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» LymeNet Flash » Questions and Discussion » Medical Questions » Neuro issues...very worried!

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Author Topic: Neuro issues...very worried!
Bill ATL
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All...

I'm getting very worried about the progression of these vibrations and numbness in my face and neck. I feel like my speech is being affected - stammering/fumbling over words. The vibrations at night are almost unbearable. My eyebrow spasmed in bed last night along with 2 uncontrolled leg jerks/kicks...not just a spasm or cramp, but a full kick, like when your just starting to dream...but I was awake. This seems to be progressing quickly, and I'm very scared. The vibrations seem to be causing me to sweat briefly while laying in bed.

I am on Mino/Zithro right now. I have a call into my LLMD.

What is this? Anyone go through similar?


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Monica
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It sounds as if you've got quite a case of neuro Lyme.

I can really relate to that, as I do too.

My symptoms are different, but in the same family.

I usually have difficulty sleeping because of my legs. Pain, spasms, spasticity, restless leg. Worse in the right than the left. I am so stiff when I wake up (usually after a couple of hours) that it's hard to move at all.

Sounds to me as if you're having a herx, but of course your LLMD will know better than I.

Scary? Definitely.


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Lymetoo
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I feel for you. I would be worried too. However, this is probably a herx. Maybe you can back off the meds for a day and see if your symptoms lessen??? check with your dr

I had the vibrations really bad in my head and neck. Nearly drove me crazy. Finally went away.

Are you taking alot of magnesium? This could REALLY help with the spasms and such.

------------------
oops!
Lymetutu


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Bill ATL
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Yes, most of my symptoms have been Neuro from the get-go! I am praying that this is a Herx actually.

Along with the Abx, I am taking Magnesium Citrate, B-12 methyl-sublingual and complex, Pro-biotics, glucosamine/condroit, vit C, and charcoal. I was thinking of stopping all but the Abx & probiotics...to see what happens.

Would a Herx cause additional neuro issues that I hadn't had yet? (uncontrolled leg jerk/kick - this is the one that scares me!).

Thx for your replies...


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Energy2Heal
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Bill,

I believe a herx can certainly cause additional neuro symptoms. For me they included light and sound sensitivity and partial right-side paralysis. I too would suggest talking to your LLMD about it.

- Andrew


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BarelyBreathin
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OK, now I might tick some people off, but I'm going to give my oppinion none the less. Almost ALL of my symptoms for years have been neuro.

The leg jerks were some of my first symptoms along with the speach problems, numbness and tingling in face in extremities etc.

When I was on abx These symptoms got REALLY bad. Many told me that it was a herx. I how ever now believe it was the abx causing my symptoms to flare because the abx were feeding systemic candida. I had one positive elisa one indertermanent Western Blot, but I how ever question whether i ever had lyme or if The lyme was cured leavig me with systemic candida symptoms.

I would hedge a bet that many on here have both lyme and systemic candida, and some may just have the candida.

Check this out. as Lyme can mimic other diseases so does candida.
Candida Yeast/Fungal overgrowth has been found to be a common occurrence in many disorders and is also present in millions of other people who cannot figure out what is wrong with them, or what to do about it.

Symptoms vary from person to person and fluctuate in severity, or may come and go. Most symptoms are invisible, which makes it difficult for others to understand the vast array of debilitating symptoms with which we contend.

The most commom are: an incapacitating fatigue and problems with concentration and short-term memory, flu-like symptoms such as pain in the joints and muscle, extreme tightness in the shoulders and neck, hyper-acidity/acid reflux, brown colored mucus in the back of the throat, blisters in the mouth/tongue/throat, either white or "blood blisters," unrefreshing sleep, sore throat, white coated tongue, an aversion to being touched or jumping, "crawling" skin, chronic sinus problems and headaches including migraines, chronic dental problems.

Visual disturbances may include blurring, sensitivity to light and eye pain.

Psychological problems may include depression, irritability, anxiety, panic attacks, recurring obsessive thoughts, personality changes, and mood swings (irrational rage or crying for no reason - fear of talking to people, any kind of confrontation, isolation) or paranoia.

More of the physical symptoms may include chills and night sweats, shortness of breath, dizziness and balance problems, sensitivity to heat and/or cold, alcohol intolerance, gluten and/or casein intolerance, irregular heartbeat, irritable bowel, constipation and/or diarrhea, painful gas and abdominal bloating, low-grade fever or low body temperature, numbness, tingling and/or burning sensations in the face or extremities, dryness of the mouth and eyes, difficulty swallowing and projectile vomiting.

