The past two years I've been treated for LD and it's been real hard to say the least.

My biggest complaints are the ever present fatigue and the spaced out detachment from my mind and body that comes over me. It happens nearly every night; usually around 5:30-6:30 PM. Does anyone else experience this? It's almost like clockwork and it's really rough. I have so much difficulty focusing and being "there" for my wife and kids.

All that being said, I am rather fortunate. I play basketball 4-5 days per week with my high school students. I lift weights and do other exercises 3-4 times per week. I'm not entirely different, but different enough. My wife complains about my irritiability and my disconnectedness.

If I had to rate my self in comparison to what I used to always know as "normal", I will say that I vary from 5-8 on a scale of 1-10. With 10 being "normal".

I work full time and maintain a responsible job. I still hike on occasion (but not 4 days a week like in past). I still do a vigoruous yoga workout about once a week.

I definitely have had periods (lasting for months at a time) of brain fogginess and feeling disconnected from the world around me. There was a chunk of time when I would become "vacant" as in physically present but nobody home by 7pm every night. Blessedly this passed after 5 months. It returns in smaller chunks now. Sometimes it happens during the day.

Keep at your treatment. I've been under treatment for 2and a half years. I'm better than I was. But I still have horrifically bad times. I take hope from the progress that has been made. But I can only see that by taking a long look back. If I look back only a few months it seems like nothings changed.

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Originally posted by pomegranite:
I think that I am also more fortunate than many...but also go through periods of intense suffering.

I work full time and maintain a responsible job. I still hike on occasion (but not 4 days a week like in past). I still do a vigoruous yoga workout about once a week.

I definitely have had periods (lasting for months at a time) of brain fogginess and feeling disconnected from the world around me. There was a chunk of time when I would become "vacant" as in physically present but nobody home by 7pm every night. Blessedly this passed after 5 months. It returns in smaller chunks now. Sometimes it happens during the day.

Keep at your treatment. I've been under treatment for 2and a half years. I'm better than I was. But I still have horrifically bad times. I take hope from the progress that has been made. But I can only see that by taking a long look back. If I look back only a few months it seems like nothings changed.

Be persistent! Hang with it. Trust that it will improve.
Pomegranite

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Does this level of CoQ10 end up costing you a lot?? I imagine that it would.

Thanks,

Sam

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Originally posted by johnlyme1:
My LLMD had me do a whole Metametrix test on my whole system - Many things came up - But one that relates directly to energy leve was COQ 10 - my levels were so very low. My Dr has me on 600mg per day - this is 10 times the normal - this improved things a lot - But make sure you discus with you LLMD befor taking any.

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I need to move very slow and gentle and watch what I eat otherwise I start to regress.

Before treatment, I was at 0-1/2, couldn't even stretch. Today, I do gently yoga everyday.

Ibuprofen has now become by best friend and I don't leave home without it. Although there have been a few days that that doesn't even work.

I couldn't even imagine playing basketball or even jogging at this point. My life involves getting up and making it through a day until I can get back to bed.

By the way, I'm not sure how long I've had Lyme. About 2 years ago I was hospitalized with Menegitis and nearly died. The world famous medical institution I was at, told me that it was the wrong time of the year for Lyme. They tried treating me with all sorts of masking type drugs like Amiltryptilan. Finally 5 months ago my wife convinced me to see a LLMD. I think I've been on a course to recovery ever since then.

The past two years have seen HUGE progress. I have been on abx continully and had mepron for babs.

I lead a pretty active and full life. My days are still short, I say NO to most evening activities and don't always feel well, but looking around at "normal" people I'm in much better shape and don't have heart disease or high blood pressure.

Everyone out there, DO pamper yourself with good care, nutrition and rest. You aren't any good to your family sick.

Have a great week-end. Going sailing-

Estimate I've been infected at least 17 years and over that span of time my symptoms have run the gamut.

My right leg usually feels as if it weighs 300 lbs., my right knee hurts almost all the time, and I have no ability to balance myself.

I'm also on the way back -- I'm definitely not working from such a deficit though.

You'll see from this site that there are between 40-50+ posts/replies here daily.

So to help us all, please be as specific as possible for the TOPIC line, which you did Sam. You will get many more replies as we try to help you, help us out.

Also, you can EDIT your text anytime. You can NOT edit a subject line so that's why it's important to get it specific the 1st time since we all have limited time here..ok.

You can just reply back to others; you don't need to quote them. Just use the boxes on top/bottom to REPLY TO POST.

If you do use the quote box, please be sure to remove the BOLD [B] at the beginning and ending of the quote. The bold is really hard on us late-stage lymies whose vision is so supersensitive.

Also, please try to limit paragraphs to 6-8 lines of text only and double space between paragraphs...again helping the many late-stage lymies on board. Thanks so much for your helping us, help you.... You'll learn a lot here by all!

Welcome Sam to our lyme world.

I was misdx for 34 yrs. until 7-04; worked until 6.5 yrs. ago. Was the biggest user of sick leave all those yrs. of continuous working.

Yes, I experience what you do. Been on abx since 8-04; no change; actually on 11 rx daily. Last year brought these dx for me:

diabetes 2 in Jan; late-stage lyme in July; and Dec.'s sleep apnea/restless leg syndrome.

So it's been a very trying 1.5 yrs. trying to adjust to so many things wrong with me.

You are fortunate you can still do physical things: BB, etc.

I loved walking; can't even walk 1 block without huffing & puffing & my aching heel spurs! ouch!

I have 5 frozen ice packs on me at all times and switch them every hour to numb my constant pain in neck;shoulder, lower back, and my entire left thigh/SCIATIC nerve which has so many knots in....ouch.

I'm allergic to smells so can't use warm water exercises or spa! That's where my rashes started that went over my entire body.

Need to exercise to help my diabetis; very painful just doing stretching exercises.

If you get to the point you feel you no longer can work and thinking of applying for SS disability insurance benefits, post that here.....lots of info here from me, others, and be sure to go to TREEPATROL & TINCUP'S combo NEWBIE links where disability is specifically mentioned...ok!

I consider my self lucky because there were many periods of time were I really couldnt walk or brush my hair.