posted
DOes anybody else think they have this? Colitis caused by bartonella? Diarrhea, swollen glands in the groin and abdominal cramps? My Gi says I have microscopic colitis, but the cause is unknown and no meds are working for the pain. c.diff and h.pylori as well as all other stool dieases have been ruled out.
I have positive test for lyme, babesia, and ehrlichia hme and hge...before treatment my GI tract was a mess...severe pain waking me up at 4 a.m. many mornings in a row...bowel movement pain would become tolerable...back to sleep, nauseau off and on...it would come on like a freight train then leave just as it had come...
Started treatment 6 months ago and in my fourth month was freaking out because I thought I had a CDiff infection...bad cramping, diarreah...I stopped taking what I was taking which was Mepron, Zith., and Septra...then the pain was horrible...
But it was the pain identical to what I had before treatment so I thought back...I had taken a little doxy given to me by a veterinarian who felt strongly I had lyme despite the negative ELISAs - anyway the doxy did the trick for me...I figured if I start taking the doxy and everything just worsens it could be a cdiff...if better then it is the tick borne stuff. Sure enough it was in my case...
So I am convinced one of these infections - Ehrlichia I am suspecting is responding to the doxy...
So yes, I think the coinfections can cause strange gastro things and that most gastro's tests will not indicate a huge sampling of bacteria...I went in and took breath tests at the gastro's office for my small instestine and all registered that there was bacteria in my gut. I had been scoped from both ends and they cultured tissue for hpylori as well had numerous stool tests...nothing showed up but this no name bacteria through the breath tests...
Take care and I sure hope it responds to abx therapy...
[This message has been edited by Lymied (edited 11 May 2005).]
Posts: 655 | From NC, Exit 88 on the Deer SuperHighway | Registered: Dec 2004
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posted
Rank speculation: I haven't been tested for this, and am totally inflammed any way, and so I probably have the same problem.
One thing I suspect is that due to TBD organisms in the spinal column setting-off generalized inflammation to begin with which, in turn affects the nerves, and the nerves send both real and faulty signals to the GI,and other, surrounding tissues, that say turn on inflammation because somethings there.
herniated disc material, vertbrae impinging on nerves, thereby setting of faulty signals that say turn on inflammation.
posted
Don't know anything about bartonella, but spiros like the intestines, don't know why other germs wouldn't also. Here is something on spiros in gut:
Colorectal Dis. 2002 Mar;4(2):97-100.
Intestinal spirochetosis: clinicopathological features with review of the literature.
Alsaigh N, Fogt F.
Department of Gastrointestinal Pathology, Dianon systems, Inc. Stratford, USA, Department of Pathology and Laboratory Medicine, Presbyterian Medical Center, Philadelphia, USA.
OBJECTIVE: The purpose of this study is to evaluate the clinical presentation of patients with intestinal spirochetosis, as it is has not been well described in the literature.
METHODS: We studied 15 patients with colonic biopsies that showed spirochetosis. The study group consisted of 11 males and 4 females, 10 of the males were heterosexual and one was homosexual. None of these patients were clinically immunocompromized. A colonoscopy was performed for evaluation of different symptoms. The histological diagnosis of spirochetosis was made on H&E examination and confirmed by Giemsa and/or Steiner stain. There was no evidence of associated active or any specific colitis in any of the cases. The control group consisted of 30 patients, 16 males and 14 females that were matched for age and clinical indications for obtaining a colonic biopsy.
RESULTS: Colonic mucosa with prominent brush border-like surface colonized with large amounts of spirochetes was noted in all 15 cases in the study group and in none of 30 cases in the control group. The clinical presentation in patients with spirochetosis was compared to the control group. Of the spirochetosis patients 86% presented with some form of clinical symptoms compared with 13% of controls. These symptoms included chronic watery diarrhoea in 40% spirochetosis patients vs 5% in controls; a change in bowel habit was present in 33% of spirochetosis patients vs 3.3% in controls. The endoscopic appearance in spirochetosis patients was reported as normal in six patients, 'polyoid' in seven patients, erythematous in one patient and 'lesion' in one patient.
CONCLUSION: These findings suggest that colonic spirochetosis affects a heterogenous group of patients, the majority of whom presented with gastrointestinal symptoms. The variable clinical findings may be related to the infecting organism and the condition may not be harmless in all patients.
