Do you sister a favor... have her take the baby to Dr. Jones. Now. Before that poor child goes through any more tests, grief, dumb ducks, etc. He has a very good knowledge of congenital Lyme and if anyone could help... this is the place to go.

Your sis would be tested too...with good tests this time. And her hubby perhaps? No sense dragging this out and having her crazy with worry.

Do this child and your sister a favor... love enough to insist they do the best for them and get the best help... and do it soon. We don't want that little angel to have any more problems.

Idiopathic seizure disorders can *definitely* be caused by Lyme!!!!

Fwiw, my teenage Son and Husband and Myself all have Lyme and/or co-infections. Son only showed with Lyme, but I believe he has Babesiosis as well. Husband showed with active and old Lyme infection along with HME and HGE. I showed with Babesiosis and neg for Lyme....but LLMD believes I have Lyme as well.

My Son isn't the biological child of Husband's as I was married before. I do think there's a distinct possibility that I gave Lyme to my Son, as he's been a sick kid since Birth and now is still that way at almost 14. Mostly, it got worse with each passing year.

My Sis in FL had a problem with ticks in the house....the dog kept bringing them inside. She won't have any of the household checked out unless problems appear. Other Sis in CA we know was bitten by a tick on her scalp as a 1st grader. She's recently gotten bad health wise but won't take the time to get checked. Even though I bug them once in a while about it...I can't make them do it.

By the GRACE OF GOD

I am writing to hopefully get you to inform others, and save them the trouble I have had to go through. I will try to be brief, and upon request I do have ALL files and tests results to back up my story.

You see, two years and two months ago, I had a Grand Mal seizure. I was hospitalized and medicated. I have continued to have seizures off and on since then, with them getting progressively worse since March. I have been on Depakote, Dilanton, Tegratol, and Topamax. I was told these seizures were from a car accident I had in 1989, when I hit my head on the windshield. End of discussion: accept it , take medications, don't drive, and move on with your life. One option was to look for a scar, and do surgery. Although this was a hard decision to make, I was told I was a good candidate. It was scheduled for the end of August.

By chance, I met a Lyme disease specialist, Dr. Gregory Bach. My husband and I went to meet with his wife, who is a dog trainer, to see if our dog could be trained to help with my epilepsy. When we arrived she was not available yet, so we chatted with her husband. I explained a little of my health condition and why we were training our dog. Something I said seemed to spark a question regarding my diagnosis. After speaking with Mrs. Bach about training our dog, she asked my husband and me if we would mind talking some more to her husband, as he was very interested in my medical history. After several hours of talking, he hit us with a bombshell! "I think you have been misdiagnosed. I think you have Lyme disease. If you would be available, I would like to run tests tomorrow." Talk about speechless!

We went home not knowing what to think, but within one week every test they took came back positive for the disease. The test Dr. Bach did was sent to IgeneX Laboratories in California, and is much different than the regular test run at a regular lab.

All I can say is by the grace of GOD!

To make a LONG story short, I have been treating with antibiotics, am seizure- free, and feeling the best I have in two years. My neurologist from the University of Pennsylvania, (who was to do my brain surgery before it was canceled), agrees now, after testing, the seizures were caused by the Lyme disease going undiagnosed for so long, allowing it to progress to the late stage.

PLEASE help me to inform more doctors and patients, and save them the terrible time my family and I have gone through. I am a 29-year-old female, married to the most supportive and caring husband, and have 3 children who all suffered through years of anguish. The doctor now wants my whole family to be tested for Lyme disease.

This could, and should, have been avoided with a simple blood test in the beginning. Should I even mention how much blood work is done monthly when on these kinds of seizure medications? I ask for your help in spreading the word and helping others that may have the same condition.

Thank you, Tara Stoop

My son had an unexplained rash on his face when he had Lyme. The doctor same it wasn't related to Lyme. I believe he was wrong. It went away with abx. My son also had the bulls-eye rash at the same time. He was 10.

My daughter has shown many signs through the yrs.Of either lyme or fm. She has had tmj,leg prob. growing up. She was with me when deer came up to us. She ran high temp. couple days, no flu or cold. That was all at the time. I ended in hosp for 10 days with meingitis/known now prob. lyme infect.

She has called me about weird rashes,depression,torn rotator cuff, no sleep. List goe`s on. The she got pregnant I tryed to warn her. She got very angry.

I think she saw me such a active,athletic,social,plus hard worker etc. Turn into a blob. Mis dxed for many yrs.

Baby was born with something unknown they said with blood. Heart irreg. Broke out in facial rashes, very fussy.

I can`t bring up the topic or we would have no commuication. It taps into her vulnerability, says do you want us like you?

I was in denial for yrs. So I understand. Just feel so bad she will not get tested or the baby. I even tryed to put big time fear how sick young ones can get. She even got more upset.

So that is that...It hurts me to watch. But she is an adult it is out of my hands. I have send her all kinds of info no responce.

My son was BORN with development problems, and at 9 years of age is mentally retarded, autistic, developmentally delayed, hearing impaired and basically mute.

My 11 year old has my symptoms of lyme; vertigo and migraine, stomach problems, eye problems.

My daughter is a freaking medical history case. Do I know if her problems were caused by lyme? Not sure. Do I know for certain that they cultured spirochetes from the inside of her bladder and one of her plastic ureter implants? Yes.

Make a long story short, she was born with a cloacal malformation. No vaginal opening, no anus opening, TWO vaginas on the inside of her, both connected to her bowel and bladder. She has extensive kidney damage. And has had many many many surgeries, and more plastic inside of her than Barbie herself.

She now has to cath herself every four hours with me or another adult watching. She has such a neurogenic bladder if she sneezes, she;d be lucky if she can squeeze out a drop, but if I cath her, I can get 200 cc easy.

She has many more problems on top of this. By the way, she has had infantile seizure disorder.