posted
A few months ago my thyroid was about the same as it was for several years, now the tests have come back as functioning a bit high, and the gp dropped my dosage to 88. I understand lyme can do some bizzarre things, but so quickly?? I did have 2 really rough months there in Sept. & Oct. 04, and was put on Tequin fo something or another, and had all sorts of horrid reactions, the worse was my estrogen level whacked out entirely, went back on premerin for awhile, then it bothered me and I quit taking it, and felt pretty good until Feb. of this year and have felt like phooey until about a week ago, I still feel like I have the brain of a goldfish. I'll try the lowe dose Levoxylk and see, what have you all gone through with thyroid disorder??
Posts: 60 | From Enid, OK USA | Registered: Apr 2005
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HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
My synthroid was lowered too.
I think it was the lab that goofed becuase i had no symptoms of being on too much synthroid.
Pissed and tired, Heather
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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posted
After diagnosed w/lyme~all other kinds of things started going wrong. One of them was I was diagnosed w/hastimotos hypothyroidism. Even though all my levels are "normal" now while on generic of levoxyl~ I still have all the symtoms out the wahzoo. I sleep all day etc. I live in St.Louis but I'm seriously thinking about seeing this endocrinologist in L.A. My pych. said one of his worse patients went there and is doing much better. His website is goodhormonehealth.com. There's lots of good info and links there. The couple of endo. here have said well your ranges are within normal, so you must need a psch. Now my psch thinks it's my hormones. ARRRRRRGGGHHH! ~jackie Posts: 61 | From Missouri | Registered: Apr 2005
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posted
First Free~~ Itell ya', it's enough to make one scream. I sure hope you can get straightened out very! soon. This is a good site, just some of the links didn't work. First hypo- now I'm hyper, sheesh~~ body make up your lymie mind!! lol!! Posts: 60 | From Enid, OK USA | Registered: Apr 2005
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I was just reading Dr. Richie Shoemaker's writings on neurotoxins and hormonal imbalance. Maybe the cholestyramine treatment would help? www.chronicneurotoxins.com.
posted
The thyroid is usually affected, if you have Lyme. Thus, it is probably not good to reduce your antibiotocs in resposnse to hypo- or hyper-thyroid indications. Does the thyroid control body temp? If so, that would explain why, while I had a high temp at first with lyme, etc, when I became chronic, my temp started averaging lower than normal, though I was still very ill. DaveS
Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
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Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
Dave, my endo said it does, and I noticed I was warmer while on Levoxyl. LLMD said bb & metals can affect the thyroid.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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Linda LD
Frequent Contributor (1K+ posts)
Member # 6663
posted
Jackie,
Have you had a sleep test?
I didn't believe I had LD. Then the doc gave me a sleep test and I was waking up 233 times a night!
Turns out I could mentally "push" away the pain during the day (I didn't know I was having pain. But Iat night I couldn't do that and I was waking up half the time because of pain and the other half from sinus (the antibiotic was releasing toxins and hystimens. I had these symptoms even before I was tested for Lyme.
Oh yea, I woke up twice because I am fat.
I got a CPAP machine and that bad boy changes my life--I can actually function now! Maybe not well--but I'm holding down a job!
Do you work for Jones?
God bless you!
Linda
Posts: 1171 | From Knoxville, TN US | Registered: Dec 2004
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Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
Linda, did you have OSA? What was your AHI ndex #?
I didn't have OSA, but my sleep quality was inexplicably poor and the sleep MD was really perplexed. LLMD said non OSA sleep disturbances are common with bb.
[This message has been edited by Foggy (edited 15 April 2005).]
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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posted
Not getting abx trmt. yet, have a good possibility dx from the gp. I do have an aptt. with neuro on May 9, and I've been told he will wnat an MRI. ((no insurance to pay for this!! God will provide somehow!!)) I really want nothing to do with ELISA, just want the western blot for now, wouldn't that be the right choice?? Thyroid does control your body temp fer sure! Me personally~I'm kinda' chilly in the AM, but around 3:30-4:00 EVERYDAY get way to warm. Like clockwork, was earier before time change. The thought of food before 2-3 PM is nausiating to think about, but I always have a good supper. I just want to know what's in my brain besides 18 years of bird dust, feathers, and blonde hair! lol
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Posts: 60 | From Enid, OK USA | Registered: Apr 2005
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posted
Linda~ I had sleeping problems before lyme. Once in a sleep study when I was about 15. They said I woke up more times than anyone they had ever tested. Not fully awake- I forgot what it was officially called. I never had the chance to really get the R.E.M. sleep that you need. The next day some Freudian looking doctor came in and told my mom your child is "very, very depressed". I'm like tell me something I don't know Einstien. (Ididn't actually say that-but it was my general thought.) My mom was on her third marriage and things were not good. Anyway they gave me sleeping meds and I still take something every night. My second sleep study was about 8 years ago. I have the same partial wakening thing but no apnea. The weird thing is-after getting lyme- none of my previous meds would work. We've been on a trial and error thing every since. Thanks for your concern.~jackie
Posts: 61 | From Missouri | Registered: Apr 2005
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posted
Just went back to doc. who said I might want to see endocrinologist in L.A. He's changed his mind. We're going to try a few things first. We switched off generic to Synthroid. Some doc. believe the generic thyroid medicine doesn't metabolize as well. Next we're going to do some blood tests- when those come back-we might consider raing the dose and/or adding T3. There's a couple of websites that say if you have any kind of autoimmune disorder you may not be able
to convert the T4 unless you add some T3.
Linda~ I don't know of a Jones.
[This message has been edited by first free (edited 16 April 2005).]
GP changed me from Levoxly to regular Synthroid, and it does seem to make a difference. Could be batches are made a bit different, I don't know. You just hang in there.
Posts: 60 | From Enid, OK USA | Registered: Apr 2005
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