

I heard many times go s-l-o-w as possible (4-5 mins?). How does a person/spouse actually "push" the needle into the site without the reprocussion of divorce?

Thanks again everybody for the info...

Bottoms up,
JavaBeing


Posts: 208 | From Portland, OR USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.