I was just wondering if anyone here has a intrathecal pump (implantable, programmable drug infusion system) for their pain and if so how is it working for you?
I will be doing the trial the beginning of June, and if it works they will implant the pump about a week later, please pray the the trial goes well and specifically, it works on my headaches.
Thanks and God Bless Cindy ><>
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Posts: 906 | From San Francisco Bay | Registered: Jun 2001
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valymemom
Frequent Contributor (1K+ posts)
Member # 7076
posted
Let us know how you do, Cindy. I would like something like that for my son's (neverstop) headaches.
Good luck!
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
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posted
Smokey, As I understand it on the level of pain relief an intrathecal pump is a very smart, effective way to go that requires much less medication to achieve the same effect of other delivery methods.
Please let us know how this goes for you, I may be shopping for some such remedy myself in the future.
The message boards are outstanding, the site is run by and for patients with severe chronic pain, and they welcomed me there as a Lyme patient which as you know is not always the case.
As one person whose life has been disfigured by pain to another, all my best to you and yours,
Paul
Posts: 199 | From Santa Cruz, CA | Registered: Oct 2004
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GEDEN13
Frequent Contributor (1K+ posts)
Member # 4151
posted
i to i'm thinking about this pump.i just had a 3rd surgery on my right knee,last week.(lyme arthritis.)
i have also been dxed with r.s.d.(reflex sympathetic dystrophy).pain and burning in both my leg's and lower back is unbearable.
i use the duragesic patch along with about 100 percocet ,weekly.
the rsd is caused by nerve damage after the open synovectomy i had on my right knee,2 year's ago.(never healed).
i hope you find relief with this pump.could you keep us updated on the effect's it has on you?
posted
I had one inserted about 4 years ago for stiffnes / spasticity .Once in I could not urinate on own for weeks,had to catherize .DR. said I was a rare case. A year later I had it removed, yes I was no longer stiff but my limbs were like a wet noddle so what was the point. It left two ugly scars one in front and one in back, no more bikinis for me and the worst part was it made my lyme/ms so much worse,I could walk before the surgery with the aid of a cane and after I have never been the same I must use a walker now for it gave me severe balance problems and constant ear ringing as well as weakend me much more than previous.If I could do it over again I wouldent! sorry for the sad story, Terri
Posts: 203 | From tipp city oh.45371 | Registered: Jul 2003
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