Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
Percaridtis is an inflammation of the lining around the heart. It is believed to be caused by some sort of infection, usually of unknown origin.
My son had this at 23. It was a pretty severe case, to the point that it elevated his cardiac enzymes as if he was having a heart attack, but he was not.
Has anyone ever had this and can it be attributed to Lyme?
posted
Had pericarditis 3 years ago, viral in origin. Treated with steroids actually. Got better!
Posts: 689 | From western MA (we say buttER and pizzA) | Registered: Nov 2004
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Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
Thanks for the list Duke. What a list! I emailed it to my son and my mom.
Durameter, I've done some research now and found that up to 8% of Lymies experience percarditis. My son was told it was viral too. Maybe it was, but then they are never looking for Lyme under those circumstances.
posted
How do you know if you have this inflammation or not? I have so many heart symptoms..does this show up on an EKG?
Posts: 146 | From Midwest | Registered: Feb 2005
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Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
For my son, it started out, he felt like he couldn't breath or get enough air. He was constantly taking these deep breaths. Then the thing that was really the clincher is he couldn't lie down, because it was to hard to breath. Heart was beating fine, but the sack around it was swelled with inflammation. Then it rubs against the heart and causes some reaction which makes it "feel" like you can't breath. His oxygen levels were normal though.
He was most comfortable sitting up, leaning forward slightly. Anti inflammatories did work. But it took several rounds of steroids to finally reduce the inflammation enough that it didn't bother him.
posted
Diagnosed with an echocardiogram (and/or, doc can hear the rub). They can see the inflammation with the echo. Additionally, as JB says, there is a classic symptom such that the pain is somewhat relieved by sitting up (and usually leaning forward). This and the echo or rub, it's pericarditis.
[This message has been edited by duramater (edited 17 May 2005).]
Posts: 689 | From western MA (we say buttER and pizzA) | Registered: Nov 2004
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This was one of my son Dominic's first symptoms. Dominic would complain it felt like his dad was squeezing him in a big tight hug. He could only take small shallow breaths. He would also turn very pale and had to sleep on 3 pillows most of the time.
Once he was dx. with lyme Dr. C started him on Clindyminic and quinie and Amoxil 10 day rotation. Dr. C requested he see a cardio. and they did the echo which confirmed the Percarditis.
The best thing was within 2 months of treatment Dominic's symptoms were almost gone. A year later at his follow up visit the echo was perfect. He hasn't had any symptoms of this again.
Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
Lymetoo,
It took about 2 weeks to get a diagnosis for my son. At first it was attributed to anxiety with the way he would take these deep breaths. Doctors felt he was holding his breath.
As it progressively got worse and he couldn't sleep lieing down and eventually realized he could relieve it by leaning forward, that is when a doctor realized what it was. He began treatment with anti-inflammatories which didn't work and he ended up in the ER where they did more extensive tests, like the cardiac enzymes.
I guess that isn't a real common symptom, but a cardiologist said if the rub was bad enough it could irritate the heart and cause it to produce those enzymes that you would normally see in a heart attack, Considering his age and EKG, they trully didn't believe it to be a heart attack.
Even in the ER with the elevated cardiac enzymes run twice, one ER doc still refused to believe it was pericariditis. He was such a jerk. Not a cardiologist, just and jerky ER doctor.
It was very stubborn and took weeks to run it's course, and was only relieved with large amounts of steroids. Great huh?
posted
I had pericarditis 3 weeks ago. I felt a lot of pressure when I was lying down. I also felt like I needed to cough and like I had shortness of breath. Also very low exercise tolerance. The Echo is looking for effusion or fluid buildup around the heart. Usually the rub of pericarditis can be heard by the doc. After going on abx for Lyme, the Sx resolved. The llmd said it is not common but it can be related to Lyme.
Posts: 11 | From North Carolina | Registered: Mar 2005
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posted
My daughter had pericarditis last year (she was 17)...she was in terrible shape - we thought she was having a heart attack.
She had decided - without Mom's knowledge - that she was sick of taking her abx...
She had ended up with pericarditis! We were told that since she already has heart issues from lyme, most likely. When she decided to stop taking her abx - the lyme had a "hay day" with the lining of her heart.
It was a horrible lesson - but now she takes her meds.
Posts: 416 | From Southeastern PA | Registered: Sep 2003
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