posted
Anyone else out there that thinks their Lyme may have casued their endo?
I never had ANY problems with my periods or pain or anything. A few years after relpasing Lyme and I was having horrible gastro problems that took me years to sort through. Turns out it was Endometriosis that had caused adhesions to form in my abdomen and pull my intestines out of place, kink them and even strangle them at points. Some of the tummy pain may also have to do with lyme I guess, but I had immediate relief from tummy symptoms after endo laporascopy.
No history of endo in my family. (4 other sisters) Rupturing hemoragic cysts (ouch) in my ovaries were the only other symptom. Never irregular bleeding, and even had one pregnancy with out even trying.
Also anyone else taking birth control to maintain hormone levels for endo? I am having BAD endo symptoms NOW and think the pill isnt doing its job with all the ABX I am on.
Stories, experiences, advice welcome.
Trails
Posts: 196 | From Mesilla, NM USA | Registered: May 2005
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Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
Perhaps you have an independent problem.
Posts: 1538 | From Planet Earth | Registered: Jan 2005
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posted
i was diagnosed with endo in 1993 and have had 2 surgeries. my lyme was just diagnosed a month ago. i'm not sure what the connection is... but my doctor does think the lyme makes the endo worse. (and i've likely had the lyme for many many years) it's all so complicated, but immune dysfunction is involved in both so i do think there is some association. unfortunately, endo is another awful disease in which many docs are clueless and useless; patients have to proactively seek out good information. sounds familiar, huh? -s.
quote:Originally posted by Areneli: Perhaps you have an independent problem.
Posts: 22 | From Bay Area, CA | Registered: May 2005
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posted
Immune problems. That is what I SHOULD have said in my post. Sorry. I think the endo is due the lyme because of how the Lyme affects the Immune system and endo is caused by immune problems. Thanks for reminding me earthgirl.
I am sorry for your long illnesses. Maybe others will post here too and we can see if anyone else has a connection.
Trails
Posts: 196 | From Mesilla, NM USA | Registered: May 2005
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posted
I had surgery for endometriosis when I was 25. (I had lyme then, and didn't know it.)
My daughter also has endometriosis (she's 18) - she has congenital lyme.
Posts: 416 | From Southeastern PA | Registered: Sep 2003
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Sus
Unregistered
posted
I firmly believe there's a connection between Lyme and endo. I've had endo for years, and tried everything - but just found out recently that I've likely had Lyme, well, basically forever. Definitely think there's a link.
Are you taking your BC pills continuously, or taking the inactive pills at the end of every pack? If not, sometimes skipping the inactive pills can help for awhile - check with your doc.
Also, experimenting with different types of pills can help, too. For me, the lowest dose of estrogen possible always seems best. Actually, my current pill may be a no estrogen pill, I can't remember (it's lost in the fog!)... I've had good results with Micronor - but my doc reminds me periodically that it MUST be taken at the same time each day (says there's a 2 hour window on that particular pill, and I can vouch for that!). (sidenote, though: I've had a hyst, so the BC pills are to suppress my ovaries, which I kept, so this might alter the results slightly, since I'm guessing you haven't gone down that road)
I'm so sorry you have to go through endo, too... I lived in NM when I was diagnosed, and I think I visited every gyn in ABQ trying to find answers! Finally figured out that the only way to find some relief would be to become a walking endo encyclopedia - maybe that will work for you, too - learn all you can, ask questions, and try anything you think might help. Good luck!
posted
One of the things I immediately noticed when I hit the board was the endometriosis connection -- there was a really long post about it in my first search which I dipped into since I have endo. Since they are both immune related and both often overlooked by the medical community, I wouldn't be supprised if years down the line it turns out that people with endo are more suseptible to lyme and vice versa (although currently I have my fingers crossed for not) . I'd be less certain in it abruptly causing endo, but that seems to be your experience. If anybody's a millionaire microbiologist and would like to spend a few decades looking into this, please pony up. Posts: 8 | From Pasadena, California, USA | Registered: May 2005
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posted
There was a lengthy discussion on this several weeks ago. It would probably be worth your effort to go to the bottom of this page and click on the number "2", then "3" etc until you find it.
You may want to begin on about page 10, then work your way up......if you don't find it, go back to page 4 or so.
And try the search function too. Maybe you'll get lucky!
I had endometriosis which I believe was due to lyme. Had surgery 15 yrs ago.
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