posted
Well, surprise, surprise. My hida scan test showed that my gallbladder isn't working. I already knew I had stones and sludge....but now the handwriting is on the wall for sure.
At least I'm "ready" this time. I didn't want it out 19 months ago when they told me it needed to come out. Now I'm tired of the pain and misery that comes whether I eat or not....and no matter what I eat.
dontlikeliver
Frequent Contributor (1K+ posts)
Member # 4749
posted
Good luck Lymetoo - will be thinking of you. Hope you have the keyhole surgery and recover quickly.
DLL
Posts: 2824 | From The Back of Beyond | Registered: Oct 2003
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janet thomas
Frequent Contributor (1K+ posts)
Member # 7122
posted
Lymetoo,
Oh damn, so sorry to hear more trouble.
Dr J B said (video) that often Lyme patients feel much better when gb is out. Also, they find loads of spirochetes in gall bladders. Maybe have a PCR run on the tissue?
Find someone who will do the less invasive surgery.
posted
Good luck, kiddo. Let us know when it is scheduled so we can think about you.
Posts: 8430 | From Not available | Registered: Oct 2000
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Monica
Frequent Contributor (1K+ posts)
Member # 224
posted
Sorry to hear your news, but I think you are wise to have it removed before it can bring even more pain and misery.
I had mine removed laporoscopically (sp?) in October 2002. It was drive through surgery with 3 tiny incisions. Took a few days to get up and running again, but no ill effects other than that.
I haven't missed it in the slightest.
Good luck.
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000
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Mine in 79 was the old-fashioned way, & I was in the hospital for 10 days! A regular soap opera of what could go wrong, did!
Now, it makes sense to me...I was undiagnosed with lyme disease & LYME was complicating daily events happening to me.
I even got a bad staph infection that wasn't treated promptly since dr. was OFF for mother's day.
Be prepared for diarrhea; although, I'm sure we've all had our share of that too.
Keep us informed of when ok! Prayers go to you for a successful and quick recuperation time.
bettyg
Posts: 1 | From US | Registered: Aug 2015
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Good Luck TooToo!
I'm sure you'll be much happier without it. Do you have a date scheduled yet? I'll be thinking of you.
I'm the last in my family to have a gallbladder. Everyone else can pretty much eat what they want when they want. All are happy the had it out.
Posts: 3783 | From somewhere other than here | Registered: May 2005
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Sue vG
Frequent Contributor (1K+ posts)
Member # 3143
posted
Lymetoo,
Sorry about your GB. Unfortunately, I'm not far behind you. Hope it's as easy as possible.
To those without gall bladders: Can you give us some details on how things work after the surgery and what were your sx like when you finally decided to go through with it?
All I know is that after the surgery some (or all?) people get the trots. Is that after eating certain foods or everything? My system has never worked that way before and I'm concerned.
ahead of time you'll have to ask the surgeon ..tell him your LLMD would like to test for DNA of TBD's in the tissue..
Ry's surgeon was very cool about it, and in the hospital instructed the lab to put some aside and got the sample from the lab and brought it up to me and handed it to me in his office..unstained slide from parrafin block.. if you have a progressive surgeon he might do that..
but even if you have a not so progressive surgeon, it's technically your property, actually the hospitals property but you can sign a release, not his property, he just hands it off ..and you can arrange to sign for it and have your tissue released to you.
Call MDL and ask the lab tech how exactly they want GB tissue to best test for DNA.
I also got my knee tissue from many years ago.. and the proceedure would be to call the hospital lab, and ask them if they can take samples of the tissue and preserve them in parrafin block, from which slides can be taken.
the slides (cross sections of tissue) are slices of the preserved tissue in parrafin, and those can be sent to MDL with a requisition form on which DNA tests you would like run (from LLMD, I presume)..
(incedently, all you Lymies might be interested to know the hospital keeps this preserved tissue for many years..you can go back and retrieve stuff from old surgeries for testing if you like)
There is a way to arrange for fresh tissue sampling, and again, if ahead of time..needs to be coordinated between Doc and lab and MDL, for proper transport, ect.
Take good care..
Mo
[This message has been edited by Mo (edited 27 June 2005).]
