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Author Topic: New here with questions
terkee
Junior Member
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Hi Everyone,
I hope you can help. I was bitten by a tick two weeks ago and reacted with the bull's eye response. My doctor gave me the standard round of 10 days of antibiotics. Initially the bull's eye faded, but it has never gone away entirely. In fact, it has gotten red again. My skin itches all over. Is that a normal thing to have happen? I already have SLE (lupus) and my rheumy is out of town for two weeks? My body aches,but then lupus makes it ache also. I am having trouble distinguishing the symptoms. Any ideas.
Thanks
terkee

Posts: 2 | From Mesquite, TX, USA | Registered: Jul 2005  |  IP: Logged | Report this post to a Moderator
Biting Back
LymeNet Contributor
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In my case, the lupus diagnosis I carried for years turned out to be lyme disease.

Itchy skin? Yes! Especially after I'd spent even a minute in the sun. Not an uncommon thing to happen with lyme disease.

You need to see a LLMD (lyme literate medical doctor) to treat your symptoms ASAP!

Hopefully someone will come along soon to post our newbie links for your many questions.

Good luck!


Posts: 703 | From Almost Heaven | Registered: Aug 2004  |  IP: Logged | Report this post to a Moderator
Aniek
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Terkee,

10 days is often not enough to rid your body of the Lyme. If you have Lupus, your immune system is already overworked. I would assume your body is even more likely to react strongly to the Lyme, which may make it worse.

I'd be safe and try to find a doctor who is willing to treat longer.


Posts: 4711 | From Washington, DC | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
treepatrol
Honored Contributor (10K+ posts)
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Newbies List 07/6/05

WELCOME To LYMENET


How to Post what where explanations
Posting
Remember This
Rules LymeNet.Org Webmaster
Rules
Here's more goodys! A typical response to newcomers.

Page 1.

Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. "Lyme literacy" means, first and
foremost, knowing how to diagnose the disease accurately. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead.
Lyme Disease symptoms 2005
Lyme Symptoms 2005
Post for a LLMD in
Seeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer.
Support Links LLMD's

Lyme State Info Cheryl's
Why we Don't Use Dr's Names Here

LYME DISEASE TREATMENT & DIAGNOSIS
Cheryl's LDT&D
Lyme Disease Misdiagnosed As ...
Art Doherty Misdiagnosed
Art Doherty Lots a Links


Conflicts in Lyme

How to Search Courtesy of Danq
TC LymeNet Links for New Members
TC 50 Questions

TC Warning To Posters

Lida Mattman

DISEASE INFO - COINFECTIONS

Page 2.

Newbie's Lingo

Links for family members

Lyme Disease Audio Network
Dr B's Treatment Guidelines

Dr. Joseph J. Burrascano's Treatment Guidelines
CDC Website on Lyme Disease
International Lyme and Associated Disease Society
Lyme Symptoms
Lyme Disease Symptoms PDF

Lyme Disease Symptoms
Rashes
Co-IinfectionsThanx M

Rose's 15 Facts for Newcomers
Making the Most of Your LLMD Visit
Camp A and Camp B, The Lyme Disease Contoversy
2nd Version Camp A Camp B


MP Controversy
MP 2
MP 3
MP 4

Why You Can't Trust Medical Journals Anymore
Something to share with friends and family members But You LOOK Good!

Labs
MDL
Igenex Labs
Q-RIBb
Western Blot Info

FDA It is important that clinicians understand the limitations of these tests

Explaining Borreliosis (Lyme) Western Blot Tests
Explanation of Western Blot Bands
Igenex Labs on the Western Blot
Melissa Kaplan's Lyme Website Explains Western Blot
Dr. C Explains Western Blot
( No you don't always see a bite and if there's no bullseye the only way your going to be able to tell is (symptoms) and (((Maybe))) WB or lyme dot blot 3 day urine banged with abx's to free your antigens up for the test.
- = Not Present
+ = Low
++ = Medium
+++ = High
+/- = Equivocal = Indeterminate its there but not as intense as low) )

See this ( . )thats the size of the larva stage tick...
Next nymph size... ( * )
Next is adult ( o ) to ( 0 )
Pretty small????? HUH

Western Blot
Blood Brain Barrier

ABX `s Cross Blood Brain Barrier
Blood Tests Meanings

Blood Tests Meanings

Page 3.

