LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » What would you do if.....

 - UBBFriend: Email this page to someone!    
Author Topic: What would you do if.....
ConnieMc
Frequent Contributor (1K+ posts)
Member # 191

Icon 1 posted      Profile for ConnieMc     Send New Private Message       Edit/Delete Post   Reply With Quote 
you found a tick in your 14 yr old daughter's head and were not sure how long it was there? I removed it last night using the correct procedures. It could have been there for more than a day, since we were in the VA mountains camping for 3 days. Tick checks were done, but still, in my opinion, these are not necessarily 100% successful when you are talking about the head covered with hair.

Today, there is absolutely no evidence it was ever there. The attachment seemed to be superficial as it came out very easily and there was a piece of skin in the mouth. No tick parts left in the head.

Chances are her ped would not think he should take action by putting her on abx, since there is no mark left, and no evidence of illness. That's the mentality round these parts.

From years of battling Lyme and Babs, I have lots of antibiotics on hand. I change protocols frequently and probably have 6 different types. I already started her on minocycline, a 100 mg. dose last night, and then another this morn. Where do I go from here?

I hate to be put in the position of treating her myself, but I am not sure I have any other choices. IMO, the risk is too much. She has always been healthy as a horse, and hasn't even missed a single day of school in several years. Would like to keep it that way!

Even if I called the LLMD and arranged to take her in, we are losing valuable time waiting even a day, IMO. Getting the antibiotics into her system right away seems important to me.

What would YOU do?


Posts: 2276 | From NC | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
riversinger
Frequent Contributor (1K+ posts)
Member # 4851

Icon 1 posted      Profile for riversinger   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Connie, I saw Dr. Jones speak recently. He said that bites on the head are at much greater risk for developing neurological issues. While your daughter is older than some of the children he was talking about, I would have a hard time playing the waiting game, myself.

Can you call Dr. Jones and get his advice? From what I understand, they are very good at consulting over the phone. He is very aggressive in protecting children from risk, and I would trust what they suggest.

BTW, tetracycline family antibiotics, as I am sure you know, are good for both Lyme and Ehrlichia infections.

Best of all, let's hope she takes meds, with absolutely no symptoms at any point, and you end up wondering if it was even necessary.

------------------
Sonoma County Lyme Support
[email protected]


Posts: 2142 | From California | Registered: Nov 2003  |  IP: Logged | Report this post to a Moderator
ConnieMc
Frequent Contributor (1K+ posts)
Member # 191

Icon 1 posted      Profile for ConnieMc     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks, River.

I also emailed my LLMD to pose the hypothetical question, asking him what he generally recommends in a situation like this. I know his recs have evolved over the years, as he has become more familiar with all this.

Guess I need to update myself on the tetracycline family of antibiotics as well. I cannot remember which ones are which. Since she is 14, she is technically adult size, which is good. My LLMD will gladly treat her if anything develops. I just don't want to have to get that far.

To anyone who knows... that research where a single dose of doxy was given less than 24 hours after the bite .. is that pretty much crap, or is it any good? Are doctors using that protocol for early treatment of bites to be on the safe side? After all, didn't that end up in one of the top medical journals?

In the meantime, anyone have contact info for Dr. Jones' office? I would think if I can get someone on the phone, and explain the situation, they probably have standard recs. So will hope for the best. But in the meantime, until I hear back from one of these doctors, I will keep doing what I am doing.. the minocycline.

Thanks in advance to anyone who can help.


Posts: 2276 | From NC | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
Biting Back
LymeNet Contributor
Member # 6018

Icon 1 posted      Profile for Biting Back     Send New Private Message       Edit/Delete Post   Reply With Quote 
Aw, ConnieMc! I'm so sorry to hear about this.

If it were my child, I'd probably have begun antibiotics immediately, then left a message with our LLMD for guidance. Not giving you advice, just telling you what I would have done in the same situation.

I've thought this scenario through many times and am due to speak with our LLMD today. It's a question I plan to pose to him.

I've always wondered if it happened if it would be better to take my son to the ER to have the tick removed, or would I actually be more informed and thus do a better job of it myself. Also thought I'd take photographs of the attached tick before removing it.

Gosh, I really hope things turn out okay for your daughter. We'll be thinking of her, and let us know how things go?


Posts: 703 | From Almost Heaven | Registered: Aug 2004  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 6 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
I would treat, irregardless of what anyone else says to the contrary. That one dose treatment is a bunch of hooey, IMO!

I don't think Mino will cover ehrlichiosis. Doxy is best for now, then you could follow with mino if need be.

When I had my last tick bite, I didn't show any signs of illness until about 9 days later. I was on doxy within 5 hrs of finding the tick. I've had problems ever since.

Hope this helps!

