lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
Does anyone here have seeminglly permanent sinuses problems due to lyme or MCS?
Im going on over a year of chronic sinuses problems. My sinuses arent really swollen and Ive only had one sinus infection so far this year.
But my sinuses feel very thin, I also have chronic post nasal drip that only the strongest anti-histamines wont touch.
I dont have much smell and this is also frustrating me.
I also get dizzy from any type of fume.
To add to that my equilibrium feels permanentlly off. My limbs dont feel like they are in the right space/place.
My ears also hurt almost every day. It starts inside the ear and goes to where the eustachian tube meets the throat.
Ive been doing the whole anti-fungal xylitol spray thing and I dont think it hurts but its nothing remarkable yet.
Im just so desperate. The worst part it Im still sick pysically too. It seems that I always herx when Im on meds. I might have one good day a week.
Now Im on Biaxin which was my herxing drug and FLAGYL to pop the cysts.
I also take 1/2 a cap of super strong samento every other day. This makes me herx bad!
Has anyone here had long standing sinuses problems that have gotten better over time with anti-biotic therapy?
Im just wondering how the bacteria can screw up the sinuses for this long.
I feel like I just want to tell my body engouh allready with the post-nasal drip and the sore throat and ear pain. Just go back to normal.
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
bmp for tomarrow i guess. so sad there are so many sick, comeon lets kick this thing
Posts: 2905 | From New England | Registered: Sep 2004
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
Serrapeptase, also known as Serratia peptidase, is a proteolytic enzyme. Clinical studies show that serrapeptase induces fibrinolytic, anti-inflammatory and anti-edemic (prevents swelling and fluid retention) activity in a number of tissues, and that its anti-inflammatory effects are superior to other proteolytic enzymes.
Besides reducing inflammation, one of serrapeptase's most profound benefits is reduction of pain, due to its ability to block the release of pain-inducing amines from inflamed tissues.
Serrapeptase and Sinusitis
Due to its inflammatory properties, serrapeptase has been shown in clinical studies to benefit chronic sinusitis sufferers. In this condition, the mucus in patients' nasal cavities is thickened and hypersecreted. This thickening causes mucus to be expelled less frequently. Japanese researchers evaluated the effects of serratiopeptidase (30 mg/day orally for four weeks) on the elasticity and viscosity of the nasal mucus in adult patients with chronic sinusitis. Serratiopeptidase reduced the viscosity of the mucus, improving the elimination of bronchopulmonary secretions.(23)
Other clinical trials support serrapeptase's ability to relieve the problems associated with chronic sinusitis. In one study, 140 patients with acute or chronic ear, nose and throat pathologies were evaluated with either a placebo or the active serratia peptidase. Patients taking the serrapeptase experienced a significant reduction in severity of pain, amount of secretion, purulence of secretions, difficulty in swallowing, nasal dysphonia, nasal obstruction, anosmia, and body temperature after three to four days and at the end of treatment. Patients suffering from laryngitis, catarrhal rhinopharyngitis and sinusitis who were treated with serrapeptase experienced a significant and rapid improvement of symptoms after 3-4 days. Physicians assessed efficacy of treatment as excellent or good for 97.3 percent of patients treated with serrapeptase compared with only 21.9 percent of those treated with a placebo.(24)
A powerful agent by itself, serrapeptase teamed with antibiotics delivers increased concentrations of the antimicrobial agent to the site of the infection. Bacteria often endure a process called biofilm formation, which results in resistance to antimicrobial agents. In an attempt to prevent this bacterial immunity, researchers have experimented with various means of inhibiting biofilm-embedded bacteria. Their search may have ended with serrapeptase. One study conducted by Italian researchers suggests that proteolytic enzymes could significantly enhance the activities of antibiotics against biofilms. Antibiotic susceptibility tests showed that serratiopeptidase greatly enhances the activity of the antibiotic, ofloxacin, and that it can inhibit biofilm formation.(28)
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
Thanks so much
Posts: 2905 | From New England | Registered: Sep 2004
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posted
Sorry to hear about your sinus problems. I have had chronic problems since i have had lyme. I don't know if it can be blamed on lyme, as sinus trouble is a family thing with us.
I have just lived with it. CT scan shows "horrendous" congestion. They put me on allergy stuff and decongestants, but then i feel worse..sore throat, achey.
If i don't take it, it is headaches, a bit lightheaded and ear pain. Oh yeah..my husband says i am deaf, too! But, i can deal with these symptoms..i guess you just get used to it.
I hope you find some relief!...jellyfish
Posts: 47 | From port orange, florida | Registered: May 2005
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posted
Try irrigation it worked great for me. google grossan irrigator. I put Collodial silver in mine and haven't had a sinus problem in years. Also try some CS in the ears, sounds like a possible ear infection.
luck
Posts: 731 | From Humble,TX | Registered: Feb 2005
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
lymeherx, the weirdest thing with me since lyme. Prior I had horrible sinus infections every spring and fall for years. Since lyme 7 years ago, I've not had a single sinus infection.
I've never been able to figure why so many have sinus as a symptom, but my sinus problems left. Go figure, sometimes nothing makes since with this illness.
Take care, Pam
Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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posted
Hi. There is some research (I think r/t Dr. S.(chronicneurotoxin guy) in maryland) that chronic Lyme pts may have a "colonization" of antibiotic resistant staph in the very upper sinuses that doesn't cause traditional sinus problems but b/c your body creates a "biofilm" due to this condition, a heck of a lot of inflammation. So anyway, my LLMD swabbed my upper sinuses (not fun) about 31/2 months ago and found quite a "super bug" I'm still under treatment for it. When I'm feeling better, I really need to do more research about it. I haven't really found anyone else to discuss this with. I have had the worst herx ever from trying to get rid of the biofilm and still have symptoms going on 3 months. Supposedly when this is all done I'm supposed to feel much better Hope this was helpful.
