LymeNet Flash: questions about encephalitis and brain sx. your experiences?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » questions about encephalitis and brain sx. your experiences?

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Topic: questions about encephalitis and brain sx. your experiences?

pippy
LymeNet Contributor
Member # 6005

posted

Hi everyone
This is a question for you all about encephalitis symptoms. I read about how a person can get an infection then get an auto-immune encephalitis reaction where antibodies attack brain! yikes!

The most persistent sx for lots of people are neuro problems like hypothalamus suppression and limbic problems.
For me the sleep disorder and seizure-like episodes of depression feel like the brain is swollen and like it is an emotional seizure (crying jags are the only thing that take the "pressure" off the brain temporarily but are scary for anyone else to witness)
These are getting less with treatment but by far the worst.
Is it possible that such deep brain interference is due to actual damage to the brain (irreversible), neurotoxins, autoimmune response or just swelling due to Lyme?

I get frightened because i can be going along much better and then feel like i am on some drug and my brain just does not work.

Has anyone had any luck with anything to help the swelling and/or neurotoxins in the brain?

Does the brain heal up and start to work more normally or is it permanent damage?...I wonder if there is some damage that cannot be reversed...can the brain make a complete recovery?

Your stories and advice as to how to help this would be most helpful!
Thanks
pip

Posts: 446 | From California | Registered: Jul 2004 | IP: Logged |

suttles
Member
Member # 5984

posted

My brain feels like it is in a high altitude.
Most of the time is is like when you would start to get ready to pass out but nothing ever turns black.
It just gets to that point and does not do anything but keep me in a feeling like I am not getting enough or to much oxygen.
This makes me feel sleepy also.
Or the feeling you get if you have ever had the breath knocked out of you and things are idled in your brain for a few moments. But I get sleepy with it.
Neurontin is the only thing that has helped me. Almost every drug that I have taken makes me sleepy but Neurontin helps me stay awake.
I would really like to know if what I am describing is like anything that someone else has felt.
I don't smoke pot but did as a teen and it feels like my head is stoned but it isn't.
Zombie like would describe it.
Suttles

Posts: 67 | From moving soon | Registered: Jul 2004 | IP: Logged |

krazykt1
LymeNet Contributor
Member # 3739

posted

pippy and suttles, you have both just completely described my brain symptoms..I too hope it's not permanent. I was worried that it may be in my case because I've been infected 20+yrs.

I think this stuff is from inflamation that the die off causes (I truly hope so) The "not enough or too much oxygen" feeling is very familiar.I have seen alot of improvement in the last 5 months tho and can't think why that wouldn't continue...

Posts: 740 | From BC Canada | Registered: Mar 2003 | IP: Logged |

lla2
Frequent Contributor (1K+ posts)
Member # 2364

posted

I go to a naturopath and he has me on omega 3(primrose oil) adn omega 6(fish oil 3000mg of both) along with vit.b6, and magtabslo, all to help heal the brain adn decrease the inflammation association with leftover lyme encephalitis...if you read dr. B\s guidelines he makes recommmendaitons for using both of these as well..

they heal brain tissue as well as reduce inflammation..it's slow but it's working...

lisa

[This message has been edited by lla2 (edited 18 April 2005).]

Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002 | IP: Logged |

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