LymeNet Flash: Question about neuro-lyme

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Question about neuro-lyme

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Topic: Question about neuro-lyme

lymie7yrs
Member
Member # 7169

posted

I'm confused about something. I supposedly have neuro-lyme because I have problems walking and talking. But I have never had the first bit of brain fog or confusion, my mind is as sharp as ever. My lyme must all be in my joints. Any thoughts on this?

Posts: 14 | From Dayton, Ohio | Registered: Apr 2005 | IP: Logged |

Meemer
Member
Member # 6620

posted

Did you ever have Bells Palsy? That is one symptom that would classify you as neurological lyme.

Meem

Posts: 66 | From North Potomac, Maryland | Registered: Dec 2004 | IP: Logged |

Aniek
Frequent Contributor (1K+ posts)
Member # 5374

posted

I was confused about this too. Neuro-lyme can mean that your central nervous system is impacted, therefore affecting your motor skills (including walking and talking). Cognitive problems, like brain fog and confusion, are just different neurological symptoms.

You can have one without the other. I have nerve pain and myoclonus, both neurological, but no cognitive symptoms.

Posts: 4711 | From Washington, DC | Registered: Mar 2004 | IP: Logged |

Monica
Frequent Contributor (1K+ posts)
Member # 224

posted

My LLMD told me the Lyme is "deeply imbedded in my nervous system," but I have no cognitive dysfunction. My symptoms are mostly neurological such as inability to walk without help.

I do have other symptoms such as joint pain.

Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000 | IP: Logged |

timaca
Frequent Contributor (1K+ posts)
Member # 6911

posted

some info on neuro lyme can be found at www.columbia-lyme.org

Tina

Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005 | IP: Logged |

bg
Junior Member
Member # 46416

posted

Tina,

Thanks for the wonderful site! Went there & read some of their user-friendly stuff .. easy to learn from.

Bettyg

Posts: 1 | From US | Registered: Aug 2015 | IP: Logged |

lymie7yrs
Member
Member # 7169

posted

quote:
Originally posted by Meemer:

Did you ever have Bells Palsy? That is one symptom that would classify you as neurological lyme.
Meem

I never had bells palsey, but one side of my face droops a little and my upper lip is numb.

Posts: 14 | From Dayton, Ohio | Registered: Apr 2005 | IP: Logged |

lymie7yrs
Member
Member # 7169

posted

quote:
Originally posted by Monica:
My LLMD told me the Lyme is "deeply imbedded in my nervous system," but I have no cognitive dysfunction. My symptoms are mostly neurological such as inability to walk without help.
I do have other symptoms such as joint pain.

Is your walking difficulty due to stiffness, or poor balance or both. I cannot walk without help either. What are you taking, and are you getting any better?

Posts: 14 | From Dayton, Ohio | Registered: Apr 2005 | IP: Logged |

Monica
Frequent Contributor (1K+ posts)
Member # 224

posted

Good question.

I am very stiff and in pain most of the time. I also can't maintain my balance.

The first symptom I had that would NOT go away was weakness in my right leg. I could not lift it.

Now I can lift it but I have a host of other problems.

I'm on 800mg Ketek and 800mg Cedax daily. Just started the Ketek at the beginning of March and added the Cedax at the beginning of April.

Herxing rather badly. Have had to use a walker since I started this regimen.

Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000 | IP: Logged |

GiGi
Frequent Contributor (5K+ posts)
Member # 259

posted

Lymie7yrs,

"I never had bells palsey, but one side of my face droops a little and my upper lip is numb."

That is Bell's Palsy, mild. Mine cleared after heavy treatment, mainly directed at dental infections and heavy metal toxicity. It took, it seemed like, forever. Several years to get the thioethers and mercaptans
(from root canals and crowned bad teeth) out of my brain and cranial nerves. Many neurosymptoms are caused by this condition, not only bacterial and viral infections. Parasites are also in the picture when it comes to neuro problems as is mold and fungi, etc.

Antibiotics did not even touch my facial paralysis. It took treating everything else mentioned above before I started to look normal again.

Take care.

Posts: 9834 | From Washington State | Registered: Oct 2000 | IP: Logged |

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