------------------
Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express!
oops!
Lymetutu


Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
riversinger
Frequent Contributor (1K+ posts)
Member # 4851

Icon 1 posted      Profile for riversinger   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Sorry, I should have given you this. Somehow I thought you might have it. Dr. Jones is the only doctor who doesn't mind having his contact info posted. Some say it is easier to reach the office by fax.

Dr Charles Ray Jones
New Haven, CT
Phone: 203 - 772 - 1123
FAX: 1 - 203 - 772 - 0682

Tetracyclines are minocycline, doxycycline, and tetracycline. One dose is useless!!!!! To find recommeded amounts of various meds, you can look at Dr. Burrascanno's protocol. http://www.ilads.org/burrascano_1102.html

But Dr. Jones is the best for kids.

------------------
Sonoma County Lyme Support
[email protected]


Posts: 2142 | From California | Registered: Nov 2003  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 6 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Dr Jones

203-772-1123


Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
mlkeen
Frequent Contributor (1K+ posts)
Member # 1260

Icon 1 posted      Profile for mlkeen     Send New Private Message       Edit/Delete Post   Reply With Quote 
If it were my child, I would treat. I too have lots of abx on hand and would go with what I have while waiting to see the llmd.

My son started tetra at 250 mg, 3x a day when he was 14. At 14 the teeth are formed so discoloring is not an issue.

With tetra/doxy sun exposure is an issue and dairy can't be taken within two hours.


Posts: 1572 | From Pa | Registered: Jun 2001  |  IP: Logged | Report this post to a Moderator
Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707

Icon 10 posted      Profile for Melanie Reber   Author's Homepage         Edit/Delete Post   Reply With Quote 
Hi Connie,

I think you are wise to begin treatment right away.

From Dr. B's guidelines:
TICK BITES -- Embedded Deer Tick With No Signs or Symptoms of Lyme (see appendix)
Decide to treat based on the type of tick, whether it came from an endemic area and percent infected, how it was removed, and length of attachment (nymphs: at least one day; adults: anecdotally, as little as four hours). The risk of transmission is greater if the tick is engorged, or of it was removed improperly allowing the tick's contents to spill into the bite wound. High risk bites are treated as follows (remember the possibility of coinfection!):
1. Adults: Oral therapy for 21 days.
2. Pregnancy: Amoxicillin 1000 mg q6h for 6 weeks. Test for Babesia, Bartonella and Ehrlichia.
Alternative: Cefuroxime axetil 1000 mg q12h for 6 weeks.
3. Young Children: Oral therapy for 21 days.

Here is Dr. Jones' contact info:

Dr. Charles Ray Jones
203-772-1123
Fax 203-772-0682

Good luck to you,
Melanie


Posts: 7052 | From Colorado | Registered: Mar 2003  |  IP: Logged | Report this post to a Moderator
ConnieMc
Frequent Contributor (1K+ posts)
Member # 191

Icon 1 posted      Profile for ConnieMc     Send New Private Message       Edit/Delete Post   Reply With Quote 
OK, great. Thanks to all of you.

At least I am on the right track. I knew doxy would be the better choice, but I do not have any on hand. That's why I went to the mino, since I knew it is in the same family.

For now, I am going to get a fax out to Dr. Jones to see if I can get a response. Already called this number twice and it is busy. As expected.

When I do get an answer to this, I will post it. I think we all need to know how to react if a healthy member of our family is bitten by a tick. As we all know all too well, time is a critical factor. And we cannot rely on the typical ER to do the right thing.


Posts: 2276 | From NC | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
janet thomas
Frequent Contributor (1K+ posts)
Member # 7122

Icon 1 posted      Profile for janet thomas     Send New Private Message       Edit/Delete Post   Reply With Quote 
Connie- This is something I think about a lot. What to do when my daughter has an engorged tick or a bull's eye rash? One, send the tick to Igenex and test for all TBD in your area. Treat prophylacticly?

I asked my former LLMD about this. She said the one dose of doxy was not enough. When I again asked what to do her response was that, and this is tricky, she had heard that a child can be taken from the parents by social services for giving unprescribed medicine. Charles05, are you reading this?

I have been trying to locate a doctor nearby that could take my daughter right away and treat prophylacticly. I'm leaning toward an IM injection of rocephin or bicillin, not sure which, followed by high dose abx for 8 weeks or more.

Sorry I'm not more help. Wish I knew what an LLMD does when their child has an engorged tick or a bull's eye rash.

janet

[This message has been edited by janet thomas (edited 05 July 2005).]


Posts: 2001 | From NJ | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
ConnieMc
Frequent Contributor (1K+ posts)
Member # 191

Icon 1 posted      Profile for ConnieMc     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by janet thomas:

I asked my former LLMD about this. She said the one dose of doxy was not enough. When I again asked what to do her response was that, and this is tricky, she had heard that a child can be taken from the parents by social services for giving unprescribed medicine. Charles05, are you reading this?

