I have one good thing about it...I am REALLY struggling to keep on the weight...big time...BIG TIME!!!!

So if you have ANY to spare...send it my way please...lol

But....now hear this...when I am HUNGRY....my symptoms are worse!!!!!!!!!!

Aaargh....so then you see me running to the frig or whatever is closest.....feels like the bugs start to crawling again.

When I herx...these go away.

I am perplexed and plain ole curious as to what the heck this disease will do next. (I had this same symptom 2 1/2 years ago...it got better with abx.)

Now...I do beleive that I have had a lifelong Candida over growth and am considering Lamisil...as prescribed by my local MD.

Some symptoms are definately improving here..in fact at times I am symptoms free..MY keen intuition is saying....could your body actually be going for this on its own?

Your intellect and input are what I would appreciate...now, both sides of each position ARE welcome here...the old TRoutster Is BAck.

CAndida...
Lyme...
Worms....

What....do you think?

Trout

You mentioned Candida. Coconut oil helps with this. I read some of Mary Enig's articles, and was impressed with her take on healthy fats.

Another thing that may help with gut problems is an extract of aloe vera, aloe mucilaginous polysaccharides. In addition to its gut healing properties, it is an antioxidant. See the information on the Molo-cure site.

It has been awhile, and I have missed you!

I am SO pleased to hear you say (write) that at times you feel symptom free- a very good sign indeed!

Have you considered Bart? One of the main symptoms is anorexia.

Last summer when I was tackling that infection, I had absolutely NO appetite at all, and lost about 30 lbs in the process. I would just forget to eat...and when I thought of it...I only wanted a few bites.

Now, I wasn't just sitting around all day either, I was working landscape in the hot sun 8-12 hours each day. So, I should have been a bit hungry.

As the treatment progressed, my appetite slowly came back.

The odd thing was that I was just FAMISHED for a couple of days pre-menstrual during this whole time...and it seemed that I just couldn't get enough to eat.

Very much an odd situation. For me, I decided that the pre-menstrual feeling of starvation was actually a symptom flare. Just as all my other symptoms would flare at that time of month.

Now, obviously...you not being female...this particular application would not apply. But, we all do have a monthly flare in our symptoms with Bb regardless of our gender.

Please don't let yourself get too thin...this isn't healthy!

Much love,
Melanie

No advice. Just wanted to drop in and say hi. I was thinking of you the other day and wondering how you were doing.

Glad to hear you have days when you are symptom free. This is good. May they soon be the norm.

My symptoms get worse with just about anything: too much light, too much noise, lack of food, lack of water, sleep, heat, cold. I assume it is because the body is still trying to fight whatever is going on inside.

Are you able to work? Just curious. Last I heard you were giving it a try.

It sounds like you are doing the right things to help keep the nutrition in the body.

I have long suspected bart...myself. My daughter has the SAME reaction as me.

Yes......I am aware of coconut oil...thanks to Mo. I have Virgin Coconut oil here.

Magnesium Marnie has sent me a LIBRARY of material...and I continue to read and religiously take my Magnesium.

Now...I am on Mepron...which can cause weight loss...but, here is the funny thing...I have ALWAYS gotten ravenously hungry when having a herx......

I hexed...when I am out of the light....away from allergens, etc...but...seem to be getting better.

When I get certain things on my tongue...I feel a tingling there, and in my toes. OY!

lol

This is hilarious stuf.

I had a similar thing happen last year as the summer went on....starting wonder about the MArshall Protocol...controversy and all...in fact I have a scrip for enough to 'pulse ' the Benicar 20mg every other day for 60 days.

Here are my meds....

Bicillin LA 2.4 once a week...herx almost immediately, and then for a day or so...in the upper jaw, occiputal area, and sinus cavity

Mepron/Zith...herx when I take the combo in the AM but not when I take the Mepron by itself at nite (I also get dark urine occassionally...this is a sign of Babs)

Flagyl...herx on it at different times..seems only when I absorb it

Heparin--10,000 units twice a day

My Nodes do hurt at times also...been thinking Bart on/off for a while at times...

Don't really herx on Bb settings for rife anymore.

Dr C thinks.....possible necrotic bone infection...which makes sense with me....sense Bicillin seems to work real good on Staph.

Well.....you guys have always been the best...now....since I am so thin....how does one keep there pants on?

