posted
I have CFS and have tested positive for Mycoplasma Pneumonia 3 times over the last year and a half.
My Lyme tests are equivocal and my LLMD thinks my 2 root canals are what are compromising my immune system.
I will have them pulled within the next month.
After reading about stealth viruses I begin to wonder what the culprit is here.
I also heard that most Lyme patients test positive for Mycoplasma.
We are deciding on an antibiotic and are thinking I will pulse 50-100mg Minocin every other day or MWF as I am chronic and high doses are probably not the best choice.
I am curious how many of you have tested positive for Myco P. and what you used to eradicate it.
Thanks!
Chris
Posts: 216 | From Upstate NY | Registered: Oct 2004
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Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
I tested positive. My LLMD explained that it meant I either had it in the past or had been exposed to it. No treatment.
Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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posted
Yep, Me too...I think zithromax is treatment? Ketek I saw treats most mycoplasmas...I am on that now..maybe it will finally budge.
Posts: 968 | From private | Registered: Jan 2005
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Chris,
From my understanding, mp is a pretty common respiratory infection. I tested positive, but I don't know if any of my treatment has been specified towards it.
The abx I have been on is:
Penicillin and Biaxin, then Augmentin and Biaxin, then Augmentin and Levaquin, and now Ketek
My understanding of the Minocin treatment you describe is that it is more of a maintenance treatment. Were you thinking of starting the Minocin to build up to higher treatment?
Many of us on this board are probably what you would describe as chronic. I had Lyme for 17 years when I started treatment, and I'm pretty sure I probably have had MP in my system about 10, judging when I had multiple respiratory infections.
Posts: 4711 | From Washington, DC | Registered: Mar 2004
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Yes I was going to start with 50mg every other day of Minocin and then build if needed.
I think my LLMD does not think Lyme is my main problem (he was going to whip out the Rocephin IV four months ago).
My treatment will be more the way The Road Back Foundation and The Marshall Protocol (without the Benicar for now) treat the TH1 illness.
Thanks!
Chris
Posts: 216 | From Upstate NY | Registered: Oct 2004
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Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
Chris
I am positive for Myco P. by PCR. Myco P is very common, also known as Walking Pnuemonia. Even though so many have had it, it doesn't cause everyone problems. Most test are useless in determining whether or not you are having trouble because of it right now.
It can go dormant like most of the other CWDs, so if you are healthy it is likely dormant. If you are not healthy it can surface just like the other stuff and cause havoc. Traditional medicine already knows this to be true with other diseases like chicken pox. Most people have had it, and are never bothered by it again, but if you are not healthy it can return many years later in the form of Shingles.
My bout with the original Myco P. lung infection was the beginning of my downward spiral.
I also have Fermentans and I had been treating them with first Doxy, which was to much and have since been on Minocycline for about 2 years....I think, on and off. Again, I have made outstanding progress, but I do believe it had a lot to do with treating hypercoagulation with the heparin first and NattoK for the last year. I think the 2 make a powerful wallup.
I am now strongly suspecting Lyme as the real chink in my armour. I also from symptoms suspect Babesia. A recent finding was a study indicating that heparin kills Babesia. Heparin has SO many uses.
Good idea to start slow, you can always increase the dose. One good thing about Mycos is they are extremely sloooow growing, so there is no need to rush.
beachcomber
Frequent Contributor (1K+ posts)
Member # 5320
posted
If you had an active infection of MP the antibodies will always show up in your tests, just like Hep. A. It doesn't necessarily mean the infection is active. Just means your body has the antibodies to try to fight it.
I did have an active infection and was treated with a Z-Pack, which I think was 500mg. Zithromax for 4 days. I was sick for 3 months with it - really wiped me out.
I think Zith is the first treatment given, generally. I took 2 more rounds of Zith - 4 months both times for this and Babesiosis. I still show positive antibodies for MP.
Not sure this is helpful, just some personal info for what it's worth.
posted
I am on mepron also,but only 1 tsp. twice a day. all it is doing is making me sick!!!
I am curius about the heprin.Jelly bean, can you email me about the artical you read about heprin killing babs??
Is the heprin in pill form or is it I.V. form like when you go to the hospital with heart palps?? I know there is differant types.
Mycoplama, I hope you feel better real soon!! I am just getting over congested lungs , but thought it was from the Mepron.I am on my 3rd bottle.
Wishing you luck with your treatment.Just make sure the Doc watches out for your liver!! Brenda
[This message has been edited by BRENDA2003 (edited 04 May 2005).]
Posts: 36 | From PITTSVILLE,WISCONSIN | Registered: Aug 2003
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Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
Brenda
Here is the article on heparin inhibiting Babesia. ========================================= National Research Center for Protozoan Diseases, Obihiro University of Agriculture and Veterinary Medicine, Inada-cho, Obihiro, Hokkaido 080-8555, Japan.
We examined the inhibitory effects of three heparins on the growth of Babesia parasites. The multiplication of Babesia bovis, B. bigemina, B. equi, and B. caballi in in vitro cultures and that of B. microti in vivo were significantly inhibited in the presence of heparins, as determined by light microscopy. Treatment with various concentrations of heparin showed complete clearance of the intracellular parasites. Interestingly, a higher percentage of abnormally multidividing B. bovis parasites was observed in the presence of low concentrations of heparin. Furthermore, fluorescein isothiocyanate-labeled heparin was preferably found on the surfaces of extracellular merozoites, as detected by confocal laser scanning microscopy. These findings indicate that the heparin covers the surfaces of babesial merozoites and inhibits their subsequent invasion of erythrocytes. ============================================
The heparin is usually taken in the form of an injection. It is a miniscual dose compared to when they give you an IV in the hospital.
There are heparin lozenges out there, they are called something else, can't remember but I can find out if you are interested.
My doctor has a compounding pharmacy make up a nasal spray for his patients. He's pretty ingenious like that. did it with Imetrex too, way before it was available in that form. The nasal spray is so easy and it worked just as well for both my daughter and I.
The compounding pharmacy does ship so if you are interested, again let me know.
Mathias
Frequent Contributor (1K+ posts)
Member # 5298
posted
Ketek is a good first choice, followed by Dynabac, Biaxin and Zithromax. If those don't work, move to the floroquinlones before trying a tetracycline abx.
[This message has been edited by Mathias (edited 05 May 2005).]
posted
Thank-you very much Jelly Bean, I am interested in the nasal spray. Please e-mail me with any info. I see my llmd next week. Brenda
Posts: 36 | From PITTSVILLE,WISCONSIN | Registered: Aug 2003
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