]


Now that's scary. I wondered about this, and the consequences from this. Think I should go back and edit my post? The parts where I said what I did last night and this morn?

Well, I have made contacts with both docs and hopefully I will hear back from someone on this.

Thanks for the support. It's kinda distorted, huh? We are doing our best to protect our kids from living a life of hell, and there is a risk in doing that.


Posts: 2276 | From NC | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
dafje
LymeNet Contributor
Member # 7121

Icon 1 posted      Profile for dafje     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yeah Connie, but moms giving their kids arsenic would say exactly the same thing. I can imagine why social services would start asking questions if people put their kids on weeks or months of heavy antibiotics when doctors say it isn't needed. Someone who doesn't know about Lyme, someone who trusts doctors, will say: if the kid needs drugs than a doctor will prescribe the drugs. And in a perfect world, they would be right.
Posts: 185 | From the Netherlands | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
ConnieMc
Frequent Contributor (1K+ posts)
Member # 191

Icon 1 posted      Profile for ConnieMc     Send New Private Message       Edit/Delete Post   Reply With Quote 

[This message has been edited by ConnieMc (edited 05 July 2005).]


Posts: 2276 | From NC | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
ConnieMc
Frequent Contributor (1K+ posts)
Member # 191

Icon 1 posted      Profile for ConnieMc     Send New Private Message       Edit/Delete Post   Reply With Quote 
OK, Dr. Jones' office is amazing!

I already have a response....

For any tick bite, no symptoms, as soon as possible .... start amoxicillin, 500 mg. 2 times a day for 30 days. No less than 30 days!!!

If she develops any symptoms at all ... would need to go on 2 different antibiotics, initiate testing, etc. at this point.

Then, of course whatever happens.

For now, I am on the phone with my LLMD to get things done. Hopefully, they will go with that plan, since I can tell them I consulted with the best!

Hope this helps others who find themselves in the same situation.


Posts: 2276 | From NC | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
riversinger
Frequent Contributor (1K+ posts)
Member # 4851

Icon 1 posted      Profile for riversinger   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Connie, so glad you got through! And thanks for letting us know what Dr. Jones said. Sounds like a good, safe plan. I hope your daughter sails through with no symptoms.

------------------
Sonoma County Lyme Support
[email protected]

[This message has been edited by riversinger (edited 05 July 2005).]


Posts: 2142 | From California | Registered: Nov 2003  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

Icon 10 posted      Profile for Tincup         Edit/Delete Post   Reply With Quote 
Glad that Dr. J agrees with me. hehehe

I say treat and to heck with the political correctness.. especially when a child is involved.

When the IDIOTS start playing FAIR and taking our little ones situation seriously.. I will let them handle it. Not until.

You said..

"To anyone who knows... that research where a single dose of doxy was given less than 24 hours after the bite .. is that pretty much crap, or is it any good?"

Pretty much crap.

Let us know how you all are doing. OK?

------------------
If you get the choice to sit it out or dance...



Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
k-lyme
LymeNet Contributor
Member # 5574

Icon 4 posted      Profile for k-lyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hey there,

I am happy to hear that the light from the end of the tunnel is shining in. Just a word of the wise though. I may be way out of line when I say this, and if I am, I am sorry, but it comes from the best intentions. PLEASE, BE CAREFUL to all who have posted with givening this doctor's full name and information. I have been WARNED myself, and I am by no means trying to dictate what should go on here, I am just trying to share precautionary steps.


Just so you know, AND ALL OF YOU SHOULD KNOW, this doctor who's last name begins with a J has BEEN REPORTED TO THE MEDICAL BOARD for SERIOUS FRAUD AND MALPRACTICE, and he is really under scrutiney here. AND OF COURSE, these charges are CERTAINLY not true. HE has also dodged this bullet before, BUT THEY ARE SCREENING HIS PRESCRIPTIONS, and really making life HELL for him. I am WORRIED myself, AND I THINK YOU ALL SHOULD BE TOO!

GOOD LUCK!


Posts: 227 | From CA | Registered: Apr 2004  |  IP: Logged | Report this post to a Moderator
hatsnscarfs
LymeNet Contributor
Member # 6562

Icon 1 posted      Profile for hatsnscarfs     Send New Private Message       Edit/Delete Post   Reply With Quote 
IMO your daughter is lucky you knew to act fast.

I removed a tick from my arm one year ago. It left the tiniest insignificant mark and no rash developed. It looked really benign but I got full blown Lyme. A tick bite doesn't have to look bad to be bad.

hatsnscarfs


Posts: 956 | From MA | Registered: Nov 2004  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.