trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
How are you handling your endometrioisis and your lyme? I was doing okay with the pill, but since only one month of ABX I havent been able to get rid of the vaginal yeast infection. I have always been prone to Vag yeast whenever I've been on the pill, and many women are, but now the pill is what keeps me from having MAJOR pelvic pain. The GYN said I'd have to go off it, have another surgery in a month (looking for a good Doc in central CA, BTW) and then start Lupron or something similar.
What are you guys doing that is working and how can you separate your symptoms from Lyme? How can you be on ABX and the pill at the same time???
posted
Poor trails, seems like you are having a tough time.
Endo and awful periods was a symptom of my lyme for a long time (did I know that, uh no). I am one of those freaks of nature, never get vagional yeast but still suffer from yeast.
I started taking the pill and it made a huge difference. I take diflucan 3 times a month and probiotics.
I notice my lyme symptoms get worse with my cycle. That is documented though, a Doctor at Davis did a study on that, I am blanking her name. Barkley?
Anyway, hopefully someone will come along and offer help.
Posts: 152 | From On Horseback | Registered: Mar 2005
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posted
Trails, I have had endometrious for many years and was only dx. with lyme almost a year ago. Suspect I have had it longer at least 3-4 years. I will tell you that I have had tons of pain with my endo. My hormones going bazerk was my first unusual weird thing that I experienced. I have had lupron and depo provera injections. The second depo was the worst thing I think I have ever done to my body. I felt poisoned really everything hurt to the touch also a symptom of lyme (interesting) since then my health has been on a downward spiral with a few periods of thinking ok this will be ok. I have no proof because I also have haschimottos(thyroid) but I think that the beginning of my health problems. I gained alot of weight with the lupron and depo as well. I dn't think these 2 made have anything to do with my eventual lyme dx. but I will always believe that they certainly were bad for my body. PLEASE read all you can about them before you try either not the brochure at the MD office but the PDR and other resources. When I worked in the med. field we had many problems with depo patients. Including stroke but the lupron has a much better track record it is not as bad as the depo. I hope you are better soon mimi
Posts: 343 | From usa | Registered: Dec 2004
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posted
I had terrible problems with endo, and eventually had a hysterectomy. But it's all fine now, if only this pesky lyme would go away. Email me if you'd like my doc's name. She's great, ob/gyn and reproductive endocrinologist. Posts: 207 | From san francisco, ca | Registered: Mar 2005
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
Thanks everyone. Having more than one "invisible chronic illness" is just crazy. And they effect eachother as you all said soooo very much. In fact, I am now wondering if most of my sx arent due to hormaonal imbalance/endo stuff instead of lyme??? When that REAL lyme test comes out and we can tell definitively if we all have a current infection or not...that will be the best news I've ever heard. truly.
Burnbitter- I do want to e-mail you very much, but you dont have an e-mail shown?? please e-mail me.
Also open to other women who have had endo AND lyme and what treatments did you do and which worked the best? Trails
riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
Trails, I'm eyeing this thread, cause as you know, I'm thinking Endo might be an issue for me. I remember reading and posting something a while ago about a study that showed the use of antibiotics as being useful in endometriosis.
Maybe the search function would work correctly, or it would come up in google? I also have the name of a doctor in CA who treats endo who is supposed to be learning about Lyme as well. Might be a good contact for you. I'll send it to you.
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