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» LymeNet Flash » Questions and Discussion » Medical Questions » SEEKING ALL info on LYME CAUSAL-SYMPTOM RELATIONSHIPS , Actual Research & other

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Author Topic: SEEKING ALL info on LYME CAUSAL-SYMPTOM RELATIONSHIPS , Actual Research & other
Cindy166
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Member # 994

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LYME-SYMPTOMS-CAUSES-TREATMENTS
Email Address: [email protected]


Hi, Data is needed for a new website, specifically dealing with LYME-SYMPTOMS-CAUSES-TREATMENTS.

The data needs to be accredited or supported by the scientific community,.. i.e., Research, Pathology, Physicians compiled Assessments or Accounts, etc. (PLEASE SEND WEB PAGE LINKS ONLY, UNLESS IT IS NOT ACCESSIBLE, then please send actual data w/author.)

ALSO NEEDED: Any references to any person or professionals or organizations that might be helpful in any manner with this project. Please include as much information as possible about the reference. Name, Contact, Email, (Phone if available.), Affiliations, Area/'s they may be helpful in, etc.

Please let me know if you or you know of anyone that has compiled this data already, specific to the CAUSAL-SYMPTOM RELATIONSHIPS OCCURRING WITH LYME.

Thanks, Cynthia
[email protected]

added:

To start, until volunteers and resources are found to help make this become accredited. I have a New ID on here:

LYME101
Email Address: [email protected]
Website Opened (New): http://www.geocities.com/lyme101


I have thought of this for some time now, and thought it was something that was meant for me to accomplish once I am well. For some reason it is presenting itself to me now .. I believe all things in life to have reason, even if hard to conceive. But if we look we can see our own growth and how it can be helpful to many .. as is I believe our intended purpose on earth. So, I set out starting to seek assistance in completing this Site Mission and keeping it up to date.

This will be do-able!! But, only with the assistance of volunteers in all the areas needed. Efforts of the minority for the majority. ...Please see the end of this post for specific volunteer info...

ROUGH MISSION STATEMENT:

2 MAIN OBJECTIVES FOR THIS NEW WEBSITE IS TO:

FIRST, TO BE HELPFUL TO THE LYME INDIVIDUAL SEEKING KNOWLEDGE OF THE ACTUAL CAUSE OF THEIR SYMPTOMS AND HOW TO TREAT THESE SYMPTOMS WHILE UNDER GOING TREATMENT FOR THE LYME OR NOT. IT WILL SPECIFICALLY ADDRESS THE SYMPTOMS CAUSED & TREATMENTS!!

SECONDLY, TO BE CREDIBLE ENOUGH FOR PHYSICIANS TO USE AS REFERENCE IN ORDER TO TREAT THEIR PATIENTS. DIRECTLY ACCESSED BY THE PHYSICIAN OR INFORMATION PROVIDED ON THIS SITE GIVEN TO THE PHYSICIAN BY THE PATIENT.

IT SHOULD ALSO BE CREDIBLE IN ORDER TO SUPPORT LYME PATIENTS OBTAIN NEEDED ASSISTANCE SERVICES THEY SEEK. IN HELPING THE ASSISTANCE PROVIDERS OF ALL KINDS WITH THE ACTUAL UNDERSTANDING OF THE UNDERLYING ILLNESS'S THAT HAVE BECOME DIAGNOSED ILLNESS'S IN THEMSELVES CREATED BY LYME DISEASE IN TERMS THEY CAN UNDERSTAND OR RELATE TO IN MEDICAL TERMS OR CODES AND IN TODAY'S SOCIETAL MISCONCEPTIONS.

THIS SITE, AT THIS TIME WILL NOT ADDRESS THE TREATMENT OF KILLING THE ACTUAL LYME BACTERIA OR CO-INFECTIONS. BUT, WILL MAINTAIN LINKS TO OTHER SITES WITH THIS INFORMATION. IT WILL ALSO MAINTAIN SURVEYS TO BE DETERMINED IN THE FUTURE. AND ANY RELEVANT AGENDA THAT MAY BE NEEDED.

This is so needed, everyone including each individual doctor has only so much knowledge. And, even if we are lucky this knowledge typically is limited to treatments to Kill Lyme, with very little knowledge on the systems effected by Lyme directly, indirectly, temporary or permanent. This site when complete will keep everyone from roaming around in the dark.

VOLUNTEERS NEEDED: Non-Professional & Professional

1. Website Building & Maintaining knowledge.
2. Legal knowledge pertaining to this WebPage Site and issues it address's.
3. Research Assistance

This is a basic overview .. Please see updated information on Progress & needed support/Volunteers on the LYME101 website: http://www.geocities.com/lyme101

[This message has been edited by Cindy166 (edited 25 June 2005).]


Posts: 26 | From Houston, TX | Registered: Apr 2001  |  IP: Logged | Report this post to a Moderator
Cindy166
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Member # 994

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Hi,
I'm trying to collect some actual data. Most often I see symptom lists, and now and then will run across the specific reason causing that symptom....some times directly related to Lyme, others a cascade effect on the systems with the root cause being Lyme.

I'm looking for ALL data Research .. and data that is backed up with some sort of credibility, like a Physicians Account, Pathology, etc etc etc.

I am looking for this to help validate my state of illness, and treatment of. But also hopefully to compile later on if I am capable.

Please let me know if you or you know of anyone that has compiled this data already, specific to the CAUSAL-SYMPTOM RELATIONSHIPS OCCURRING WITH LYME.

Thanks, Cynthia
[email protected]


Posts: 26 | From Houston, TX | Registered: Apr 2001  |  IP: Logged | Report this post to a Moderator
pippy
LymeNet Contributor
Member # 6005

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Cindy,
People have MRI's and the like but until they are dead its hard to tell if there are spirochetes (even then its hard to tell) They have biopsied brains, hearts, joints, etc of people who have died of various "symptoms" of diseases that have commonalities with lyme (e.g., alzheimers, ALS, MS) and found Bb spirochetes in some cases.

If you go to google and put in pub med it will take you to pub med site. In the search field type in the symptom and Borrelia and you should find "evidence" that Borreila is involved in a whole range of symptoms. Example: type in cardiac or heart and Borrelia and you will have lots of reading to do. or type in bladder and Borrelia. Again, more reading and research than you'd thought possible. Every organ is affected

That is the "research" you may be looking for????
Good luck!


Posts: 446 | From California | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
   

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