Hi All...Thx in advance for your feedback!
I will be finding out the results of my IgenX tests tomorrow @ my LLMD. Lyme/Co-infections and several other tests (Lupus screen/H Pyloi, and more).
I will most likely defer to the advice of the LLMD, but want to see if you all have had certain success stories on certain ABXs and/or treatment methods. I know it'll be different for everyone, and will depend on what exactly I test positive for.
I'll state my background, in hopes that someone with a similar history and infection level has had some success in treatment...
Lyme symptoms hit me like a freight train mid-Oct '04 - Flu-like feeling (but no temp), vision issues, neurological issues, headaches multiple times/day, tendon pain, muscle cramps, (over 30 Burrescano symptoms) through December '04.
12/04 - 1st Test - ANA = False Positive and Lyme Screen = positive (1.57) but negative on the WB (all bands). Convinced Primary Doc to prescribe 3 weeks of Doxy, on which the majority of symptoms improved or were resolved. Doxy ran out, digestive issue returned, along with some other symptoms but not nearly to the level as previous.
1/05 - 2nd Lyme test - LabCorp Lab - Band 23 showed Positive on WB. Was able to get my Neurologist to prescribe another 30 days of Doxy to get me through to my Appt with my LLMD in March. Took 2 weeks of the Doxy, but felt like I was reacting negatively to it (not herx - dry eyes, metallic taste in my mouth), but at the same time, didn't feel it was doing anything for the remaining symptoms of spinal pain, tendon pain, and eye issues. After stopping the doxy this time, no symptoms returned that weren't already there.
Through Feb, Mar, and April I feel like I have steadily improved, though some of the symptoms remain: Thoracic spinal pain, occasional tendon/muscle pain, and the vibration/spasm symptom in my arm and face.
I never did get the fatigue that many do. My energy has been rather good throughout, and I feel that I have had a fairly mild level of infection/exposure. I think this was due to catching it and getting on the Doxy fairly quickly after symptoms began (albeit not enough, or long enough). In March I caught the flu (like everyone else) and my new primary doc prescribed Zythromax (just 1 round). When I took that, it seemed to really work well on the digestive issues I was having. I have also seen posts that Zithro has helped people out in the spinal pain department.
Given the above, do you have any advice on how to proceed with treatment?
Btw...also taking Cat's Claw/Pro-biotics/Magnesium/Vit C & Multi
Sorry for the length of this, but really do appreciate you all for your advice, feedback, and support...I don't know where I would be right now without you, and this forum!