Posts: 921 | From PA | Registered: Jan 2004
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Larkspur, The Serrapeptase mentioned earlier seems to pierce the biofilm.
Carol
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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posted
Thanks Carol. Oops - I skipped right over that article. Now that I've read it, I find it extremely interesting. Have you (or do you know anyone who has) taken this supplement? I'm definately going to bring that info to my next LLMD appt in a couple weeks. Posts: 921 | From PA | Registered: Jan 2004
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
Larkspur
Might I ask what your symptoms are?
Posts: 2905 | From New England | Registered: Sep 2004
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Larkspur, I became interested in Serrapeptase when I found out that doctors in Europe prescribe it for arthritis pain. It reduces inflammation.
I was looking for something like this ever since I read about the Marshall Protocol, which uses Benicar to reduce inflammation.
Then I started reading about hypercoagulation issues, which Lyme patients often have. Serrapeptase is one of the enzyme products that reduces hypercoagulation.
Some of the symptoms associated with hypercoagulation: brainfog, cognitive dysfunction, digestion problems, fatigue, and generalized malaise.
Sound like me.
I bought Serrapetase and started a 3 week trial. I thought it may be helping. I stopped taking it, and got worse -- more pain. So I've restarted it.
Corrine E. was taking it for sinus, and said she thought it was helping. She hasn't been around lately, I want to ask her how she's doing.
Gotta go, Carol
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
BTW map,,
When I was a kid and all throughout my teenage years I would get terrible sinus infections.
I was infected with lyme at approx 13,, so I dont know which is which.
The funny thing is when I reached 19 I started to smoke cigarrettes.
Thats when my congestion slowed down and it became irritation.
Now some years later I rarelly get congested,, only with a bad cold.
My sinuses are just irritated and I get the dreaded vertigo and ear pain.
Actually my first vertigo episode happened when I started to smoke cigarrettes. I didnt know what the hell was wrong. I thought I had a brain tumor or something
I remember stopping the car on my way to work and I felt like the car was still moving!
Posts: 2905 | From New England | Registered: Sep 2004
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posted
My symptoms... depends on which day it is! My entire life I used to get horrible sinus infections (from about age 12 on) I just turned 36. I was dx with severe neuro lyme close to 2 years ago. Since I started the treatment for Lyme dx the sinus infections stopped, but for about the past year my nose would run(clear) for around an hour every morning when I woke up. Otherwise, I had no other "sinus" symptoms per se. So, in March 05 my LLMD did the upper sinus culture and it came back for a strain of staph resistant to 10 classes of antibiotics as well as MRSA. I've been on a combination of antibiotic nasal sprays and ointment ans well as spraying colloidal silver up my nose to treat this. (Also taking Doxy for Lyme and am the Dr. S detox protocol (CSM and actos)Plus a million and 1 supplements. To complicate matters, in Dec 04 I was exposed to some sort of toxic mold at an estate sale and beleive, that did not help things. I don't even know what's going on anymore. Since being treated for Lyme in the past 2 years I had periods (once for even a month or 2) where I've felt pretty good, then I feel lousy again. The treatment for the sinus condition just floored me - herxing so badly I was pretty much homebound for 8 weeks. My LLMD felt this was a normal reaction based on her experience. Now, the last month I've been feeling more functional, but still symptomatic (e.g. horrible joint/muscle pain, blurred vision, fatigue, insomnia, constant headaches etc) Sorry to rant, but I just don't know what my problems are due to anymore. Lyme, mold exposure, biofilms? I know my symptoms are all a result of inflammation, so I will look further into the Serrapeptase. Thanks. Posts: 921 | From PA | Registered: Jan 2004
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
Wow this sounds like most of us.
I was always sensitive to cigarette smoke. When I was little my father would smoke in the house and I would wake up with a raw throat and sinuses. So we made him stop.
Then I got frequent infection in the nose. Actually when I first got sick with "chronic mono" I had a sinus infection that lasted for a year. I mean yellow congestion and pain.
Then about 7 years later I became very sensitive to mold. I would get vertigo that would last days to weeks.
This is around the time that I began to smoke cannabis weeklly. From what I hear there is alot of mold in that crop.
For all I know I could have mold in my sinuses that is making things worse.
If I do then it has been growing there for a long time. Thats why this other doc (not my LLMD) gave me some anti-fungal xylitol nasal spray.
I have been using it every day religeouslly.
Posts: 2905 | From New England | Registered: Sep 2004
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lymeHerx001
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Member # 6215
posted
Thanks Hiker.
I just know one thing for sure.
Its complicated!
Posts: 2905 | From New England | Registered: Sep 2004
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
You wanted to know if people with chronic sinus issues get better - you betcha!!
Have you tried using a cool air humidifier in your house near where you sleep and hang out?? As my sinus stuff began to heal, I had extremely dry sinuses (plus turns out humidity at office was dangerously low).
I thought you were taking Diflucan? Did it help any??
I really think my issues were fungal related. I have a deviated septum and osteoblasts that fluid tends to build in - my guess is it was fungal trapped inside.
The only thing I take now is a Zyrtec each afternoon, because I have bigtime mold allergy.
------------------ Julie G. ___________ lymeinhell
Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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