LymeNet Flash: Bart Relapses more encephalitis

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Bart Relapses more encephalitis

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Topic: Bart Relapses more encephalitis

no2lyme
LymeNet Contributor
Member # 6978

posted

I have had a 1:80 titer for bart for two years and 2 abnormal spects with moderate encephalopathy. Finally, with bicillin, orals, etc. Negative bartonella tests, twice in a row.

So we decide - it is gone. Then a normal SPECT - yahoo things are good. Well, 3 months later test again for Bart just because symptoms seem to be back. Even had LLMD say maybe something else going on - get neuropsych eval. Who wants to hear that?

Bart back 1:80 titer. JOY! So my question is, I feel like if I had a SPECT now it would show encepalopathy again. Any research that if you relapse with bart you get the bart enceph back?

Just trying to explain all the neuro cog problems and make sure I am not going nutty.

Thanks.

Posts: 152 | From On Horseback | Registered: Mar 2005 | IP: Logged |

david1097
Frequent Contributor (1K+ posts)
Member # 3662

posted

Bart is very difficult to get rid of, maybe even harder than Lyme. This is one disease that is well know to be persistent. I think the level of bacteria load will determine how much encelalopathy you have.

Do you know your Lyme cycle. If so do you get a double peak. Ie. feel really dbad-->clears up for a few days then gets really bad again. I have seen that a lot. it appears to have to do with lyme overloading the immune response, allowing the other co-infections to take hold. With agressive bart treatmet this effect has disappeared but any reduction fo the bart meds allows it to come back. Same thing goes for Babesia, but that one is easy for me to tell because imakes the urine go dark, again same thing after the lyme symtpm peak.

Posts: 1184 | From north america | Registered: Feb 2003 | IP: Logged |

seibertneurolyme
Frequent Contributor (5K+ posts)
Member # 6416

posted

A tough question.

Hubby has been treated for Bart based on clinical diagnosis -- tests negative.

SPECT was useless because had no diagnosis at time of test 4 years ago and could never get a copy of the film to have someone knowledgeable reevaluate test.

Tried Rifampin and had horrible reaction/Herx?

Don't really know if hubby has bart or not.
Not giving up, but think we may try herbal route.

The book, Healing Lyme mentions that Japanese Knotweed (Polygonum cuspidatum)is effective against both Lyme and Bart and that it helps make the meds more effective.
Going to give this a try soon.

For more info on this book see http://flash.lymenet.org/ubb/Forum1/HTML/035430.html

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004 | IP: Logged |

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