Ha, HA

Just call me slim

Trout

PS...they call me "NO-Butt" at home and when they give me my Bicillin Shots.

Worms, I laughed. I thought that too! I have pounded down raw almonds and dry roasted peanuts like a starvation victim.

I know that you take your supplements, is one the essential fatty acids, Omega 3s?

I go for the highfat, low-carb on these spells.

The CoQ10 I ran out around 2-3 weeks ago and I've been a mental basket case since then. I'm going to add Ginkgold to the recipe.

I can relate about the lyme weight loss plan. But I usually feel better when I eat. I am always hungry, but with chronic yeast I can't eat the things that would put the weight on.

Also, I don't seem to digest and absorb food well.

Sometimes meds or supplements are the problem, but he can even have nausea, dry heaves and tremors which progress into seizure-like episodes just from drinking water.

I have never been able to prove it, but I think the major nerve which is involved with him is the vagus nerve which controls peristalsis in the GI tract. There is a vagus nerve stimulator implant used in some epilepsy patients which helps some people and makes others worse.

My husband has been treated for parasites and candida several times in the past. He loses weight when he gets gastritis. His main symptom with gastritis is that it feels like something is gnawing on his stomach -- he dosen't have actual pain.

I assume you take acidophilus. You could try adding bifido bacteria, aloe vera gel, glutamine powder, olive leaf extract capsules or possibly oregano oil capsules to see if any of these help balance out the good bacteria.

And if you are really feeling brave you could make some ginger tea -- 1/2 teaspoon ginger with some stevia in a cup of water. If you really have gastritis this would probably cause intense pain!!!

One of the things that finally helped clear up candida for my husband was colonics -- I think he only needed 3 treatments, but it wasn't exactly fun.

For my husband the CDSA test from Great Smokies has always been a pretty reliable indicator of Candida levels. I don't put much faith in the parasite testing they do though. For more info: http://www.gsdl.com

Test yourself.

If you think it may be yeast: next time you are hungry:

Dont feed it. Give your body something not yeasty at all, at ALL. Did the feeling stop? Did it NOT stop?

Then, when it happens AGAIN, feed it. Lots of sugar, just what it wants. Yeast has a knack for shutting up if you give it what it wants. Throw a candy bar at it. Feel better?

Also, watch out for sugar problems. Having any? They can be VERY hard to diagnose sometimes.

Ive actually had this happen to me lately. If I dont eat, I get SLAMMING migraines. As soon as I do eat ( which hey, Ok ok I eat carbs) it all shuts up. I KNOW my problem is yeast.

Play with it. Experiment. Test yourself and keep a journal. Its the only way sometimes to find out whats going on.

First, I went on a very strict candida diet. For grains I ate quinoa and millet, sometimes brown rice crackers. I ate almonds(often sprouted) and fresh almond butter from the health food store. I started eating eggs, 1 or 2 a day, something I rarely did before. I ate lots of green vegtables, raw or cooked, raw carrots. Tofu, unsweetened soy milk. took probiotics, oregeno oil caps, lots of chlorella, etc..... I ate coconut oil on a spoon straight out of the jar, just for the calories.

Clorella helps alot (thanks GiGi for a good tip) it helps pull toxins out of your body. When candida is killed heavy metals that were bound with it (I have heard that candida binds with and kind of protects your body from heavy metals, and when you dont feed candida and it dies, you release it and feel bad) and probly other toxins are released. You need to get them out so they dont make you feel bad.

Ideally take it 20 minutes before each main meal, and at bed time. Take between meals if you feel bad. Increase how much you take each time if still have syptoms, Worse syptoms, more chlorella. I probly took more than 5 grams 4 times a day. It's a food, like green vegies, your not going to take too much.

This helped me during die off time alot.

The candida SCREAMED, threw fits, tried to convince me I was starving to death, lots of cravings. I lost more weight breifly. My body was just out of wack. I can definetelly stay weight stable and even gain weight now on a fairly strict candida diet.

Then, I started to feel better. Dont remember how long it took, 1 week or 2. And, I found out how symptom free feeling hungery is supposed to be. Feeling hungery is just a tummy emptiness or rumbling. It doesnt need to be attended to now. I realized that I had been having symptoms for years--I just thought that's what it was like to be hungery.

