Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
I was DX'ed about a month ago and put on doxy till I see my LLMD at the end of this month.
I've managed to microwave myself pretty good despite taking what I thought were pretty good anti-sun precautions (still nursing an ugly fat lip covered with what looks like the world's grossest cold sore).
My Lyme is mostly neuro/multiple brain lesions and bilateral arm stuff. Rest of body OK. Cognitively sometimes a bit lost. Already the Doxy has decreased my headaches by 75% so I'm thrilled with that.
The LLMD hinted that if IGeneX returned positive tests (and boy, did they) he intended to IV me when next we met at the end of the month.
I've been reading posts from you injection people and wondering... What prompts your LLMD's to choose IM injections over orals or IV's? Now, the hip pain post sounds pretty ghastly (!), but otherwise, it sure sounds better than constant stomach nasties and sun trauma of orals and sounds better than IV too.
I ain't skeered a'needles!
I want it, I want it!!! (except for great big 'uns goin into me and stayin' thar a long time)
Michelle M
Posts: 3193 | From Northern California | Registered: Apr 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
All in favor of needles please say "Aye"?
Posts: 3193 | From Northern California | Registered: Apr 2005
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I've been reading posts from you injection people and wondering... What prompts your LLMD's to choose IM injections over orals or IV's? Now, the hip pain post sounds pretty ghastly (!), but otherwise, it sure sounds better than constant stomach nasties and sun trauma of orals and sounds better than IV too.
I personally found the tales of the pain of IM injections to be greatly exaggerated. The shot itself isn't bad, and I only suffered a sensation of bruising (day after the shot) the first few times it was given. Big deal.
Unfortunately, the Bicillin didn't work for me, but when it does it's supposed to be great. I think IM has less potential for causing harm -- no blood clots, no infected lines -- than IV. Not that I am not considering IV now that the shots haven't worked, but I think the shots are a good thing to try first. My LLMD tries to avoid using IV whenever he can.
[This message has been edited by dulcamara (edited 18 June 2005).]
Posts: 78 | From Northeastern USA | Registered: May 2004
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
This had no basis in fact, only in my experience but I find IV the easiest to take, then IM BicillianLA, both by-pass all the stomache problems for me.
On the one hand with the IV I had a picc lines, which I was very good at keeping for unusually long times.
On the other hand, bicillan has no line but it's a tough shot in the tush. I usually had a large lump that hurts for a few days and then some bruising. It was a very good med for me. Although, I could only take one shot a week.)
Oh, by the way, the IV has no needles! only when it's first put in. It's a rubbery line inserted into a vein. (that's a picc line). A port is different but I've never had one of those.
Well, Michelle, I'm sure that was no help and that someone that knows something will come around shortly and give you good information.
ps - I think when I was first treated with IV it was because they felt it would be better for neuro involvement. I also don't know if that's true.
[This message has been edited by trueblue (edited 18 June 2005).]
Posts: 3783 | From somewhere other than here | Registered: May 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Thanks for replies...!
I had problem pregnancy (3 prior miscarriages) and had to have weekly BIG shots of progesterone; recall baring my butt every week for the needle.
She's 13 now & was worth every second of it!
I know my doc is thinking "IV" because of brain lesions but I'm sure wishing he was thinking IM just because I'm a sissy.
Another reason: I know the cost of IV is outrageous and my insurance is Blue Cross; they might split it with me for a while then they'll tell me to take a hike.
Michelle M
Posts: 3193 | From Northern California | Registered: Apr 2005
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posted
Michelle, Everyone responds to treatment differently, so it is difficult to say with certainty whether you would respond better to IM injections than IV. For many, IM is a viable alternative to IV. For others, IV therapy is used initially, then followed up with IM.
I think it is certainly something worth bringing up with your LLMD in case he/she is willing to consider IM therapy for you.
Wishing you good health, MM
[This message has been edited by Maryland Mom (edited 18 June 2005).]
Posts: 962 | From Charleston | Registered: Jan 2002
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WildCondor
Unregistered
posted
I never had any problem with Im injections. I have done all my own shots at home for years. The Rocephin, Bicillin, B-12 etc are all pretty easy to do, and I find them more effective and much easier than swallowing pills! The pain is very exaggerated. Its a small needle prick, and a small bruise and thats it.
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Thanks, everyone... Does everyone that does IM give themselves their own injection? Or do some of you run by a clinic or doctor office on a weekly basis for the shot?
Sorry for all the dumb questions; I usually suck up all the info I read on here but just haven't heard much from the IM camp about protocols and such..
Thanks in advance...
Michelle M.
Posts: 3193 | From Northern California | Registered: Apr 2005
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quote:Originally posted by Michelle M: Thanks, everyone... Does everyone that does IM give themselves their own injection?