Also menstrual problems including PMS and endometriosis, recurrent yeast infections, recurrent ear infections, rashes and dry, flaking skin, eczema, dermatitis, acne, skin discoloration and/or blotchiness, dandruff, jock and rectal itching, chronic athlete's foot, chronic toenail and fingernail fungus, ringing in the ears (tinnitus), allergies and sensitivities to noise/sound, foods, odors, chemicals, anemia, weight changes without changes in diet, light-headedness, feeling in a fog, fainting, muscle twitching and muscle weakness, jerky-leg syndrome and low sex drive and/or numbness in the genital area.

These are only the symptoms most commonly reported and documented.

To a person who does not suffer with this bizarre combination (in one form or another), it may seem to be impossible. However, to those of us who have suffered, it is a blessing and a confirmation that we are not alone.

Of course, with so many people suffering, the doctors couldn't brush our symptoms aside forever. Many more people are now being diagnosed with Chronic Fatigue Syndrome (CFS) or CFIDS (Chronic Fatigue and Immune Dysfunction), Fibromyalgia syndrome (FMS), Lupus, Hypothyroidism, Leaky Gut Syndrome, Crohn's Disease, Irritable Bowel Syndrome, Celiac Disease, chronic sinusitis, atopic eczema, Seborrheic Dermatitis, Tinea Versicolor, GI dysbiosis, adrenal dysfunction, Rosacea, Psoriasis, Macular Degeneration, Barrett's Esophagus, Lactose Intolerance, Gluten and/or Casein Intolerance, Meniere's Disease, Obsessive Compulsive Disorder (OCD), and sometimes just depression (which can accompany many disease states), just to name a few. It can be an underlying condition in many diseases, but is often not diagnosed, misdiagnosed, disputed to even exist or is disregarded altogether.


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Bill ATL
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Hey Barely! I am glad you posted this...I always consider all possibilities, and wouldn't rule out that Candida may be part or the issue. Couple questions though...How is this tested and confirmed?

My other blood work showed high Anti-gastric Parietal Cell Antibodies...which indicates Anemia (following up with my primary Doc for further testing).

I am open to everyone's opinions


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krazykt1
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Thanks for this post barely. Could yeast (extreme) cause movement disorders/paralysis type stuff too? thanks kt
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troutscout
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krazy...in a word....yes.

Trout


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BarelyBreathin
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Bill,

Like lymes disease medical history and response to treatment are some of the greatest indicators. There are however some test such as the CEIA and the CAATT....(Candida immuno assay and Candida Albacans antibody titer test) but being that yeast is normally present in all people, healthy or sick, the overgrowth or onse sensitivity to the level of yeast is often hard to measure.

For me if I eat a low carb diet for a period of time and then eat something like pizza followed by ice cream and a coke ide be feelin EXTREMELY ill.

There is also the spit test. Now I dont know how accurate this is, but If you spit into a glass of water first thing in the morning and see your saliva reaching down like legs it supposedly indicates yeast presence.

I did this and i had the leggies n all and I tried it on my daughters who are in good health and there saliva just floated on top which is suppose to indicate no yeast. So I'll leave that one up to your own judgment.

It is best to attack what ever this hellish tormentor is from all angles. Be it Lyme, be it Yeast, or what ever the hell it be Ide just like to send it back where it came from.

Good luck,
Tracy


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BarelyBreathin
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Krazy,

Its caused my leg jerks and tingling and numbness in my face and arms. So ya it can.


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Ms. Myoclonus
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Hello Bill ATL
You might want to do a search on lymenet for myoclonus, which is involuntary muscle jerking. Lyme can definitely cause this condition, and there are several discussions on this board to testify to it.

My myoclonus mostly affects my arms,head, and legs, but I have had full body jerking as well. It definitely got worse after I started treatment, but I am happy to say that several months into treatment I am much improved.

The myoclonus is mostly controlled by a seizure med. called Zonegran so if your kicking gets out of control don't be afraid to tell you doc. you need something.

I also have lots of numbness, but mostly in my feet and sometimes in my hands.

Take care,
Ms. Myo


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Bill ATL
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Thx everyone for the advice on this...I was a bit worried...

My LLMD has prescribed Mepron which I believe is an anti-malarial. I did test positive (low titer) for Babs, so hopefully this will nail it!

Stay Strong!

Bill


Posts: 80 | From ATLantic Seaboard | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
   

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