i had asked my gp to request,that the orthopedist do a tissue biopsy for lyme .ortho did.biopsy came back positive for lyme.

i am looking for someone who had the same procedure done.by that i mean,a positive tissue biopsy for lyme.

if you know of someone who has had this experience,or you yourself has had a lyme biopsy,could you please contact me? i need to know ,what lay's ahead.

i need help ,finding info pretaining to my situation.a knee replacement is in my near future.or should i treat the lyme first?..thankyou up front , gary

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You might continue to have problems unless you effectively treat the Lyme and co-infections and detox your body from everything that should not be there in the first place.

That's our experience and my opinion. I have also heard this scenario not only once from my doctor, but a thousand times.

I felt like saying this when you posted about your upcoming surgery a few weeks ago, if I remember correctly. But refrained.

Take care.

quote:

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Originally posted by GEDEN13:

if you know of someone who has had this experience,or you yourself has had a lyme biopsy,could you please contact me? i need to know ,what lay's ahead.

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What do you mean about "what lays ahead?" I thought you were being treated for Lyme??

Definitely get some Lyme treatment before undergoing more surgery!!! I am not a dr, but Lyme treatment certainly can't hurt your situation and will more than likely HELP.

and please don't presume anything.you are not in my shoe's.

i am looking for someone with what i described in my first letter.

and i am not going to explain all of my situation to you.(lymetutu and gigi).

gary

I had a skin biopsy of a rash. I had a tough case, but I do not know if was tougher than those who didn't have the rash. Is that what you are asking?

After the positive biopsy I was put on IV rocephin for three weeks. I relapsed within a year, and have had a couple of relapses since.

Out of curiosity did they also check the synovial fluid, or just the tissue?

Youch.

I have had three orthroscopies and one
AC Ligament repair.

This was years before I became symtomatic, though. LL Docs believe, to the best of their knowledge, that I did not have Lyme then..
I had a ski accident that kicked off the first injury.

However..can never be sure with this illness..
so last year I sent my tissue to a researcher (the hospital had saved it all these years, so I retrieved it to check now)..
but the researcher went to Iraq before he could get back to me.

Sooooo..I have no idea if I can help with what you are asking..
except that I know the pain and rehabilitation of major knee surgery.

And I know Lyme..

I know before I was treated for some time, I couldn't have handled surgery very well.

My son has an appendectomy in November after he had been treated a long time, and it set him back pretty far.

I would lean toward beginning treatment for Lyme first..
but I think it depends also on how much pain you will be in waiting for the knee replacement, and how sick you are with Lyme..
tho -- the trauma of surgery usually makes Lyme worse..so I would think you would want to treat before and through.

Hope this helps a little, so sorry about that knee.

Mo

To increase chances of getting someone with a similar case situation, I suggest posting this on many boards.

So glad you finally got your tissue report back. Maybe all your Docs will try to really hit the Lyme hard or at least the Ortho will take it seriously. It would seem some Docs (surgeons) are more impressed with a tissue biopsy than a WB test.

Well, actually I haven't read very many posts about positive tissue biopsies with LD. At least it was done properly & the LD showed up. That's something!

Hope the pain is getting better?? You've really been through a lot of hard pain for so long. I don't know anything about knees, but I do know suffering with pain.

Keep us posted on how you're doing. We're all rooting for you.

At least this will send it to the top for the weekend knee experts. I'm sure the answers will come & things will come together for you.

Take Care,
Jan

i am dealing with the pain on both front's.the rsd and lyme arthritis.

surgery will make the rsd worse.which mean's the pain will increase.but the damage already done to my knee ,by lyme is also extremely painful.

will abx have an effect on the rsd? will pain worsen? i have searched the internet the best of my abilities,and found nothing in my unique situation.

and i do know what i am talking about.abx is not a cure-all for me.which i knew,i would be told here, by a few.

and i have no synovial fluid.why? i have no synovial lining.that was removed by ,open syovectomy.

doctors i deal with,are knowledgeable about lyme.i don't expect an orthopedist to be a llmd.yes i am taking abx.

i hope this answered most of your question's.

also,abx will not save my knee.the damage is done.it can NOT be reversed by abx.abx does not grow bone material,or muscule and tendon. ,gary

I'm the one who asked about the synovial fluid, I was just wondering if keets were detected in it. I feel for you having no synovial fluid, bone rubbing on bone must be excruciating.

You are the only person other than myself who I know of here on lymenet who has had a positive biopsy.

I do not know what RSD is but was wondering why surgery would make it worse? Isn't the object of surgery to relieve pain. Could you educate me on this?

I do understand your concern, I had a non lyme related elective surgery and do believe it led to a full blown relapse.

I had lyme arthritis in my pelvis and it was more painful than childbirth and I had it for months. I do feel for you.

Take care

HBO can also suppress lyme, and HBO treatment will speed healing after surgery.

Therefore if you can possibly get it, maybe you can get it covered, you might try it. I know it is covered for resistant osteomyletis, and if you had a positive lyme biopsy of the knee joint, then it seems to me your docs could make a case for it as you have an infection of the bone. (It is NOT covered for RSD).

my synovial lining was already in shred's,when the orthopedist tried to retrieve synovial fluid.so there never was any,at that time.was to late.that was 4 year's ago. ,gary