Topic: YOU DID IT! NY Times KILLED their article!!!
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Yep.. GOOD NEWS!!!!
I just heard the letters YOU ALL wrote worked!
GOOD JOB!
The NY Times decided to kill their own article! JUST WHAT WE WANTED!
THANK YOU!!!
Some may feel our voices aren't heard.. but they were. If we stick together.. we will WIN!
Here is a letter to you all from Igenex..
xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Look what we have done TOGETHER
I want to thank everyone who wrote or faxed to Dan Hurley, the reporter, or the editors of the New York Times on behalf of IGeneX. It is really bigger than IGeneX, because it goes to the heart of our definition of Lyme Disease.
Your collective voices were heard.
The New York Times killed the story. It could not have been done without you.
The New York Times is one of the most powerful newspapers in the world, but they listened to you and just maybe they had second thoughts about the story.
This is what we, The Lyme Community, has hoped and prayed for, a fair and balanced story about the devastation of Lyme and its chronic nature.
We have indicated to Mr. Hurley that we welcome and have hoped for a story - but one that is fair to all sides. We have urged him to read your letters and talk to some of you so that the real story can be told.
With gratitude and united in our efforts,
Nick S. Harris
------------------ If you get the choice to sit it out or dance...
posted
Woo-Hoo!
Posts: 703 | From Almost Heaven | Registered: Aug 2004
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Linda LD
Frequent Contributor (1K+ posts)
Member # 6663
posted
My suggestion to him was not to write about IGENEX--but to write about how we are persecuted...
We'll see...maybe he will write a story!
I also sent a pdf of the 2003 Harvey Elsevier Science Ltd. article.
L
[This message has been edited by Linda LD (edited 13 July 2005).]
Posts: 1171 | From Knoxville, TN US | Registered: Dec 2004
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Monica
Frequent Contributor (1K+ posts)
Member # 224
posted
I am pleased to have been a part of this.
A few years ago there was an article in the NY Times Sunday Magazine section which presented the opposing views on the diagnosis and treatment of Lyme. At the time I thought it was a fair piece as it drew no conclusions of its own, but allowed the reader to do so.
In my opinion, WE were not portrayed as crazies.
Anyone remember that one?
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000
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Hubby got a certified letter from a primary care duck who was not willing to accept him as a new patient.
Hope for better luck next Monday. Will have to drive 50 miles to a larger town to try to find a new primary care doctor. This is why we waited so long to move back to VA! We were afraid this would happen.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
Posts: 8337 | From the other shore | Registered: Jul 2002
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breathwork
Frequent Contributor (1K+ posts)
Member # 567
posted
Thanks for posting Dr. Harris' response...
It feels good to have contributed to a desired outcome..Let's hope that Mr. Hurley may be inspired to do deeper research and distill a fair article some day soon.
posted
"Tincup", Thank you for posting that letter. There is strenght in numbers!!!!!!!!! You guys are GREAT!!!!!!!!!I,m so greatful to be in this group. Peace be with you all, Robin
Posts: 139 | From Panama City, FL., USA | Registered: Jun 2005
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posted
Wonderful! Wonderful! It makes us all feel like we are weilding some might these days....strength in numbers! And Lord knows we are gaining numbers....and we will not lie down and take it any more.
So take THAT....NYTimes! And take THAT OPMC!
Thanks so much for posting this TC...
Posts: 2135 | From Tick Country | Registered: Oct 2000
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marniaps
Unregistered
posted
I'm so glad to hear that. I wrote my letter a couple days ago and didn't know if it would do any good, but obviously we made a dent. Great that we can all stick together and try to get the correct information out there for the masses of people struggling with unknown ailments and mis-diagnosis. Excellent
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posted
It helps to know that people listen. Especially on these days when things are particularly bad. I know some day people will look back in amazement at the situation but it sucks to be here now.
Posts: 207 | From san francisco, ca | Registered: Mar 2005
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posted
I wrote a thank you letter to [email protected], [email protected]. I think it's good to give them positive feedback for doing the right thing.
Posts: 207 | From san francisco, ca | Registered: Mar 2005
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