PMID: 12780629 [PubMed - as supplied by publisher]
Posts: 8430 | From Not available | Registered: Oct 2000
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WildCondor
Unregistered
posted
Cool info! Thank you! Biopsies were taken from my intestine for both Lyme and Bartonella, I am still waiting for the results on those. The(non-Lyme) biopsies the GI doctor took came back + for microscopic colitis, with lymphocytes on them. I have been given a Rx for Pentasa and also Neurontin for pain, so far no luck, still have pain, diarrhea and inflammation, abdominal cramps and swollen glands in the groin. Its got to be bart!
posted
Wildcondor let us know please what is the biopsy's result for bart..don't forget to keep us posted.
Posts: 983 | From The sky | Registered: Feb 2005
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TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
Yes, bart can hit the intestines.
Yeast recently was the huge arse culprit that did that to me, down to the swollen groin. Painful and I never left anywhere close to a bathroom.
Let us know what you find out
and HOW YA DOING?? Jodie
Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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posted
Thanks Lou for that info! I am going to forward that on to my Gastro...
I hope you get some answers soon W.C.
I was not tested for Bart...and think that I am dealing with that too maybe. I had been treated for UTIs with Levaquin prior to my diagnosis of TBI -
I am starting to think those weird Levaquin reactions were herxes to Bart...
Posts: 655 | From NC, Exit 88 on the Deer SuperHighway | Registered: Dec 2004
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Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
I get loads of GI problems too. Lots of burning in the intestinal area (not just the stomach but literaly everywhere!!!). My GI dr did a biopsy for Bart from my stomach that was neg. Now couldn't the bart still be the problem even if the stain in the stomach came back negative???
I do notice it improving now day by day but still. Lots of pain and problems. I think it all has to be related.
troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
I am seconding PQ on his and the spinal connection..No..I am not waffling here.
Whenever my nerve inflamation flares...so does my bowel pain.
So.........I reiterate what I said earlier...all of them have shown up there..but, I have contended for a VERY long time that that bulk of our problems lie in the nervous system.
Why? If you study meridians, chiro, and plain ole alopathic neurology..you will see..that the bulk of our symptoms can be explained by neurological involvement.
Trout
PS...I have said time and again that I beleive we are ALL neuro-Lyme
Posts: 5262 | From North East Iowa | Registered: Sep 2002
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Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
Do any of you get a burning pain in your gut when you flare up too? I know that when I am flaring bad, thats usually when my gut is burning, churning, cramping, etc. Its frustrating cause you don't know if its something else going on or all related!
posted
The nerves are a big part of this. My LLMD actually talked about the inflammation of the lymph nodes and nerves surrounding the intestines being inflammed. They call it Mesenteric Adenitis. I guess the inflammation in my case wasnt big enough to show up on CT scan. Its very painful, neurontin helps a bit, but the pain is still there. The abdominal cramps and nausea are really nasty with this and I have been diagnosed with Microscopic colitis, probelem is its cause is unknown. All the meds are symptom relief only...major bummer! I am so determined to get well because the rest of me is doing great, its all now in my guts! Ahh!
posted
Bartonella can definitely reside in the intestinal tract as it did in my son who was misdiagnosed with Crohn's disease. Later, after the Lyme diagnosis, Dr. J requested the biopsies that had been done to diagnose Crohn's and we sent them for testing - the results were positive by PCR for Bartonella henslae.
He had previously tested positive for Bart with antibody tests at the time of a relapse where he had swollen lymph nodes in his groin and neck.
Also, there is a pediatric GI doc in NJ who was finding a lot of Bartonella in his patients - even more than Lyme.
My son's inflammation was in the ileum and he had some level of pain - ranging from mild to intense for over five years - until about six months ago. I'm not sure what has led to the disappearance of these sx - he's still suffering from many others. One possibility is that he took a product called AMP Molecure for about 5-6 weeks prior to the resolution of GI symptoms. He was not on any abx at the time. I know that if he begins to have sx again, we will start taking this product again.
The naturopath that we are working with now said that he doesn't think this product is actually that well absorbed....but, SOMETHING changed in his system that resulted in a positive outcome....
posted
Interesting! My pain has been on my right side under the rib cage and radiates to the side and is often present.
Yesterday I had an endoscopy and it was normal. Tuesday I'm scheduled for the Hida scan. Can Bartonella present with these symptoms or is it more of a burning on and off pain with diarehha?
troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
I hate to sound like a broken record...but the fruit juice that Tutu and I talk about is well known fopr stopping inflamation of the intestinal tract.
It helps mine.
In fact, when I go off of it...I get abdominal pain again.
I am trying to figure out when I can rife with a Coil Machine in this area...I herx in the gut...alot.
Trout
------------------ Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! Iowa Lyme Disease Assoc. www.ildf.info
Posts: 5262 | From North East Iowa | Registered: Sep 2002
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WildCondor
Unregistered
posted
Thanks!
