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» LymeNet Flash » Questions and Discussion » Medical Questions » Multitude of theoritial personal questions

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Author Topic: Multitude of theoritial personal questions
Ruffy
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I had an attack very much similiar to what I have going on now back in college, although I don't know if I ever felt quite the same mentally as I did back then. This was 12 years ago. I remember the rash. I thought it was a deoderant reaction and when I had my roomate rush me to the ER because of dizziness and massive headaches in New London, CT, they had no clue. It's amazing how inept the medical community is regarding this.

Is it possible, with treatment now, that I could go on to feeling better than I have since college? Or are the effects of Lyme permanent?

I've had three attacks like this, unbelievably debilitating, the last two I just naturally fought back from, who knows what % better I got, but I got back to living functionally. The only correlation that I have is that all three came in times of my life of heavy binge drinking. One in college, one in my early twenties, and then this past year when I was at ample weddings, bachelor parties, graduation parties, etc. Does this germ sit and fester and just wait for an opportunity to lash out?

I've been on antibiotics for 3 months now, Doxy, Tetra, and now Mino/Levaquin and am just praying to God something good comes out of this. I was just married and just hope to God I can bounce back fast enough to get back in gear for my beautiful wife. I've read about people on here that have been on abx for years. I understand all the theories. The way I see Lyme is this. I think your body has a very fine balance. 55/45 immune system to Lyme. No one will ever rid themselves of the spirochete. Impossible it seems. It seems like you have to simply smush it to a point where your body can keep it down. So the secret formula seems knock Lyme down as much as possible with abx when needed, stay health/solid immune system = symptom free. Correct?

This whole episode/experience have been beyond bizarre.


Posts: 70 | From Fairfield, CT 06825 | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
lou
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The previous poster is an advocate of rife machines, an alternative treatment (one of many).

I have been doing some reading about syphilis and think you may be right on the immune system business. Have heard lyme docs suggest that remission or symptom-free is the goal with treatment, rather than Cure. Don't know how you could ever prove the spiros were completely gone. I talked to someone who was treated fairly early with two weeks of IV and said that every year since then his symptoms came back briefly, then disappeared again. Every year this episode was shorter and milder. And he used nothing to treat these except OTC stuff like tylenol. His opinion was that all cases resolve eventually. I would be more cautious than this because he is extrapolating from one case to all others. Most of the people here are late catches, so the bug may be good and dug in at this point. Plus, this guy was treated more aggressively than most early cases. Don't think any co-infections were involved in his case either.

It might be dangerous to assume that after some treatment, subsequent symptoms will be handled by the immune system. They might not be. It is a real mess to try to figure out what is permanent damage and what is on-going active infection. Both could be in play at the same time. Trauma and stress can also bring the chetes out of hiding. Maybe drinking would fall in that category. Presuming that these are immune suppressors.

You did not mention whether any co-infections are involved in your case.


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Ruffy
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My situation is VERY odd relative to most. Sophomore in college, all of a sudden, TREMENDOUS headaches, bizarre back spasming, difficulty concentrating. I toughed it out naturally. I was a sophomore in college, so the partying was hard. It did not go away easy.

Second acute attack 6 years later, same type, but worse. I was about 25 at the time. Again, in a bit of a partying stage. Toughed that out yet again with no clue what was going on.

This third time was unbelievable and included EVERYTHING. Gastro, vision, you name it. I have a positive Western Blot and have been tested positive for Bartonella, which I am being treated with right now. My biggest concern is easily the cognitive and mental clarity. I would give up anything for that. This last bout was again about 6 years from the previous. Either something hormonally changes in my body that allows this to flare enormously every 6-7 years or it is something I'm doing. Prior to this last attack, I ran a half marathon in my best time. I was in fantastic shape. I'm not sure if I've been reinfected each of these occasions or it's the old version just blowing out of control. I do chase my ball quite a bit in the woods of golf courses and was laying in a field and hiking a couple weekends before this. Prior to this last attack, I don't think I had as much as a cold in 4 years.

I live in CT which is the heartland for this stuff. It seems like everyone has had it or knows someone that does here. It kicks some people in the rear, but most people seem to tolerate it fairly well. It is totally consensus that you never rid yourself of this stuff and that I understand that. I just don't understand how this allows me to live fine, then just wallops me in such acute attacks. Is it hormonal, reinfection, a suppressed immune system? 3 months ago, I would have rather been dead.


Posts: 70 | From Fairfield, CT 06825 | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
lou
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Did you read this one?
http://flash.lymenet.org/ubb/Forum3/HTML/012670.html

Posts: 8430 | From Not available | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
Cap
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The bugs most of us pick up during life like HH6, Candida, Lyme, chicken pox virus (varicella-zoster virus) and other bacteria never really gets cured anyway, everything basically goes into remission.

Which Lyme is nothing new to this. When your immune system takes a dive where Lyme takes over, it's like a who came first, the chicken or the egg. But one thing is for sure, once Lyme takes over, it will wear down the immune system to let other bugs take over.


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groovy2
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Hi Ruff
To be honest with you-- threw may 2
years of coming to this site--
and other research I have done-
the future dose not look bright-
at the moment. I figured out what
was wrong with me -late in the game.
It is the same with most of the
people here. Sounds like you too.
My new LLMD that I have been wating
3 months to see--cancled my appointment
today-- out sick-- doc is supposed
to have Lyme too.--Not a good sign.
--34 days till next appointment--
-They must be busy--There are some
people here that say --they are
90%-- It could be that people
that get well --and get a life--
and do not come back and tell
the others here of there good
health-- but I tend to think
people who have gotten over
this would --Spread the Word-
to others in this-
-Wacky World of the internet.
I have been being treated for
2 years-- and I have gotten
much better--sometimes--
The game is not over but-
I(we) are many -points behind-

Your story is very familure here-
Change the age a little and you
match me. --
The info on this site is--
-State of the Art-
You get info from all over the
country and world by people
who have spent thousands of hours
Looking for the answer--Jay--



Posts: 2999 | From Austin tx USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
   

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