Well i wanted to update on myself LOL....The infection in my piccline is almost gone thank god, i had to come off of cipro though because of the tingiling sensations im getting in my face, neck and arms but the doc said its okay, the infection is basically gone.
Hm..im going back onto rocefin while im waiting for Gallbladder surgery. Hes putting me onto 1.5 grams again but we're mixing it with a whole crap load of saleen..to hopefully prevent the sludging.
im doing okay though, just wanted to update you all since i was pretty close to the end of my rope last week.... i'd like to thank all of you for helping me and encouraging me through that rough time..love you guys
Korinne
Posts: 102 | From henryville. PA, USA | Registered: Jun 2005
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posted
Good news! One question: Why won't your dr consider giving you Actigall as a preventative? I personally wouldn't risk taking Rocephin again without it....but that's just lil ole me!
------------------ Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express! oops! Lymetutu
posted
hey..well the doc said actigall doesn't work against rocefin from sludging in the gallbladder, and i do think hes right. Actigall is for stones that are already formed.. and what i have going on is a sludge from the med.
I'll do anything i can to try to feel better right now ya know? i'll see how it goes, if i sludge again, i'll be taken off. Its just another try in a different way, so maybe it will work hopefully.
and OOPS i didnt notice i put this in the medical questions forum..sorry. I meant to put it in the general support. My bad!
korinne
Posts: 102 | From henryville. PA, USA | Registered: Jun 2005
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Kori ~ I'm glad to hear the infection is under control and you're doing a little better. Yay!
I don't see what's wrong with this being in medical, there's medical stuff in here.
Good luck with the rocephin, I hope it's ok that way, keep a close eye on it. If you have to stop, you'll stop. Do you have a time frame for the surgery? Or are they still deciding if it's necessary?
Anyway, hang in there, kiddo!
[This message has been edited by trueblue (edited 18 July 2005).]
Posts: 3783 | From somewhere other than here | Registered: May 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Hi Korinne. Well, THAT'S a relief! You were due a little break! I'm glad something is good news for you lately. Good luck on your gallbladder thingie. Who needs that ole thing anything? Psshaw.
Michelle M
Posts: 3193 | From Northern California | Registered: Apr 2005
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
Korinne,
Actigall also works on sludge. I Had SLUDGE not stones with Rocephin and a lot of URQ pain. I took actigall religiously for 6 months and got rid of the sludge. The guy that did my monthly ultrasound even hugged me he was so happy for me and really surprised that it worked! I had to FIGHT to keep my Gallbladder. I think it is a good organ to keep around if you can. It makes it harder to process IV Rocephin without it, is what I have heard and read. Annie that posts here might know more about this???
Are you taking the gallbladder out before symptoms of stones have happened? Sorry I havent been reading much lately, missed your story last week.
Well yea, im going to talk to the doc again about it...to see if maybe he would change his mind...
BOY was is a bad idea to go out into 90 degree weather today, i couldn't feel it until i stood up lol...when i got to my friends house my muscles were so weak i could hardly walk so i had to sit...is this something you guys experience with the heat and lyme?
I also was very out of it today because im getting my little monthly friend which isnt a fun time for me, also i stopped the pill a week before i should have so my body is going so nuts right now from being off of antibiotics, having an allergic reaction to cipro, getting my friend, the heat ect... my body is so bad right now.
I am infusing the rocefin right now so hopelly Just hopefully i'll get some releif soon. Pray for me please you guys, times are getting real hard for me.. im greatful for those who reached out to me and lent me a helping hand you know who you are.
All of you have been such a great help to me..im just going through the roughest time ive ever gone through my whole life with all the stuff im putting my body through. But i know it'll get better.
So thats my update, its not as happy or cheery but thats the point im at right now, i keep going up and down..i hope someday it'll just be ups and no downs...im sure you guys know what i mean...
Lymetoo, im going to call you tomorrow hun, sorry i've been forgetting..i feel so bad. How are you feeling hun...hopefully your not in pain anymore. Talk to you soon.
Huggs everyone Korinne
Posts: 102 | From henryville. PA, USA | Registered: Jun 2005
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