Flagyl,= List of ****dazole's that I have found
Cyst's Treatment
ABX= Antibiotics
Antibiotics Poll
Abx's Poll
Flagyl" by Martin Atkinson Barr
Nitroimidazoles

Drug Interactions and Other Drug Info
Drug Digest & Interactions
Drug Interactions
American Medical Women's Association
Tiscali Reference Encyclopedia


Herxing
What Is a Herxheimer Reaction?
What Is Herxing?
The Herxheimer Reaction

Herxheimer Reaction Explained

Candidiasis

Quote Lida

Ilads

Yeast Problem Diet too
Oral Yeast
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Lida M
Good Article ALS MS And More Etc
Good Article ALS
ALS
Lou G ALS
M S
MS
Danette MacDonald
I'm not giving up
ALSO trigger MS
Lyme a hidden danger
The saga continued
Tom Grier
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Lupus Lyme
Lupus Lyme Misdiagnosed
Lyme Disease Misdiagnosed as Fibromyalgia
Fibro Lyme

Lyme Misdiagnosed as other disease's
Lyme Disease Misdiagnosed As ...
CFS CFID
CFS CFID
CFS

Page 4.


Garlic Proper way to eat it
Garlic

Check Diet Link Atkins Diet

PORT-A-CATH (catherter)
Abx's Port

Prolotherapy

Transmission Lyme
Transmission Fleas Mosquito's Food Etc
Transmission Etc

Transmission Art Doherty

Sexually Transmitted ???
Transmitted Through Sex?
Sex Question-Serious-Adult Content

Looks like like they killed this one hmm Blood Supply, Its back!

Video On Demand: Blood Supply May Be Source Of Lyme Disease Infections

Good Site Canadian Lyme Disease Association
FDA on Lyme Testing

Legal Help
Lyme Literate Attorney's PA
PA

InsuranceLaws
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Search Drs Background

Link1
Link2
Search Dr's Backgrounds link


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MatthewGoss Site
GreatSite
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Cheryl's Site

MorphologySimplified

Tonsils crimson crescents

Killing Lymphocytes By Spirochetes

Wealth of Info

Support
USA Support

SupportGroups Canada
Canada SupportGroups
Associations, Foundations, and Support by Country


Marnies...... Ten Points Regarding Mg and Lyme Disease
In a Nutshell P1

In a Nutshell P2

Part1 Long over Due
Part2
Part3
Part4
Part5
Part6
Part7

Updated in a Nutshell
For My Friends

Canlyme MAG
Silver Discussions
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Tom Grier on Silver
Grier

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Page 5.


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Interested in what Trolls are?
1.

2.


Success Stories
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SPIROCHETES FORMS 4
Conspiracy Theories
US Patent Pathogenic mycoplasma
CDC CITATIONS
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A copy of this is stored in computer Help section.

Newbie Links

Tree's Flash

Updated 07/06/05


Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
janet thomas
Frequent Contributor (1K+ posts)
Member # 7122

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turkey

You may want to read the treatment guidelines at www.ilads.org.

Does it say that a bull's eye rash is diagnostic for lyme?

Does it recommend 6 weeks of doxycycline at 300-600 mg per day?

I have read that the rash will fade regardless of treatment.

Lupus and lyme share some symptoms, you may wish to explore this.


Posts: 2001 | From NJ | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
WildCondor
Unregistered


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Your antibiotic treatment was not for long enough, and your dose was probably inadequate. If you were given Doxycycline, the dose has to be atleast 400 mg per day and taken for atleast 4 weeks, 6 is better. Did you save the tick and have it tested?
Make sure you are tested for all co-infections ASAP. You likely need more treatment and ASAP. Dont wait for a Rheumy, you need to get to a Lyme doctor, even a family doc right away and get more doxycycline, and take the correct doses.
Email me if you need any help or info.

------------------
Lyme Disease Help
http://www.wildcondor.com


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Lymetoo
Moderator
Member # 743

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Hey fellow Texan! Get proper treatment ASAP! That rash means you HAVE Lyme .. get enough doxy for at least 6 wks.

