The tops of my feet feel like they are being ripped off, feels like the muscles and nerves are angry. I also have new constant pain in my wrists and arms.

While I know that we all get weird symptoms, my LLMD suggested the foot pain could be RSD, and this is really freaking me out. I read up on it, especially about the suicide rate due to unrelenting pain.

Anyone know about RSD and Lyme? My research shows it's caused usually by an injury, but infection could also cause it and there's no cure.

I am starting acupuncture this week, am at my wit's end, haven't left the house in days because I can't walk with the pain.

Can someone help? Even to know that this is Lyme and not RSD would help.

Have you sustained a head/neck/or back injury lately (thinking about damaged nerves sending wrong signals)?

And from what I've read on RSD (which was a long time ago, so I could be off on this one), isn't is usually more confined to one body part, rather than two or more?

RSD doesn't seem to have a known etiology, from what I've read, and is described as a CNS disorder, which LD/Co can definitely cause.

Here are some other posts about RSD -- hope this helps.
http://flash.lymenet.org/ubb/Forum1/HTML/001575.html
http://flash.lymenet.org/ubb/Forum1/HTML/014046.html

PUB MED

My pain was in right shoulder and arm and hand. Could be EXTREME at times. Would take valium and others meds and drink alcohol to dull it until I almost died by accident one night. So I DONT recommend THAT.

But the pain suddenly WENT AWAY right before I started treatment for babs. How bizarre, eh? You'd think I was a hypocondriac (and some docs still do)for SURE. THat pain was all I could talk about and deal with this past winter and then one day POOOOF it was gone.

Now I get some minor pains there, but nothing like this winter. Personal opinion: I think it was combo of swimming and biking injury, steroid shot that made lyme come back, and just plain relapse due to over excercising.

Did you have any steroid shots?

I would recommend a central nervous system depressant like valium, but NOT in combo with other drugs or alcohol! NSAIDS did nothing as also pain releivers. Eventually ELavil in low dose helped with the nerve pain.

Hang in there, this MAY not be RSD. Lyme can get so awful and painful and then go away. I guess you have to hope for that while you continue to research. Took almost 5 months for my pain to decide to take a hike.

quote:

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Originally posted by lhm312:Anyone know about RSD and Lyme? My research shows it's caused usually by an injury, but infection could also cause it and there's no cure.

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Just so you know.. the pain CAN go away and you can be fine.

I went through it.. VERY bad.. for years. Once properly treated.. it went away and/or was reduced greatly. It is starting to return.... as I am not treating now.. and I am wondering if Maddog hasn't hit the nail on the head.

I am wondering if Babesiosis is the problem?

I had it MANY years.. day after day. I was FINALLY diagnosed with Babesiosis and I think it was then it started fading.

Now that I have other big time Babesiosis symptoms returning.. this has also.

Soooooo.. if you haven't treated for Babesiosis.. even if tests are negative you could still have babs... you may want to consider it.

Maddog.. I do hope you are doing better now??

And.. herxing makes this symptom MUCH worse.

Just so you know.

only i didn't know it at the time.my new ortho sez it could be nerve damage.

i do have lyme. there is a differance in the pain.rsd is in my thigh's.burning is unbearable at time's.

i don't even wear long pant's cause of the rubbibg against my skin.

i am on all kind of pain killer's.i am trying to switch over to neurontin now.it will take me a while ,to wean off the pain killer's on to the proper dosage of neurontin.

if you need some more info on rsd ,email me. i don't know how to post info on lymenet..lyme brain

The real question is what can be done about it at the root cause and not just mask the symptoms.

Don't get me wrong, I'm all for alleviating symptoms as long as they don't do more damage in the long run.

Aside from the more obvious like chiropractor, accupuncture, massage etc, there are folks who treat with infrared light. This has helped me tremendously.

I just wanted to share that I had my first acupuncture treatment yesterday for the pain. It was the first afternoon in over a month that I was almost pain free.

Of course the pain is back again today, but I am going to try a course of acupuncture 2/week for a while and see what happens.

I told her she was my last resort before a pain management specialist, gave her the challenge.

I will also explore the other alternatives suggested here, that's why I love you all for being so kind.

I saw the acupuncturist yesterday and was out of pain for a few hours. Today, the pain in my feet is back, and I have a new symptom, burning on the soles of my feet.

I don't have the skin sensitivity that RSD people have, so I am still wondering if it's a Lyme flareup or RSD.

What kind of a dr. would I see to rule out RSD? I read lots of websites (thanks Gary) and couldn't seem to get that info.

I am still thrown by the fact that I haven't had any injury that could cause it, and want to continue to be in denial.

I don't know how much longer I can handle this pain in both feet, and now the intolerable burning. It burns when I walk, it burns when I don't walk.