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I was wondering if anyone has there symptoms rotate? What I mean is I have been having the burning neck back pain, the last time a little over a weak ago my arms got weak and almost shakey. They cleared up but this happens ever so often. I had a pinced nerve a year ago. The last visit my MD gave me an order for a MRI now I don't know if I should do it because its not huring anymore. Other things come and go. Flue like weakness, it is a real problem, sleelpiness and then just plain fatigue. I don't want to run out and have tests that don't show something but this pain seems to be cyclic. Does this happen to anyone else? Suttles
Posts: 67 | From moving soon | Registered: Jul 2004
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posted
Yes lyme symptoms are cyclic, and may seem to disappear for awhile only to return later. I personally have a herx every 21 days like clockwork. I'm sure others will be along to share their experiences.
Posts: 366 | From Louisville KY. | Registered: Nov 2003
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Yes, my symptoms are cyclic. At first there was a predictable 28 - 30 day cycle where my fatigue and brain fog would increase for up to a week and lots of other symptoms would pile up making me miserable.
The next 3 weeks various symptoms would come and go. Some stick around for a few days, others, weeks and others months. Other symptoms appear randomly and may only happen once or may re-appear. For example the tip of my thumb went numb for 2 days in November. It returned to normal until March when It went numb for a few hours! Other symptoms last only a second before vanishing completely.
When I started getting my period again (after 6 months without one) the cycle changed. Now I feel incredibly awful during my period. The other 30 day cycle is less pronounced. I've heard others say they get worse at the full moon.
Keeping a Lyme journal helps me keep track of my progress. Some of my symptoms get much worse before they suddenly get better. When I feel really bad I remind myself that I always feel worse before things get better.
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the answer is yes. Rotating joint pain is actually diagnostic of lyme disease and how i diagnosed mine after 5 years undiagnosed. the rotating joint pain can more from week to week, month to month, or during my last episode 1 month ago, day to day. you should keep a log of symtoms every day, good documentation may be necessary in the future ie ssdis. it also give you a good idea of where you stand with the lyme better, worse same. the last new llmd i went to in florida, since i moved from pa was very good. i brought in my symptoms from the previous week, look at my 300 page chart and said"I GUESS YOUR HAVING A RELAPSE OF LYME DISEASE" HE WAS THE FIRST DOCTOR TO ACTUALLY COME OUT AND SAY I HAD LYME DISEASE EVEN WITH ELISA 5.6 AND 9 POSTIVE WESTERN BLOT BANDS. an he remarkably did this without 1 blood test. yes he ran tests for chemistry and cbc but no lyme tests. he asked me if i wanted them, and i said it was not necessary since we both know i have lyme disease from the symptoms. gOSH A REAL LIVE LLMD THAT THINKS, WHAT DO YOU KNOW, NEXT WE MAY EVEN HAVE DOCS THAT LISTEN
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