posted
I have been sick for 10+ years and now spend most of my time in bed. I have been active all my life mountain climbing and cycling, fishing, hunting, camping etc...
I am now in TX but have been living in WY, CO, AZ, NV, all in mountain towns.
I am sick with almost all of the check list symptoms and now find my NK cells are 4.20 cortisol free is 3.7, DHEA is 51.
I have small Q-waves, left axis deviation and left anterior hemiblock. Possible R. ventricular hypertrophy.
I have been diagnosed with FMS/CFIDS, anxiety, depression for over 10 yeras now. Asked my doctor to perform this test and these are the results.
Please. Would anyone want to take a look at them and explain what the heck I do now. lol
I have an appointment w Dr. SG in Dallas but I am quickly reconsidering the choice. Dr. in Bedford is not taking new patients now.
Thank you for any help and knowledge on the tests. Foggedup -------------------------------------- IGeneX, INC Palo Alto, CA (Test was done in CA not SLC, UT.)
Lyme IGG Western Blot Negative
18 kDa - 22 kDa - **23-25 kDa - 28 kDa - 30 kDa ++ **31 kDa IND **34 kDa - 37 kDa - **39 kDa IND **41 kDa + 45 kDa + 58 kDa - 66 kDa IND 73 kDa - 83 kDa - **93 kDa IND ---------------------------------------- ----------------------------------------- IgM Western Blot Negative
18 kDa IND 22 kDa - **23-25 kDa + 30 kDa + ** 31 kDa - **34 kDa IND 37 kDa - **39 kDa IND **41 kDa IND 45 kDa + 58 kDa IND 66 kDa + 73 kDa - 83 kDa - 93 kDa- ----------------------------------------end.
MammaLyme
Frequent Contributor (1K+ posts)
Member # 1257
posted
Go to Bowen.org and to lyme research. you pay $250 as a donation and get colored pictures of what is in your blood including HME, HGE and babesia. These are coinfections that they test.
Best test around and you get your results within 24 hours without taking any meds after they receive your blood. This test saved my life. I also passed it on to my husband as it is a spirokete.
dontlikeliver
Frequent Contributor (1K+ posts)
Member # 4749
posted
Hi foggedup,
A good point, which I forgot to mention to you previously, was that with treatment negative tests can become positive, or 'more positive'. I don't entirely understand why this happens, but it does.
Personally, I don't think you need to spend more money on more testing at the moment, but I think that you would be wise to at least have an appointment with an LLMD, try treatment (for Lyme) and see what your reaction is to such treatment, which might be your best sign either way./
DLL
Posts: 2824 | From The Back of Beyond | Registered: Oct 2003
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janet thomas
Frequent Contributor (1K+ posts)
Member # 7122
posted
Cortisol levels ar highest in the morning and lowest in the evening. Best is to measure 3-4 times throughout the day. What time of the day was the blood drawn and what is the lab's normal?
posted
Dear Foggedup, If you have been sick for ten years it is a miracle that anything has shown up. The disease buries itself in your body and over the years becomes more and more successful in erasing the immune system and immune responses.
So here is ignorance speaking his two cents of commentary:
You have a positive IGG 41 kDa., this means that at some point in time you have had and may still have a spirochete infection of some sort. The band 41 is common to all spirochete infections. The interesting thing is that in both tests you have a positive 30 kDa. This is more or less closely related to 31 and is an immune response to one of the outer surface proteins in borrelia, I forget which. Further you have an IGM 23-25 band positive, which again shows the presence of an outer surface protein.
The crucial point is that in both tests band 39 kDa was indeterminate. This means that it is certainly suspicious. Band 39 is an antibody/antigen complex that is absolutely unique to lyme disease. In my view, if you have that you have lyme disease and that is that. If you were negative for lyme disease then why are all those bands and numbers sticking out like so many sore thumbs?
Given the symptoms which you have expressed, their severity and duration and the fact that there are all those interesting positive and indeterminate bands, I would certainly say that there is a very good chance that you have lyme disease and there may be co-infections as well. You need to get yourself into the hands of the most competent lyme literate doctor you can find and they are rare as hen's teeth.
I had negative tests almost 18 months, even on massive antibiotics-so what has happened to you, given the nature of the disease, is not that strange or out of the ordinary. Truth to tell the testing is next to useless much if not most of the time. All it can do, as it has done in your case, is give indications or hints.
I certainly hope you put yourself into the hands of a capable doctor who can provide you with the care you so greatly need. I hope that soon all the awful suffering and the emotional burden of it can be begin to be lifted from you. With Best Wishes, Thomas Parkman
Posts: 341 | From Columbia SC 29206 | Registered: Feb 2003
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As a retired airline employee, I still have flight benefits.(I am 46 now, I got to retire early because of the time I put in)...nice...
It would be hard for me physically to travel, but I will do what I need to do. I have not heard great things about this Doc SG that I have an appointment.
Some members have emailed me with suggestions and I will be researching those docs.
Thank you all. I will be here for awhile reading and studing. So much to learn from you guys. Foggedup
I have an appointment with this same doctor that you have mentioned coming up in two weeks. Would you care to e-mail me about any information you might have. I also tried to no avail to get in with the doctor in Bedford.
Posts: 4 | From Dallas, TX, USA | Registered: May 2005
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