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»	LymeNet Flash » Questions and Discussion » Medical Questions » Started IV and no Herx

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Topic: Started IV and no Herx

pollo
Unregistered

posted

Hi all

I just started the IV Rocephin at 50mL per day. I started on Tuesday and I went to see the Doc on Saturday. He was surprised to find that I still did not register no Herx due to the drug. This is scaring me since no Herx no Lyme. Although he says I do have lyme and treatment should continue.

I have a lot of pain all over the body specailly when I apply pressure to the body and it is this pain that mostly bothers me. I also came positive for Trichinosis which is an incfection from infected pork. He said that the symptoms are very similar to each other. He was implying that maybe the pain is due to the Pork infection. This is scary since this can not be reverse.

Could this be the reason I am not registering a Herx reaction? and
Should I be concerned if I have no reaction at all?
Do you need a Herx reaction to confirm that it is Lyme?

Thanks a lot for your help and sorry for the long post.
Alberto

IP: Logged |

HaplyCarlessdave
Frequent Contributor (1K+ posts)
Member # 413

posted

I would recommend that you be happy that you don't have a herx yet. But a herx may come along soon. The timing can vary quite a bit. The intensity, too, can be quite variable. For me the "herx" usually hit around 3 weeks after I started a new abx combi. Gingko seemed to help tone down the "herx" a bit. 'Nutrijoint' and advil helped a little, too. (for ...'celebrex'.., NOTHIN' BUT THE THUMBSCREWS!-- see other posts I have made on that.!.)
Again, the "herx" is unpredictable. While no herx could possible mean the abx are not getting the stuff, that's not always the case. There's all kinds of timing factors involved.

DaveS

Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000 | IP: Logged |

zipzip
LymeNet Contributor
Member # 6226

posted

my herxes have always come within 3-5 weeks after starting a new abx, specifically rocephin.

Posts: 795 | From nyc | Registered: Sep 2004 | IP: Logged |

lymesux
LymeNet Contributor
Member # 6248

posted

I had no herx the first time i was on rocephin - 7 weeks no herx then IDiot doc took me off and BAM herx badly!

The next time i went on rocephin i herxed at exactly every 4 weeks though the first few days i took it i did feel very tired too.

don't worry, feel lucky and be prepared.

Posts: 799 | From home | Registered: Sep 2004 | IP: Logged |

hiker53
Moderator
Member # 6046

posted

Although I have never taken rocephin, I never herxed on I.V. drugs--even flagyl. Just felt tired.

My LLMD says only 50% of her patients herx.

Posts: 10189 | From Illinois | Registered: Aug 2004 | IP: Logged |

TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019

posted

Who says no herx, no lyme?

Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003 | IP: Logged |

cootiegirl
Frequent Contributor (1K+ posts)
Member # 3216

posted

My thought exactly, COL! Pollo, if you scroll down a bit, you will find another thread where a poster was concerned about not having a herx. In that post I explained that I'm 4 years into treatment, feeling better finally and all herx free.

The more important question in all of this, is how do you feel? Some lyme patients will not herx, and will start to feel better, so keep track of your symptoms, and monitor your progress.
cootiegirl

Posts: 1728 | From New York State | Registered: Oct 2002 | IP: Logged |

BJG
LymeNet Contributor
Member # 4723

posted

Alberto,
Do not loose hope or be confused.
Read these posts and learn the truth.

Unfortunatley some good intended docs give us the wrong info.

You are on the right path.
Be patient and trust that you will get better.
Your friend from IL
B

Posts: 468 | From IL | Registered: Oct 2003 | IP: Logged |

treepatrol
Honored Contributor (10K+ posts)
Member # 4117

posted

Rocephin May not work on the strain of lyme you have or it hasnt killed enough of the spirochetes to produce a herx yet sometime well in my case I was on abx's almost three months before I herxed then I herxed every month.(28to34 days lyme cycle) The herx reaction is toxins from dead spirochetes and if enough hasnt been killed yet to overload your system from ridding toxins you wont herx until your overloaded with toxins.

Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003 | IP: Logged |

treepatrol
Honored Contributor (10K+ posts)
Member # 4117

posted

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[This message has been edited by treepatrol (edited 25 April 2005).]

Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003 | IP: Logged |

pollo
Unregistered

posted

Thanks All for your help. I appreciate your kind words. I am more than ready for the Herx. I am not scared of it, but I was under the impressions that If you get no herx then you are not doing the killing of lymies.

My other worry is Trichinosis. Today I am to schedule a doc visit to have a muscle biopsy that would determine if i have the virus in me.

I will keep you posted. Thanks to All.
Alberto

IP: Logged |

liz28
Unregistered

posted

Supposedly, a natural anti-inflammatory called bromelain has helped some people.

Herxes generally start from four days to a week after you start an abx. But as another poster said, sometimes Lyme really isn't the problem. That would be good news for you.

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Monica
Frequent Contributor (1K+ posts)
Member # 224

posted

I never herxed on IV Rocephin. I just got better. I did relapse after going off the follow-up orals, however.

Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000 | IP: Logged |

pollo
Unregistered

posted

Thanks Monica,

How long were you on IV?

IP: Logged |

Nancy-OH
LymeNet Contributor
Member # 3567

posted

I herx'd on every oral I tried.

However, I did not herx on the Rocephin. I was fatigued, but no pain. I only got better!

After two mos. on Rocephin I did another 8 months on orals before all my pain was gone. I've been in remission now since January and loving it!

Hang in there...give it a chance!

Nancy

Posts: 963 | From N. Olmsted, OH USA | Registered: Jan 2003 | IP: Logged |

breathwork
Frequent Contributor (1K+ posts)
Member # 567

posted

I didn't really herx until week four...then it took six weeks for it to subside. Until week four it was very gradually increasing tiredness...

I was on IV for nine months...herxes came and went like clockwork after the first one.

Posts: 1062 | From CA USA | Registered: Jan 2001 | IP: Logged |

Monica
Frequent Contributor (1K+ posts)
Member # 224

posted

I was on IV Rocephin for a total of 2 1/2 months in the summer of 2002. It definitely helped, but it also precipitated the removal of my gallbladder.

My doctor had me take orals before I went off the IV, and continue for 4 months after that.

Unfortunately the results were not long lasting.

Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000 | IP: Logged |

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