My SO called 911, and the ambulance came in record time, thank God. The guys had to get me down the stairs and into the ambulance. Unfortunately, they took me to a hospital I don't especially love. I could still talk (though by then, I couldn't move my head) and tried to convince them to take me somewhere else, but there were legalties or something. Anyway, in the ER, they put me into a space with the curtain open. It took about 90 minutes for the doc to see me. My SO was out in the waiting room, unable to get back until the doc had a chance to examine me. All I kept saying was: no steroids; I'm a late-stage Lyme patient. No steroids!

I was pretty afraid (and I'm not one who normally freaks with medical stuff), and at one point, it occurred to me that this could end up permanently disabling me. The nurse had put in an IV line in my hand, and after the doctor asked me a few questions, he instructed the nurse to inject something into the line. Another hour or more passed. The whole time, I kept trying to will myself to move my right foot. Or my left. Or my arm...anything! My SO was calling my Lyme doc who is in another state. Finally the LD was able to talk to the ER doctor. I have no idea what they said. But after about 90 minutes (from the time the doctor first came in), I repeated that whole: "move my right foot" thing, and it moved. Gradually, feeling began to be restored to my body. Late that night, I was checked out. It's 2 days later, and I'm still exhausted and feeling pretty awful, but I haven't had any recurrence of this. I have taken some steps to be more pro-active -- finding out how to reach an ambulance company that will take me to the hospital I want, making sure I always have my cell phone available, etc.

I was just wondering whether anyone else has experienced anything similar (with paralysis)? I've read a lot of information about herxes but don't remember seeing anything about paralysis. This was one of the most difficult things I've ever experienced, and I was really scared! I'd be grateful for any thoughts anyone has and especially grateful to hear from anyone who's gone through something like this.

Thanks!

Or,...this one works great for me.
www.mangosteenmd.com

The paralysis....will occassionally rear its head for me time and again.

But...its duration is not as long.

Trout

Try making sure you get even days. Resting and gentle exercise and good food and good sleep. Take your suppliments and have lots of water and lemon water. Sometimes this all helps me. Sometimes I still crash.

It's been 3 weeks I stopped Flagyl 1500mg/day. I only survived it for five days. I still feel awful. It's hard to move at all. My legs are yuck, my energy is yuck...

Only thing that helped a bit is www.chitopower.com. I'm getting some more now. I tried chelation to detox- didn't work; I tried Epson salt baths- nothing.

Yes it happened to me 3 years ago before a lyme dx. I was feeling fine the day before and woke up one morning with severe numbing/tingling and paralysis.

Made a trip to the ever dreaded ER and they found a white spot on the brain after doing an MRI. Then, I was referred to a neurologist who never figured out what was wrong with me...surprise surprise.

Mine didn't last as long as yours but it's scary I know.

The neuro symptoms have been pretty constant since the inital onset.

Try taking it easy especially since your herxing.

i once was swimming laps,and lost control over my lower right leg when swimming "frog-style" with the legs; as i pulled the right leg in, the lower one rotated upward,due to the resistive force of the water against the leg. I felt the pain of the one or both of the inner most ligaments(s)connecting lower leg bones to the femur.

i left the pool immediately.

I am so sorry to hear what you have gone through. It is absolutely frightening.

This happened to me last year. I was completely paralyzed and even had a near death experience when my throat closed up completely. I saw the light, etc.

Mine started exactly like yours. I first felt like a lightening bolt had gone through my head and I became confused and then the tingling started in my hands. By the time the firefighters arrived at my house I had crawled to the front door and was paralyzed completely. They thought it was a drug overdose because I couldn't explain it and went through my drawers in the kitchen and found all of my medications.

Later with an LLMD's astuteness we learned that I had something called Guillan-Barre Syndrome (do some reading on this and you will probably find some similiarities). Looking back, I do remember feeling very tired the day before, with a sore throat.

My case was related to a root canal and subsequent infection in my jaw that right to my brain.

I recovered, but very slowly. Please be patient with yourself. Months later, I lost the use of my left leg. I have recovered the partial use of it, but it is still in severe pain 24/7 due to neurological damage.

Please let me know if you have any other questions. I hope that you get better soon and I send you my prayers.
Regards
Paisley

I was brought to the

I've had lyme since '85 and was treated for 4 weeks back then. Not rediagnosed until last Dec.

About 1/2 the time he ends up in what I call transient quadriplegia. Basically he has horrible muscle spasms and his muscles get really tight and freeze in all sorts of weird positions -- I have some lovely pictures I show to doctors sometimes.

Usually when he has the freezing up spells he can't talk -- sometimes he babbles nonsense (kind of like baby talk) and other times he tries to talk but says the wrong words.

If he is confused he usually calls me his night nurse (and does not recognize that I am his wife) and he has several other phrases such as the Fireplace man (a former doctor had Firesprings Rd as an address) that I have learned to decipher.

I have never taken him to the ER for these spells since we started seeing LLMD's because of too many bad ER experiences before the Lyme diagnosis.

The freezing up started when he initially tried to come off Depakote -- a seizure med. He does not take that anymore because it is so liver toxic and it never stopped the seizure-like spells or tremors anyway.

I use IV Ativan in his PICC line as needed to stop the seizure-like episodes and to relax the frozen muscles. Even so I have to massage and move his muscles for 10 - 15 minutes before he can move them himself.

I have been thinking about taking him to another neurologist -- have not been in about 1 1/2 years now but not really sure that would do any good. Have had brain MRI's about every 6 months and basically number or white spots have been unchanged for a couple of years now.

In my personal opinion hubby's spells are the best indicator I have of how much his brain is disturbed and unfortunately just about every antibiotic he tries causes these episodes to be more frequent.

Hubby has often said he wishes he could open up his brain and wash all the toxins out! I am sure there are a lot of you out there who are looking for a brain transplant!!!

Just don't get talked into electroshock therapy -- we have had to refuse this option a couple of times during psych admissions before the Lyme diagnosis.

Be prepared is the best you can do, because I have learned that you never know what is around the corner.

Bea Seibert

Andie

Andie

That sure is incentive!Your Mom must be wonderful.You have a great attitude,something needed to take on this monster of a disease.