Hey Elizabeth, I know exactly where you're coming from. My son is 15 and I thought he was never going to get any better.He started abx in Dec.04, started PICC line in Jan.05, and still currently on it. He did 2 1/2 months of IV rocephin, with little improvement.
Doc then switched to IV zithromax, and mepron. He herxed fairly well for 3 weeks, but the week off of mepron, you could see a noticeable improvement.
Doc replaced the mepron with plaquenil, and artemisinin, but continued the IV zith. He's still improving. He's even talking about going back to school next week !
He's been out since Nov. 04.
30-45 days ago, I thought he would never get better, and I too was willing to try anything. Maybe your LLMD can change his meds, or start babs treatment ? Sure did the trick for my son.
A month ago he was on a 50mg duragesic patch, and percocet as needed for pain. He hasn't taken a pain pill in 3 days. Frankly, our LLMD is amazed at the progress he's made in a relatively short time. Youth is a wonderful thing.
Sounds like your child had gotten some early Central Nervous System involvement, as mine did. Makes their symptoms much worse, and more difficult to treat.
I know what it feels like to see your child in pain, and they don't seem to be getting any better. You're desperate for anything that will help them. Check with your LLMD for pain meds, and meds for sleep. I did it with my son. People that need the medication rarely ever get addicted.
What meds is your child currently on ? Have they tried anything different ? If you'd like to discuss it privately, feel free to e-mail me. Hang in there, I had major doubts as well, but they do get better !