posted
i did a search on these topics and was very suprised to see very little info or dicussion. NOT that i am advocating use for lyme! just looking into research possability.
been through multipal treatments (IV) and oral =
been on: vanco, rocephan, clafron, flagyl, biaxin, doxy, zithro,clyndomiciacin and others that i cant think of
been through hypobarics but only 20 treatments (unable to do more)
have had 5 pic lines
currently trying to get offf pain meds
feel like im dieing - wondering a about gh and anabolics from info ive seen in med sites regarding aids patients wasting away
although i dont have aids i am wasting away - my weight continues to drop and i am bed ridden - dont have strength to do anything -legs shake and tremor from fatigue -
joints burn and hurt tremendiously been like this for years- cant get even smallest of exercise - lost all muscle
deca nandrolone (steriod) is used by athletes to build muscle and repair joints
gh repairs tendons and rebuilds cells in organs like heart and liver (and is suppose to increase immune activity)
there was one person in search engine that sayed they did gh with little benefit - but i dont think its fair to write off based on one persons results
problem is - im sure it would feel great while on these drugs but what happens when you stop!
these arent the kind of drugs you can stay on for extended periods of time - and if your female there is even more concern
has any one else done any research on this - i know at a glance this idea looks bad - but i dont know which is worse - living life like i am for longer or being more active at any expense
[This message has been edited by concerned (edited 04 July 2005).]
Posts: 10 | From naple,fl,united states | Registered: Jul 2005
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posted
i understand that anti inflammitory steriods are bad - but these dont help with LBM (lean body mass) they dont give you strength of muscle or tendons -
has any one spoke with a doc about anabolic steriods specifically
and what about gh
Posts: 10 | From naple,fl,united states | Registered: Jul 2005
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posted
Don't know anything about growth hormone except that some lymies have done it. Expensive though.
I was losing weight and muscle both and a doc put me on a short course of anabolic steroids. If you read up on these, though, you will see that it isn't something to stay on indefinitely.
What changed my situation was not the steroids, in my opinion, but retreatment for babesia. This can cause anorexia. The last time around I was on mepron + zithromax + artemesinin. Had done two weeks with clindamycin and another drug, but think it was the triple therapy that finally did the trick.
Didn't see anything on your previous list of meds that indicated you have been treated for babesia. Have you been tested? My case was not caught for several years because they were looking for the wrong babesia. There are many babesias and only tests for two. So, even if you have come up with negative test result, it is still a possibility.
Do you have any other babs symptoms? Any night sweats ever? Mine were only very occasional, instead of dramatic, so I brushed them off as just another lyme symptom (which it could have been since there is overlap.)
Posts: 8430 | From Not available | Registered: Oct 2000
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positive western blot positive alisa (all 5 bands) positive pcr of spinal fluid igg & igm indicate positive
all for bartenella my LLD says could still have other co infections like babesia even though i tested neg. for babasia - not sure what that means as far as if i have or have not been treated for babesia - none of the abx i listed above would be helpful for this co-infection?
i am getting very desperate - having body jerks and vilent grand mall seizures (recently for about a year)
cognitive is real bad- have a hard time even playing solitare with cards - i have to have my husband type for me cuz i cant look into screen to long without head ache
this is why i dont start threads often-
my gut is in poor shape - all kinds of stomach problems
major anxieties & paranoid
need to find something in my life to get fulfillment
sitting in bed in the dark or watching tv isnt cutting it - i cant even be in car without extreme naushea
need more insite on how to get my body to strengthen itself- can barely even stand- most days
would like to try water phsical therapy but cant be in water alone due to seizures
cant get to physical therapy with dr cuz i got no ride there
Posts: 10 | From naple,fl,united states | Registered: Jul 2005
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posted
No, you have not taken any meds for babesia. This could be a major factor in your return to health. [Some say zith works for babs, but in my opinion you need zith and mepron or zith and artemisinin for full effect.] I got great results from clindamycin/quinine.
Also you have not taken any meds for the bart.
Bart often manifests itself in the gut and the brain. You need something like Cipro, Rifampin or Levaquin to kill that out.
There is alot of hope for you if you can find a dr who will treat you properly....or a dr who will listen to your concerns and be willing to try other meds for you.
I don't understand why you want anabolic steroids. They have so many side effects. Seems like you would be going from the frying pan to the fire.
It would be great if you could find a dr who will test all your hormone levels and straighten them out for you. It's worked wonders for me.
------------------ Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express! oops! Lymetutu
posted
I did not see evidence of treatment for babesia or bartonella in the list of meds you gave. Were there any drugs like malarone, mepron, clindamycin or quinine in those that you have taken?
If not, then maybe your doc should consider trying some babesia treatment even without a positive test. Did you ever have a Bowen test for co-infections? They look for the actual organism under the microscope, not antibodies or DNA. That was how my babesia was caught.
Have heard that seizure can be associated with bartonella. But the symptoms overlap a lot.
Sorry you are in such bad shape. The advice I have heard in the past is that if you are not getting better with extended lyme treatment, then try treating for co-infections like bartonella and babesia. The people who are the worst off tend to have more than one kind of germ involved.
Can you ask your doc specifically if you have had any treatment for these, and if not, could you try it?
Posts: 8430 | From Not available | Registered: Oct 2000
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