posted
If the Sun kills lyme and the result is a herx reaction, Does that mean people should get as much sun as possible so that they clear more Lyme even though it wipes them out?????
Posts: 57 | From St. Peters, Mo | Registered: Apr 2005
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Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
I think itinflames the bb in the brain big time. I get so dazed from sun or oppressive heat.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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posted
Anyone have any tips that help them tolerate the sun better so we can enjoy nice summer days outside without having our heads explode from brain fog??
Posts: 57 | From St. Peters, Mo | Registered: Apr 2005
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posted
If you are sensitive to the sun and lights, you may have a disregulated D 125 . This is one of the basis for the Marshall protocol. i was very sun and light sensitive, after 8 months or so it all went away and all of my symptoms. I'm on phase III and doing great.Check out marshall protocol.com. You can do the d tests and this is an indication of a d 125 problem. Also, if you are taking antibiotics like Doxy, or others, they make you very sun sensitive.Good luck
Posts: 512 | From Memlo Park, Ca USA | Registered: Sep 2002
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I went to that website for Marshall protocol and it's a little hard to understand. In lay-man's terms what the heck is this? Sounds like you get sick from vitimin D and need to take everything out of your diet that had vitimin D in it.. Is this what they are saying. If so, many people with Lyme may have it as well. How is it treated? I mean come on you need Vitimin D to live don't you? I have brain fog right now so maybe I'm just overy stupid right now...
Posts: 57 | From St. Peters, Mo | Registered: Apr 2005
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posted
this is an interesting question posted. Thinking about it I have always experienced extreme fatigue after being in the sun awhile. I believe I've been infected for at least 25 years. If it is true about maybe herxing that would be a good explanation for me. I try to stay out of the sun however as I am fair skinned and tend to burn easily. I always thought the fatigue I had after a nice day outside was from allergies. this has given me something to think about for sure.......
Posts: 547 | From Maryland | Registered: Mar 2005
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posted
>Another possibility (educated speculation) >is that heat and possibly sunlight causes >borrelia organisms to convert from cyst >forms to spirochete forms, and to "act up". >Hence the worsening of symptoms.
Maybe Sun could cause them to act up but I doubt heat does since a hot dry sauna makes me feel great. (As long as I am lying down while I'm in it)
I'd still like someone write about this marshal protocol. From what I read focuses around eliminating Vitimin D from your diet. I can't figure out how that would be a good thing to do..
Posts: 57 | From St. Peters, Mo | Registered: Apr 2005
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quote:Originally posted by tom63376: [BMaybe Sun could cause them to act up but I doubt heat does since a hot dry sauna makes me feel great.
..[/B]
Spirochetes HATE the heat! I usually feel horrible in saunas or other hot places, for sure!! Many here use saunas as therapy.
The Marshall Protocol is a specific method of treatment for sarcoidosis. Some are now adapting this protocol for use against Lyme. It helps some, others not.
Posts: 977 | From Austin, TX, USA | Registered: May 2004
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Lyddie
Unregistered
posted
I've gotten really sick from sun exposure during my Lyme treatment (4 years). I had skin biopsy at one point, which indicated autoimmune activity in my skin, where I had ahd sun exposure.
I'm one of those people (as are my daughters) with the HLA DR4 genetic type, and I (we) have posoitive ANA's as well. As result, I have been diagnosed with "cutaneous lupus."
This is, however, in my opinion and our LLMD's, just another manifestation of my Lyme. In people with HLA-DR 4 type, Lyme triggers autoimmune activity, which may explain the fact that my Lyme is so hard to treat.
Have you had your ANA or HLA type tested? Just a thought...My situation is not rare at all...any LLMD should tell you that a positive ANA can accompany Lyme,and will go down with treartment at some point.
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