REad the links given above! here's more:

Tincup's Links for new members
http://flash.lymenet.org/ubb/Forum1/HTML/009342.html

Dr. Joseph J. Burrascano's Guidelines http://www.ilads.org/burrascano_1102.htm

Western Blot explanation: http://flash.lymenet.org/ubb/Forum1/HTML/022767.html

The cause and spread of Lyme http://flash.lymenet.org/ubb/Forum1/HTML/032259.html

More info: http://www.ILADS.org/

Lyme Wars http://www.wildernetwork.org/Lyme_Wars.html

Lyme Disease State Info http://www.lymeinfo.net/support.html

Rose's 15 Facts for Newcomers http://flash.lymenet.org/ubb/Forum1/HTML/011977.html

Abbreviations for Lyme-speak
http://flash.lymenet.org/ubb/Forum1/HTML/020494.html

Making the most of your LLMD visit
http://flash.lymenet.org/ubb/Forum1/HTML/020605.html

Success Stories http://flash.lymenet.org/ubb/Forum1/HTML/022173.html


http://www.anapsid.org/lyme/matthewgoss/index.html

Ticks in Texas?? www.tickstexas.org

------------------
Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express!
oops!
Lymetutu


Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
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up
Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
bg
Junior Member
Member # 46416

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turkey,
Welcome to this 24/7 educational & support group board!

Here's TREEPATROL's and TINCUP'S combination newbie links.
http://flash.lymenet.org/ubb/Forum1/HTML/029917.html

Print off the links then check them off as you read as you could spend several months reading all of this.

print & read Dr. Barrascono's info first; you will come back to this often.

Also, see Cheryl's extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful!
http://www.lymeinfo.net/lymediseasetreatment.html

Some guidelines from Betty/others on using this message board:

* Do NOT use all caps when posting; it's hard on our eyes. But I know one of our members has macular degeneration, and all caps is what she can see & read so exceptions like this are acceptable for good reasons.

* We chronic, late-stage lymies can NOT read long paragraphs. So please limit your paragraphs to 6-8 lines max of text and double space between paragraphs.

* You can EDIT your text comments anytime. You can NOT edit your subject line so please make it as specific as possible instead of ``help, question'' etc. in order to have more readers/replies in trying to assist you. There are between 30-40 NEW/replies to post daily so we can't read all the posts on our limited time here...thanks for understanding.

* If you use the ``quote'' icon, please DELETE [B] bold at the beginning & ending of the quote. This makes it easier on our chronic, late-stage lyme eyes.

* To just reply without quoting, go to the top or bottom of screen in the black & white area to reply or post a new topic. Many of us couldn't see it when we 1st started posting. Thank you for helping us all out!

Bettyg


Posts: 1 | From US | Registered: Aug 2015  |  IP: Logged | Report this post to a Moderator
betsy
LymeNet Contributor
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The doxy and any contact with sun and/or heat made my skin sooooo itchy, I was miserable. I got off doxy and the itchies went away immediately. This could possibly be an explanation for you but maybe not...just thought I would throw it out there for you to consider. Hang in there. Betsy
Posts: 107 | From VA | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
Monica
Frequent Contributor (1K+ posts)
Member # 224

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I'd just like to echo what has been said already --

Your Lupus diagnosis could possibly be incorrect. Lyme disease is often misdiagnosed as lupus. (I had a rheumy try to diagnose me with lupus).

You would be better off getting to a doctor who has experience diagnosing and treating Lyme disease and its associated infections.

Please don't delay and good luck to you.


Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
Lyma Bean
Frequent Contributor (1K+ posts)
Member # 1914

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Howdy Neighbor!

If you would like the name of a local doc, you can e-mail me. We don't post doctor's info. on this site. I wouldn't recommend her for late stage lyme but she would be a lot more knowledgeable than a rheumie, for your position.

Take Care...Terri


Posts: 1405 | From Plano, Texas | Registered: Dec 2001  |  IP: Logged | Report this post to a Moderator
terkee
Junior Member
Member # 7584

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Thank you all so much. I didn't get to check until today your responses. I definitely will pursue another doctor and get myself educated on Lymes.

------------------


Posts: 2 | From Mesquite, TX, USA | Registered: Jul 2005  |  IP: Logged | Report this post to a Moderator
   

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