From everything I have researched, the information on the internet about Bartonella in the intestines is so limited. There is also such a small amount of information on Microscopic colitis.
I find this bizarre because so many of us are having GI symptoms. The more we can learn the better. Right now I would even try painkillers, but we have to get to the CAUSE...and knock it dead!
Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
Im glad I am not alone too!! Your right though, if you research it on the internet, you can't find much information and thats frustrating!! I wish the burning pain would stop though! I try to yeast diet and its still there. I had it go into remission for a good 3 years-nope, didn't make any changes to my diet at the time either because I gave up! Then a couple months ago it started up again.
Im looking into the Mangosteen juice supplement too-I hope it helps!
posted
If you click on the Lyme Disease Assoc. logo on the left side of this page, then go thru the info menu to "The ABC's of Lyme Disease" and click on it, a PDF of this folder will come up. It has panels written by a number of experts. The last one is by Dr. Martin Fried, with the title of Gastrointestinal Lyme.
Most of the panel deals with Lyme in the gut, but last paragraph says other coinfections have been confirmed in the GI tract.
Maybe your GI guy could consult with this doc (in NJ).
Posts: 8430 | From Not available | Registered: Oct 2000
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posted
I to have had these issues.....i had/have a tough case of bart and the drugs dont work ...cant stay on them long enough due to side effects....I rife bart all the time...most of my die off is in the gi tract..i am seeing alot of success with rife..
greg
Posts: 740 | From frederick,md,usa | Registered: Jun 2001
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Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
Lou
I must be doing something wrong because when I look up the article, its so darn tiny I cant read anything!
posted
You are asking a very low tech person but...
Did you try to print it out?
Is there a place in the toolbar to enlarge it?
OK, I just tried this. If you get the folder on the screen, you can go to the toolbar and click on any number in the box to enlarge it. I tried 200% (up from 50%) and it fills the screen (will have to scroll over to this panel).
[This message has been edited by lou (edited 14 May 2005).]
Posts: 8430 | From Not available | Registered: Oct 2000
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Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
I figured out-Im such an idiot. All you have to do is zoom in on the article-duh! Thanks. My other ? is though. My borellia stain came back negative from the endoscope my GI dr did. Now maybe I am wrong, but could he have possilbly tested in the wrong area? He just did the stain from the stomach where the gastritis was found.
Nancy
[This message has been edited by Nal (edited 14 May 2005).]
posted
Sorry, don't know the answer. Was this only looking for lyme, or for any of the coinfections as well?
For others who want to read this part of the folder and can't figure out how to do it, I have managed to copy it and am posting below:
__________________________________
Gastrointestinal Lyme
Martin D. Fried, MD
Director, Pediatric Gastroenterology and Nutrition Assistant Program Director, Department of Pediatrics Jersey Shore Medical Center, Neptune, NJ
Lyme disease has been reported in the gastrointestinal tract of children and adolescents. Pediatric gastrointestinal Lyme disease may present as abdominal pain, vomiting, diarrhea, heartburn, blood in the stool, and it may mimic Crohn's disease or colitis. Blood tests for diagnosing Lyme disease may be negative while gastrointestinal and other Lyme disease symptoms persist. The diagnosis is made clinically on the basis of symptoms and by excluding other possible etiologies.
Once treatment has begun with antibiotics, most patients reported a decrease in the frequency and severity of their abdominal pain. In addition to antibiotics, a low fat diet further alleviated some of the abdominal symptoms associated with Lyme disease. In patients who reported having a crampy, colicky, below the belly button pain, treatment also included antispasmodic and anticholinergic medications.
After treatment was completed, some residual abdominal pain may persist for a couple of months at a markedly reduced level of severity. This diminished pain usually represents the activation and persistence of the immune system to fighting the infection even long after the infection is gone.
In addition to Lyme disease, other co-infections such as Bartonella, mycoplasma, H. pylori and babesia have been confirmed to occur in the GI tract.
[This message has been edited by lou (edited 14 May 2005).]
Posts: 8430 | From Not available | Registered: Oct 2000
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Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
The test was looking for Borrelia with Worthins silver stain and PCR. Whats the PCR?
posted
The biopsies take awhile to come back, 2 weeks or so. I still dont have mine, but I am waiting and wondering if this is big bad Bart or not.
Having c.diff can set off microscopic colitis. My Gi just told me that. Now its a matter of a dairy free, gluten free diet and calming down the cramping pain.
I'm going to try Culturelle and a total blah diet, and a anti spasmotic drug called Pamisa. Hope it doesnt drug me out! This GI stuff is so nasty, I dont wish it on anyone!!!
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