To keep weight on while eliminating candida, make yourself treats. Its hard to eat enough because you crave bad stuff and dont feel like eating what is available and good for you. Trick yourself. You can mix unsweetened soy milk(DO NOT use rice milk, etc... to much naturally ocurring sugars, and NO dairy) in a blender with unsweetened carob powder, a few ice cubes, almond butter. The only acceptable sweeteners are: Stevia, maltital, xlitol. Add a tiny bit of stevia. My detox time was January, I made "hot chocolate" unsweetened soy milk, carob powder stevia in pan, heat on stove.

I also mixed almond butter, carob powder, and a bit of powdered chlorella together in a bowl. Add more of the powders until holds together. Roll into balls, roll balls in unsweetened coconut flakes. Put in fridge to stiffen. A good high calorie treat.

After initial few weeks of detoxing I added more comfort food, learned new recipes etc.... We still eat pancakes made with quinoa flour and buckwheat flour, salt, leavening and unsweetened soy milk. My kids even like them. Recipe was from web site WholeApproach.com, but we substitute half flour buckwheat.

Anyway, if you decide it is most likely candida and want more recipe ideas, feel free to email me and to look at that web site.

At this point, I think nothing of whipping up some blueberry muffins for a function for my daughter, made from a quinoa/brown rice flour combo, unsweetened soymilk, sweetened with xylitol(actually a natural sweetener, despite the name), etc... I don't mention to her friends, they dont seem to notice or care much. I can eat them too. Yes, eventually you can probably eat berries in limited quantities like this.

Sorry you are having this problem. I, and my daughter, have this problem. Dr. C said it could be related to hypoglycemia brought on by yeast.

I'm glad you are open to all opinions, as the jawbone osteonecrosis is controversial in some camps. . . .

Dr. C encouraged me to have the cavitat to see if I had the necrosis. Dreading another thing to have to deal with, I hesitated. However, after much prompting from him, I took the plunge. To make a long story short, I am now almost 3 wks. post-op.

Metal detox and dental infection toxin release from root canals, NICO and cavitations, etc. are not and over and done with in a few months and most people take several years to be able to clear their body of these. (It took my husband seven month to get out of the wheelchair after two dental surgeries mainly for removal of dental infections = origin of the hideous brain toxins, mercaptans and thioethers.)

As long as heavy metals are present anywhere, microbe overgrowth is likely to be still present also. Lyme is probably the lesser problem.

If you have not done Chlorella, you are missing out. We need to protect ourself with chlorella and/or other neurotoxin agents until you are symptom-free for some time. No body is capable to rid itself of all toxins in a couple of years - it took years to accumulate all, whether we realize it or not.

All bacteria/fungi/mold/viruses/parasites establish themselves in a heavy metal terrain, whether through amalgams or environmental exposure, and any die-off will set heavy metals in motion ---- only to recirculate and resettle elsewhere in the body if you do not have chlorella or similar agents in your gut to prevent reabsorption.
This starts the cycle of metal/fungi/candida all over again.

Candida, as is cholesterol, is a protective device our body has learned to employ. We have to live with the consequences of both which are not pleasant either. More neurosymptoms from the candida organism and vascular problems, etc.

Sorry if I repeat myself. Proven facts - proven over and over and over in not only the holistic community, but especially in my doctor's practice. More needless suffering can be circumvented if people are aware of this. Mountainmoma is right.

If you have not done EM (Essential Microbes) I have posted about several times, it is a great and very inexpensive helper to reestablish the good flora and you may want to try it for on-and-off periods.

You might also want to make sure you have no dental/jaw problems left from unsuspected crowns, root canals, and jaw infections, old wisdom teeth sites. Not going about this seriously when it was recommended to us by Dr. K. delayed my husband's recovery by a couple of years and caused untold problems in between which we could have avoided.

Take care.

The surgery wasn't too bad. It was done under local anesthesia, although some people do prefer general. The scraping and grinding of the bone was disconcerting at times, to say the least.

Post-op pain wasn't as bad as I had expected. I only needed to use 2 pain pills. I used ice and heat to help control pain, edema, bruising, etc.

No, I don't feel better yet. Some people do feel better right away, but that hasn't been the case with me. The surgeon said I may have a herx from all the toxins he released into my system - and I think that is what's happening - along with the stress of the surgery itself.

