Myoclonus describes a symptom and generally is not a diagnosis of a disease. It refers to sudden, involuntary jerking of a muscle or group of muscles. Myoclonic twitches or jerks usually are caused by sudden muscle contractions, called positive myoclonus, or by muscle relaxation, called negative myoclonus. Myoclonic jerks may occur alone or in sequence, in a pattern or without pattern. They may occur infrequently or many times each minute. Myoclonus sometimes occurs in response to an external event or when a person attempts to make a movement. The twitching cannot be controlled by the person experiencing it.

Yes, there are other Lymies with myoclonus. There has been a good bit of discussion on the board lately. I have pretty mild myoclonus, while others have much more severe myoclonus.

The search function doesn't seem to be working very well. If it works for you (there is a link on the upper right of the screen) just put in a search for "myoclonus" and many threads will come up. You can also search for the poster Terter, who has been extremely helpful to many of us dealing with myoclonus.

I'm pretty new to myoclonus, so I can't offer much advice. I do believe there is a connection with diet for me though. My myoclonus got much worse when I was one a bad diet, high in sugar and saturated fats. It declined when I went on a much healthier, low carb, sugar free diet.

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A copy of this is stored in computer Help section.

Updated 04/12/2005

You can find her by doing a search for "terter" or by clicking on the page numbers at the bottom of this page.

She posted not long ago, so she shouldn't be hard to find.

Welcome!

I also have ear problems--mainly high ear pressure and some ringing and vertigo. A physical therapist has helped me a lot with exercises for balance and that helped my walk.

I do find the more stimuli(crowds and noise) the more off balance I get. I also "walk like a drunk" when I am tired.

I have not discovered anything that helps the gait problems, but my myoclonus has been helped considerably by zonegran and avoiding triggers. I recently started B-12 shots, and I feel like they are helping as well.

My most unusal trigger is looking out of the corner of eye. I have to completely turn my head to look at anything or it will trigger myoclonus. Normal triggers are metallic sounds, light touch, being surprised, flashing lights.

Feel free to e-mail me. I'm interested in keeping in touch wiht other people with myoclonus and Lyme. As we increase in number, I think we will begin to be recognized by the medical community.

Take care,
Ms. Myo