Posts: 8337 | From the other shore | Registered: Jul 2002
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posted
Thanks Mo! Does Igenex do this testing too?
Posts: 96239 | From Texas | Registered: Feb 2001
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Kara Tyson
Frequent Contributor (5K+ posts)
Member # 939
posted
Sue,
I think if you ask the vast majority of us without a gall bladder, we would not want it back.
some people do need to take digestive enzymes afterwards.
I have always had gi problems & losing the gall bladder didnt make things worse. For as long as I can remember eating solid food has been painful for me. It has been this way since I was a baby.
I had my gallbladder out when it burst. I could have cared less if they had taken it out with me awake.
posted
I'm not sure. Nick Harris is a really nice man and could answer your questions.
Last I heard some time ago they were fine tuning a blood PCR test, may be doing tissue, too.
MDL's been doing it allot longer (that's where Doc J wanted Ry's sent)....but wouldn't hurt to get the scoop on Igenex if you have the time to ask around among Docs and talk to Harris.. maybe they will work out a 'deal' if the tests are in development???
My insurance covers MDL.
Mo
[This message has been edited by Mo (edited 27 June 2005).]
Posts: 8337 | From the other shore | Registered: Jul 2002
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posted
Lymetoo, Good luck with the surgery. I had mine out about 6 years ago and it was not at all difficult. I was dopey for a little while afterwards from the anesthesia, but otherwise have had no bad effects at all.
Mo, thanks for that great info on MDL. Ellen
Posts: 819 | From New York, NY | Registered: Oct 2001
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posted
sorry - good luck!
Posts: 128 | From Brick, NJ, USA | Registered: Dec 2003
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breathwork
Frequent Contributor (1K+ posts)
Member # 567
posted
My daughter was doing PCR's at Igenex a year ago...
Don't know if they are accepting tissue for testing... a simple phone call would find out.
As to the gall bladder surgery...I'm sorry to hear it's happening to you! I dont' miss mine one little bit..not a bit. It took about a month to feel up to full speed, but that too was worth it.
You can ask that your surgeon give you IV Rocephin while you are in the hospital, for your IV antibiotics post surgically....That's what Dr. S suggested for me when I had my GB out and when I had my radical hysterectomy....I got a total of ten days of insurance paid Rocephin out of the two hospitalizations....which certainly kept my lyme at bay while going through surgery. I figure every little bit helps...
ArtistDi
Frequent Contributor (1K+ posts)
Member # 2297
posted
Good luck, Lymetoo, and hope it brings some relief to your system. I may be close behind you, as we are "watching" my gallbladder once again. Joy.
Hope it goes smoothly.
di
Posts: 1572 | From Hatfield, MA, USA | Registered: Mar 2002
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tabbytamer
Frequent Contributor (1K+ posts)
Member # 3159
posted
TuTu,
Best wishes on your surgery and recovery. I'm sure you'll come through it just fine.
Mo, if you see this, do all hospitals hold on to tissue samples? What dept. of the hospital would I call, the lab? Did any of your old stuff show keets or was that pre Lyme for you?
------------------ Tabby
Posts: 2098 | From San Diego, CA, USA | Registered: Sep 2002
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posted
Awwwwwww, Lymetoo . . . sorry to hear about your gallbladder. Hope they do the less invasive surgery and you bounce back quickly!
Posts: 703 | From Almost Heaven | Registered: Aug 2004
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posted
Well, just my luck. I can't get in to see the surgeon until July 12! ... unless my GP can pull strings again... we'll see. I'm calling him tomorrow.
I'm sure I'll have to wait another week or more to get a surgery date after the 12th....arrrghh...
posted
So sorry Lymetoo to hear about your gallbladder. I had mine out in 1982..10 yrs after I got bit....I felt so much better...the pain and discomfort of gall bladder attacks are not fun.
You will be bouncing back in no time...let us know the date so we can think of you...
Jean
Posts: 324 | From Lexington, KY, USA | Registered: Dec 2001
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Best wishes to you, Lymetoo.
Take care.