I am detoxing with charcoal. I plan to try the chlorella as soon as I get out to get some.

I'm still awaiting my pathology reports to see what toxins, bacteria, etc. were involved.

GiGi:

I really appreciate your input on this. It's great to know this has really helped your husband. The dentist that did my cavitat is keeping a book of testimonials and he told me that it continues to grow.

Here's a link for some info on cavitations for those who are interested: http://drshankland.com/nico.html

Had to edit to correct that link. The other one was incorrect.

[This message has been edited by JesusisLord (edited 19 June 2005).]

The story is always the same: Things did not really fall into place until the teeth were addressed. Teeth are priority.

I have met many: Also the few favorite oral surgeons in the country who have done this work longer than most -- a good many years. I have met the inventor of Cavitat, Bob Jones, a scientist and speaker at a recent Klinghardt seminar, who works closely with Dr. Boyd Haley, University of Kentucky, also of www.altcorp.com (Haley has testified before the US Congress re mercury/autism).

Not all surgeons or doctors agree to rely totally on Cavitat.

Many patients of Dr. K. have to undergo such a "repair" similar as you just did. I did it myself in 1998 and I am certain that's one of the major contributors to my wellnes, at my age of 74 especially. I do not even want to talk about my husband. Everyone there was mentally preparing for a funeral and he is doing fabulously now and has been for over a year.

All patients with a chronic illness (ALS, Cancer, MS, Parkinsons, and mixtures of these, etc.) most all of whom, as is being discovered, also have Lyme, seem to have to include working on their teeth and jaw, some more than others. With many who deal with many crowns and bridges and then root canals, as I did, it means all teeth. I even finally found a dentist who can make a denture that literally feels like one's own.

Mercury toxicity or other toxicity (mercaptans and thioethers) from dental infections draw the microorganisms like a magnet - it doesn't make a difference. None promote health.

So give it time. The toxins can take a long time to get out of your system depending on which ones and where they are. Dr. K. tests with ART and is able to find where they are and if they are still a problem. He also tests for the best agent to draw out the toxins. It changes over time. Lab tests often are not conclusive for some of the factors. I think in most cases they test mainly for cancer cells.

If caught early enough or if they get really ill early enough and the treating physician and/or oral surgeon is alert and recognizes the damage in the jawbone, they get away with less work. But of the many I have the opportunity to meet, to get well or to become functional, they did have to address the mouth, sooner or later. Many wished they had addressed it earlier.

Am glad you got part out of the way - hang in and detox all -- it does take time and a good doctor that has learned how, with each patient. I assume you are younger and the body will work it a little quicker. Best wishes and good luck to you.

Take care.

This IS good stuff...I love it.

Ok...I take DMSA for 3 days then take 11 days off........bones ache when doing it. I take charcoal, and chlorella when I can.

I am on 200mg Diflucan....Nystatin...

I was told a long time ago by an Atlas Orthoganist Chiropractor that I have Vagus Nerve Involvement....so, thinking that when I removed the metals..this gets 'exposed'.

I knew that by moving the metals...the candida would flare. I also knew that the 'bugs' would too.

I am just pooped right now.

I am printing this whole up....thanks.

Trout

Who did you use from Dr C's list?

I am looking at the one in St Louis and Omaha.

Please e-mail me at
[email protected]

Thanks...to ALL of you...each has offered A LOT of info.

I can't say enough.

You are a wealth of knowledge! You and your husband are an inspiration to me!! I am a few years younger, but couldn't tell it by how I feel. I wish I could travel in some of the circles that you describe. It's not possible now though.

My cavitations were located in areas where wisdom teeth and a couple of molars had been extracted. I had them in 3 quadrants. Thank God, I don't have root canals and never have. And, thank God, my amalgam fillings are long gone.

Keep the info coming. It is appreciated.

Trout:

Just taking chlorella, ALA, Diflucan, etc.... does not keep my yeast/metal symptoms in check without watching diet.

When I cheat too much, as can happen after so many months of being good, I will get symptoms, esp the hunger/hypoglycymic related ones. This is while taking diflucan, chlorella, etc....

Just a thought.

Also, since your original issue on this post was how to get/keep weight on, you are going to need to realy clean up diet and get your system assimilating good stuff properly again.

Trout

I lost 45 lbs when I was bedridden and have managed to put a few back on. Must be the ball game food. lol!