Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
I called my mom who has been diagnosed with what they "think" is MS, tonight to tell her about my diagnosis of Lyme. She was kind of shocked, but then not surprised.
She was saying how we all lived in the same place, maybe we all have Lyme. Then somehow I said something about the "Bull's Eye" rashes. She asked what is that, and then before I could say a word, she described the rash to me! "A big red circle with a large white center"? she asks. Then she tells me that she had not one but two of them. She thought it was ring worm or something and it just went away!!!!! She has been sick every since we lived there in the Sierras. That is where she had the rashes and that is where she fell sick. She remebers no tick bites, but she does rmember the rash.
She thinks she has MS!!!!! Thankfully NOW she is going to try and get the Igenex test. If she can't find a good LLMD in Hawaii she will come and see my doctor here in NM. Sigh......
All I can say is, if she knows that she had not one bullseye rash, BUT TWO BULLSEYE RASHES, WHAT ARE YOU WAITING FOR!?!?!?! Now, I have a pretty bad case of Lyme myself, plus up to a dozen other serious things wrong too. If it is SO BAD with one bite, I can only imagine how bad it is with TWO BITES. I have a piece of advice for you. Go onto Igenex.com and order one of those send-in kits for just the standard base line Lyme test. Don't worry, they will give you all the information you will need when you go onto the site. AT least if you can get a kit, and plead with a GP to be the "ordering physician", it would at least get you going until you would be able to get her into a LLMD. But what ever you do, DON"T WAIT!
Good luck, I'll keep my fingers crossed and I hope good health comes for you and your mother soon !
posted
Jellybelly, you may have seen this article already, but here it is in case you haven't.
Lisa
Med Hypotheses. 2005;64(3):438-48. Related Articles, Links
Chronic Lyme borreliosis at the root of multiple sclerosis--is a cure with antibiotics attainable?
Fritzsche M.
Clinic for Internal and Geographical Medicine, Soodstrasse 13, 8134 Adliswil, Switzerland. [email protected]
Apart from its devastating impact on individuals and their families, multiple sclerosis (MS) creates a huge economic burden for society by mainly afflicting young adults in their most productive years. Although effective strategies for symptom management and disease modifying therapies have evolved, there exists no curative treatment yet. Worldwide, MS prevalence parallels the distribution of the Lyme disease pathogen Borrelia (B.) burgdorferi, and in America and Europe, the birth excesses of those individuals who later in life develop MS exactly mirror the seasonal distributions of Borrelia transmitting Ixodes ticks. In addition to known acute infections, no other disease exhibits equally marked epidemiological clusters by season and locality, nurturing the hope that prevention might ultimately be attainable. As minocycline, tinidazole and hydroxychloroquine are reportedly capable of destroying both the spirochaetal and cystic L-form of B. burgdorferi found in MS brains, there emerges also new hope for those already afflicted. The immunomodulating anti-inflammatory potential of minocycline and hydroxychloroquine may furthermore reduce the Jarisch Herxheimer reaction triggered by decaying Borrelia at treatment initiation. Even in those cases unrelated to B. burgdorferi, minocycline is known for its beneficial effect on several factors considered to be detrimental in MS. Patients receiving a combination of these pharmaceuticals are thus expected to be cured or to have a longer period of remission compared to untreated controls. Although the goal of this rational, cost-effective and potentially curative treatment seems simple enough, the importance of a scientifically sound approach cannot be overemphasised. A randomised, prospective, double blinded trial is necessary in patients from B. burgdorferi endemic areas with established MS and/or Borrelia L-forms in their cerebrospinal fluid, and to yield reasonable significance within due time, the groups must be large enough and preferably taken together in a multi-centre study.
PMID: 15617845 [PubMed - indexed for MEDLINE]
quote:Originally posted by Jellybelly: I called my mom who has been diagnosed with what they "think" is MS, .... and then before I could say a word, she described the rash to me! "A big red circle with a large white center"? she asks. Then she tells me that she had not one but two of them. She thought it was ring worm or something and it just went away!!!!! She has been sick every since we lived there in the Sierras. ..
Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
KLyme, What I have been waiting for is my mom to get on board. She lives in Hawaii and I am on the mainland. My positive diagnosis was the motivator for her and now the bulls eye rash issue is just the shove she needs.
Thank you Lisa for that aricle. I will email it to her today.
Lymetoo, yes she is on immunosuppresants, Avonex to be exact, for about 4 years. She says it helps so very much. But we all know what a time bomb that will be.
Can I order her an Igenex test myself that she will take to her doctor or does it have to be requested by a doctor?
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