I am also exhausted from the heat.

The left side of my face goes in and out of numbing.
Any and all advice is appreciated.

Blessings,
Marblenose

I only have numbing (painful) in my right hand and left leg. It waxes and wanes and I can't really predict what makes it worse except for cold weather. The only thing that has helped me is pain medication and Neurontin.

Hope you get some relief somehow, someway soon.

Sounds miserable!

Sorry you feel like the bug today.. and not the windshield.

You mentioned the magic words in your post.

"One month".

It's herx time baby!

Hang on for the worst ride of your life.

But remember this.. when it is over..

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If you get the choice to sit it out or dance...

I started zith/mepron/arte 6 weeks ago. You might want to do a search for mepron buddies. At around 4 weeks I realized that my legs and torso were numb and the fatigue was intense.

I don't know if you live in the South, too, but the heat is so oppressive this year. I have an ice vest from the past that I have resorted to wearing again. The sweats and chills are intense.

I talked to my LLMD's office and was told to d/c all for a few days and restart the zith slowly. When that plateaus, slowly add mepron.

I was slow to show a reaction (which could mean it is long-standing), but then it whacked me.

I also have muscle weakness, did you?

Questran is good for eliminating toxins from the body. It's hard on the stomach...but if you can tolerate it, it's good while it lasts. [It is a prescription]

Hope you guys are feeling better soon!

During herx quite a bit of toxin ended up in your blood after a lot of bugs got killed. Dr Shoemaker propagated Cholestyramine to clear toxin from Lyme. He has never published any article in scientific journals (that is unfortunate) but had oral presentations on symposia (there was something in 2002).

Cholestyramine is an older drug used to lower blood cholesterol but more recently is used to accelerate toxin removal. It is commonly used in poisonous snake/spider bites.
You need a prescription from your doctor.

Cholestyramine is a resin that absorbs bile so the bile cannot be reabsorbed back to the blood stream. Instead is removed from the body. Apparently Borrelia burgdorferi toxin travels together with bile. That means the liver picks it up from the blood; excrete it together with the bile into duodenum, and in untreated patient the bile AND THE TOXIN is reabsorbed back. That is why the toxin cannot be removed quickly even if your liver is doing its best.

Cholestyramine is safe but unpleasant. May cause heartburn and strong constipation. So start it slowly: one or two sachets per day. See how you respond. Initially it may be bad, but later your body might adjust to it. Give yourself time.
Take ranitidine or losec for heartburn. Take laxative if constipated.

I took it 3 times a day and started improving in 10 days. If you can, take it 4 or more times a day. For some people it takes longer - several weeks, some others do not improve and require different treatment.
There is also a natural product Chitosan that people say works equally well but I don't know for sure.

Just make sure that Cholestyramine doesn't interfere with other oral medication. The best is not to take other medicines one hour before cholestyramine and 3 hours after. Otherwise you risk that your other treatment might not work. It is useful to take a meal that contains fat shortly after Cholestyramine such as a scrambled egg on butter or 30 ml of vegetable oil to stimulate bile ejection. Avoid whole grains or even all grains in any forms after taking Cholestyramine as they seem to deactivate it.

quote:

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Originally posted by marblenose:
Thanks for your feedback.
I take the non-tradtional as well.
I have central air conditioning set at 67 to make it 74 which is still just plain yucky.I am sopping wet standing still.
I didn't take the zithro today. Maybe backing off for a few is a good idea.
I am so grateful for this site and for all of you!
Blessings,
Marblenose

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