LymeNet Flash: Does anyone have/had this feeling?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Does anyone have/had this feeling?

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Topic: Does anyone have/had this feeling?

Ruffy
Member
Member # 7146

posted

A sensation in the very back of your head where it either feels like the back of your brain is raw or that it's not allowing blood or spinal fluid to pass through there correctly. All in the skull where the neck meets the head. Almost like someone clocked me back there with a club and it just leaves you in a constantly state of fog. There's like a constant pressure there that almost feels empty. It throws your equilibrium off, your balance, your clarity of thought. Man, easily my worst symptom. I can't quite understand what is going on there. It goes hand in hand with a very stiff neck. Hoping the SPECT will show something. Absolute torture.

Posts: 70 | From Fairfield, CT 06825 | Registered: Apr 2005 | IP: Logged |

Michelle M
Frequent Contributor (1K+ posts)
Member # 7200

posted

Yup. Welcome to Lesions R Us! For me, my whole head radiates pain but it's more frontal. When it gets really bad, and I mean REALLY REALLY bad, I will take a Relpax or an Imitrex. It is a vasodilator; opens up blood supply and kind of makes up for the compromised blood supply in my brain. Helps enormously and enables me to speak in sentences again, more or less. Have to use them VERY judiciously and they're not particularly good for you and NOT for people with any heart problems but a lifesaver for people with bad head pain.

Hope your SPECT scan shows something definitive that will give them something to target - ABX can hopefully clear and reverse much if not most of this brain stuff! Hang in!

Michelle

Posts: 3193 | From Northern California | Registered: Apr 2005 | IP: Logged |

Ruffy
Member
Member # 7146

posted

I'm on minocycline and ceftin now, both of which apparently have some good brain penetration. The stuff from the neck down I can deal with. It's the stuff from the neck up that is absolutely tormenting. My sensation is all where the neck meets the skull. I feel like the tension in that area is prohibiting flow for the entire rest of my head. It's uncanny how this stuff finds the places in your body that are most unbearable.

Have you found which abx has worked best for you to clear this up? I'm on the fence now with IV Rocephin. You hear both sides of the story. Rocephin IV = more trouble than it's worth, relapse, etc. Orals = slow and steady improvement.

I reiterate, I'm hoping the SPECT shows something that can illustrate what is going on. I would HAVE to imagine it would.

Posts: 70 | From Fairfield, CT 06825 | Registered: Apr 2005 | IP: Logged |

duke77
LymeNet Contributor
Member # 5051

posted

I get that feeling as well, also a pain on the very top middle of my head. Tell me about lightheadness balance issues, dizziness, and motion sickness. About a year ago I couldn't even ride in the passenger seat without getting very dizzy and nauseated. After much treatment I am better but I still can't spin in a circle without loss of balance and motion sickness.

Michelle, not even sure if it is lesions causing this. I have had numerous MRI's and Spect scans nothing ever there.

Posts: 649 | From United States | Registered: Dec 2003 | IP: Logged |

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