I did vit B shots myself for a while. My doctor showed me how and I did it the first time in the office while she watched..then on my own after that. It grossed me out a lot but it's not particularly painful. And it was easier than going to the doctor which is an hour drive for me.
Posts: 207 | From san francisco, ca | Registered: Mar 2005
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quote:Originally posted by Michelle M: Thanks, everyone... Does everyone that does IM give themselves their own injection? Or do some of you run by a clinic or doctor office on a weekly basis for the shot?
I had nurses from my local Visting Nurse program come to my home and give the injections.
Posts: 78 | From Northeastern USA | Registered: May 2004
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beachcomber
Frequent Contributor (1K+ posts)
Member # 5320
posted
Wildcondor:
What are you shooting that comes in a small needle with a small prick? I want some of that. My Bicillin needle is about 2+ inches long, pretty thick and it takes 2 good jabs for my nurse to get it through the muscle. It then takes about 2 minutes for her to inject it. I'm not complaining but, it sure isn't just a prick for me.
That said, I really prefer it to having a PICC line and having to schedule my life around infusions. Two injections, once a week is a dream in comparison, despite the pain in the butt.
posted
I have had two piccs, one groshung and now a port I much prefer the port. for IV bicillin I have had about 400+ shots. the first 200 I used the reg needle, rather the nurse did. I did lidocaine patches before hand. way to go. and a timer, two to three minutes..slower the better no lumps. and bring the neelde out slowly. also make sure to aspirate the neelde when it first goes in, if you see any blood return, take it out and go in somewhere else. After about 200 shots and gettng my brian back, I got my own syringes, 3cc 22 guage 3/4 inch instead of them huge honkers. I do NOT know how you can give yourself a bicillin and aspirate and see the blood. My brian is so messed up if I had to look in the mirror and do it I would end up sticking the mirror. But what I am doing is working. I only take one oral, levaquin. the rest is iv, and im. I also take my vit b 12 6 and 1 by iv now. and a vit cocktail iv once a week. so....once they get vioxx up and running again that should help too
the reason iv and im is better is the blood brain barrier is penetrated better than thru digestion process..it goes right into your blood stream. esp iv.
so it go to your brain. I also have neuro lyme..so it really helped and my gut is not as affected.
posted
Hey Achtung, are you sure that a short needle like that is okay to use? If it is, then why wouldn't they come that way? If a 22g works, then why not use a 25g x 1 inch needle? Does anyone know what gauge and length the needles are that come with them?
Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
Would VNA be covered to come to your house to do these?
Posts: 1750 | From United States | Registered: Dec 2011
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nonna05
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Member # 33557
posted
what is VNA????/ Vsiting Nurse Ass. ??
even then what about safety, to them and us
They see alot of people that are ill. can they get anything from us?
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
I have 1 1/2 inch needle is that gettingbto muscle..I'd hate to think it's floating in there and not getting to right place to work...
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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Ellen101
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Member # 35432
posted
nonna, I'm puzzled, what could they get from us???? Lyme is not contagious.
Posts: 1750 | From United States | Registered: Dec 2011
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
if they got poked by needle or something like that.........or if you got a bleeder shot and cleaning it up
i 'm not sure,just if there's an accident of some kind... you hear about nurses etc.
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
like if there was an bleeder shot and cleaning it up..or poked with needle or some kind of accident?
you hear about nurses getting stuff and if you have family helping,,, just wondering.
lots of family issues about catching something and seeing me lately,just made me think of this too.
does 1 1/2 inch needle sound right,, i'm not thin , about 40 over,,
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
up
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Nurses take care of people that are the sickest of the sick, people that cannot take care of themselves.
Do not worry about making your nurse sick! That is your nurses responsibility to take the right precautions to protect herself.
In general, your nurse is not at risk of getting sick from being around you. All nurses should wear gloves when administering shots. This will protect their hands from ever accidentally coming in contact with blood during or after an injection.
Also, use the needle that is provided with the prefilled Bicillin LA shots. It is usually a 1 1/2 in, this is necessary for most adults. If you are the size of a small child then you would need a shorter needle.
Posts: 5237 | From here | Registered: Nov 2007
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
didnt read every reply...
but having done progesterone injections and over 2 years (combined ) of bicillin
bicillin aint no fun. and I have a big arse Idid 2.4 mu 3 times a week and then I did 1.2 3x a week. The numbing creamis a must for me. but eventually you get used to it.
my hubby gave me the injections after I showed him.
Posts: 3905 | From USA | Registered: May 2007
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Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
merrygirl did it really hurt that much? Yikes! I wasn't given any rx for numbing cream. Is it available over the counter? I have not started them yet and now I'm not sure I want to.
Posts: 1750 | From United States | Registered: Dec 2011
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