IMPRESSION: Mottle alternating areas of diminished and increased activity in the parietal lobes consistent with encephalopaty such as Lyme Disease.

Went to a neurologist at Columbia who suggested I retake after treatment. I was thrilled to find out that it wasn't me and there was a reason for this, but am scared because I'm on treatment for so long and feel the same. (with the Grace of God, had a month and a half reprieve). Treatment is a long road, but everyones different and yours could be fast. What symptoms did you have? How long are you on treatment or did you start orals already?

I'm glad for you - now go get you picc line and IV's started.

God bless -
Cigi

I had just about EVERY symptom you can name outside of maybe major arthritis. Neurologically, everything. I though I was dying. If I can come out of this feeling good, I'll give myself a royal slap on the back because this hit me so acutely and so hard and so quick, I didn't know what was going on. It was the closest thing to hell on earth that I could imagine. I've said all along, I sometimes wonder if I would rather have 50/50 terminal cancer than what I just went through. There is absolutely no way to develop willpower because this thing strips you of your mind. You can't reason with it. I thought I was going crazy and I have always thought of myself as very level headed emotionally.

I had my SPECT done in Stamford through an ID doc. The doctor is actually closely affiliated with Columbia, I believe she's a dean down there. I'm glad I went to her, despite the stigma attached to ID docs on this board. I'm also seeing a top flight LLMD here, Dr. P in Wilton. And now I'm seeing a LL Neuro next week. I'm covering all bases here. What she does now with these results is yet to be determined. She did say if they came back showing Lyme, I would be on IV. I've been on three months of orals until this point. Tetracyline, Minocyline, Levaquin, now Ceftin. Dr. P likes the oral route. Being that I'm a large individual, I'm not sure how much it works for me. I have no doubt this has been in my system long term. I've had attacks before(2), just not this strong. Believe it or not, I thought they were back injuries. What I was thinking I don't know. Doctors had no clue at that time either. But I do believe my immune system fought it off before, so I think it can again and with the help of abx, I can kick this thing.

This test is what I needed to firmly believe. Prior to that, it was just symptoms and a positive WB from Ingenex.

I'm a vegetable right now Cig's. I probably couldn't get an 800 on my SAT's where I think I got a 1200 13 years ago. And just like with all Lyme brains, something just doesn't feel "right" up there. The SPECT now shows that.

Anyway, I wanted to share with you that IV treament has saved my life and opened skills and awareness that I didn't know I could have.

I had a port inplanted in Nov, and have been on Iv since. I learned to access my port in Feb...and I swim 2-3 x's /week, and exercise at curves. I still am not back to work but am hoping for part time this summer.

there are definitely still crash and burn days...today is one of them, but they are fewer and farther between. I still don't have the energy I had before this last "out of remission" but atleast I know that I have Ld and it's not forever in my head.

Be gentle with yourself. Iv meds can be really helpful, but it's sooo much new to learn and adjust to.