My situation has only responded to two approaches, done together: hit the Lyme with a drug combination, and treat the co-infections with the strongest possible drugs available.

Different people truly do need variations on treatment, as there is no one combination that works for everyone.

Right now, I'm experiencing significant improvement on the following antibiotics:

Lyme: omnicef, ketek, flagyl
Babesia: mepron 10ml/2x day, artemisinin, ketek

I also have bartonella, but cannot do three antibiotic protocols at the same time. When I do go after that, I'll take rifampin.

If you try the above abx protocol, be prepared for a severe herx.

Different infected people are infected with different strains, we all have different body chemistry, differently abled immune systems, and we ALL have different coinfections.

Have you been tested for coinfections? Regardless of the outcome of testing,

( negative or not) the best LLMDS know that non response to abx, could mean a few things:
Its simply not the right abx,
It's penetrating the wrong area of the body: tissues v. blood
Its NOT penetrating the right areas of the body
Theres a coinfection
Etc.

It may not be that you have had this for so long that nothing is going to work. THere is probalby ( just my opinion) a whole gammut of other possible infectiosn that are being overlooked.

I did not have any IV, but it did take over a year before I felt ANY better.

Make sure you are TREATED for babesiosis, as the tests for it are less than accurate. [BIG understatement]

Be patient and don't panic. Are you taking milk thistle or other things to keep your liver healthy? You may have toxic overload at this point.

likewise when it is pulsed (meaning taking it 5 days a week) and flagyl on the weekends.

i've also heard many in Europe have had success using biaxin xl 1000mg a day with 300-500mg doxcycline a day.

Just a thought, you may want to re-think if you have a "good immune system..."

I thought I had a good immune system too, because I rarely got colds/flu. But some people think that is not a good sign, and a sign that the immune system is so tied up with Lyme that it can't deal with other things that come up.

We would all like to think that we "should be able to fight this," but that doesn't help. We're dealing with a strange disease or diseases, possibly genetically engineered, along with countless other assaults to our immune system like environmental toxins and vaccine toxins.

quote:

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Originally posted by ibrakeforticks:
If you feel you're not responding to 9 months of a treatment, what does your doctor say?

Just a thought, you may want to re-think if you have a "good immune system..."

I thought I had a good immune system too, because I rarely got colds/flu. But some people think that is not a good sign, and a sign that the immune system is so tied up with Lyme that it can't deal with other things that come up.

We would all like to think that we "should be able to fight this," but that doesn't help. We're dealing with a strange disease or diseases, possibly genetically engineered, along with countless other assaults to our immune system like environmental toxins and vaccine toxins.

I don't have any answers, maybe herbs or homeopathics (Taurox has been discussed here lately) to try to help the immune system.

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Penicillin should not be used on it's own without other antibiotics in combo to get all the Lyme forms.

IV or IM penicillin should be followed up with oral antibiotics until symptom free for months.

Dr B uses combinations such as IM Bicillin LA with pulsed Biaxin and Flagyl...you really need to be monitored by a knowledgeable LLMD and your co-infections treated also.

He said Ketek is good at killing Lyme but I have not tried it.