P.S. The last I heard about "someone having no longer a gallbladder" - that it is important that they take Bile Salts as a supplement with every meal. Reason: It is very difficult to wash greasy dishes without soap. In a similar fashion it is challenging for a body to absorb fat properly without a gallbladder. The bile salts tend to compensate for this. You do need to absorb fat - necessary for all functions. I remember also that Biotics has a product specifically for that purpose - can't offhand recall the name. If you look up their products on the net, I am sure you will find it.
Posts: 9834 | From Washington State | Registered: Oct 2000
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Lymetoo, sorry you've got to go through this trauma to your body. Did you know that Wobenzym is suppose to be an excellent anti-inflammatory to take prior to surgery?
Ask your surgeon about it. Europeans have been using Wobenzym for 20 yrs prior to surgery and maybe your doc has some experience with this.
Take care, Pam
Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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lla2
Frequent Contributor (1K+ posts)
Member # 2364
posted
lymetoo,
had mine out in March..coincided with the time I started to feel so much better with my lyme, and all my alternative medicine and treatments were able to keep it under control without the use of any abx ...haven't needed abx at all since then...only sparingly since dec. ....
feel great now..can eat anything...
had it done laproscopically..up and about in 2 days...hope you feel the same...only the anesthesia was the bummer..always feel crappy after that!
take care will keep you in my prayers..when 's the big day?
Lisa
Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Good morning Miss Toots,
So sorry you are having to resort to surgery, but it looks like the general consensus is it will be fine afterwards !
Hang in there, we are all pulling for you!
Much love, Melanie
------------------ C O L O R A D O * S U P P O R T * S Y S T E M [email protected]
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Lymetutu,
So sorry to hear the news. I hpoe you see a surgeon sooner so you can get it over with.
All the best to you, Heather
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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Kara Tyson
Frequent Contributor (5K+ posts)
Member # 939
posted
Send me an email with your address, so I can be sure and send a get well card.
Posts: 6022 | From Mobile, AL | Registered: Apr 2001
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posted
Don't worry. Gall Bladder keyhole procedure is a piece of cake. My wife had it and she was home that afternoon and went to work the next day... You are in our prayers
Tj
Posts: 192 | From Phoenix, AZ | Registered: Apr 2005
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TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
Kick it! It will get your motor running!
Ok, ok Im just kidding. I had my gallbladder removed uh about five years ago I think. It was amazing for me to find out it was responsible for about 10 symptoms I was having at that time!
It's interesting Gigi mentioned Bile Salts.You know, no doc ever told me to take something after I had my GB yanked. That was odd, considering when a family member did, they were told TO take stuff with their meals.
In any instance, I have gained 40 lbs that I CANT GET OFF. Im wondering if bile salts would make a difference.
Hmpf, something to think about.
Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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just had my gallbladder out last week and it was ok. you'll be fine. I ended back in the hospital monday because my sodium dropped and i was in for 3 days - this had nothing tto do with surgery. i begged for psych ward but they would not keep me. I'll be thinking of you - you've been so sweet to me and thank you. ironic thing is no more rocephin for me and thats what made me get the bladder out. oh well. there has to be a God. Take care friend and you're bladder will be fine. the incisions are tiny and are healing fast. you 'll see, take care,
cigi
Posts: 320 | From Upstate, NY USA | Registered: Dec 2004
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
OUCH. JUST CURIOUS. I HAVEN'T DONE ANY RESEARCH YET. BUT, I HAVE HEARD OF GALLBLADDER FLUSHES INSTEAD OF SURGERY.
DID ANY OF YOU TRY THIS AND IF SO WHAT DID YOU TRY?
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
I think they can work...many have used them. personally, I did a mild one last year, but then got scared because I have so many stones and I didn't want to run the risk of a stone being caught in the bile duct.
When I had the Hida Scan done last week, the radiologist wouldn't even run the second part of the test because it could have thrown me into an emergency situtation.
SO....I'm not risking it! Personal preference! This sucker needs to come out this time.
posted
best wishes on this surgery Lymetoo. I'm sure it must be a tough thing for you to live with discomfort. May God bless you and your family during this time.
Sam
Posts: 183 | From Craley, PA | Registered: Jul 2004
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