LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » ketek

 - UBBFriend: Email this page to someone!    
Author Topic: ketek
timaca
Frequent Contributor (1K+ posts)
Member # 6911

Icon 1 posted      Profile for timaca     Send New Private Message       Edit/Delete Post   Reply With Quote 
would love people's input on how they fared taking ketek....when herxing occured, if it affected their GI, etc...
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005  |  IP: Logged | Report this post to a Moderator
Jewlbug
Member
Member # 4554

Icon 1 posted      Profile for Jewlbug     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have been taking Ketek for about 2 mos. This is the first antibiotic that I had a very noticeable herx on right away, and I had been on very aggressive oral combos for over a year once I started taking this. I was very dumb to start it right before I left for a vactation to HI. However, once I backed off, so did the Herx. Once I started taking it regularly again, tho, I felt like I was in a constant herx.

I have found Ketek easy on the GI tract, and as long as I continue w/ my probiotics, the yeast/thrush stays under control. I've taken other ABX with much worse effects.

Right now, I'm pulsing both Ketek and Minocin. My LLMD thought I was in a constant die-off, and the combo was too strong.

I know others have seen great results with Ketek, so you may want to do a search for more input.

Healing thoughts,
Jewl


Posts: 79 | From Chicago, IL | Registered: Sep 2003  |  IP: Logged | Report this post to a Moderator
DanP
LymeNet Contributor
Member # 7501

Icon 10 posted      Profile for DanP     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi. I began taking Ketek 12/31/04. Within hours, believe it or not, the brain fog started to lift. I've been on it since then. I've had 2 or 3 pulses of Flagyl since then. And have added other regimens: cat's claw, elderberry, gingko drops, NAC, garlic, Vitamin B complex, magnesium, probiotics, and many supps. I started going back to the gym, weight training, and getting in the steam room every visit. I'm also getting Immune solution and glutathione IV drips every two weeks. The most recent treatments have been 2 homeopathic remedies, which seem to be working on clearing up the 2 year old hairball in my throat which is always accompanied by lower back ache. My osteopath and naturopath have renewed my Ketek prescription for an 8th month. Oh, one more thing, I also take a fiber supp every day. I'm feeling better than I have in ages, but still have a way to go.
Posts: 277 | From NY | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
Aniek
Frequent Contributor (1K+ posts)
Member # 5374

Icon 10 posted      Profile for Aniek     Send New Private Message       Edit/Delete Post   Reply With Quote 
I've been on Ketek since November 2004. It's my wonder drug. My LLMD thinks the Lyme is gone and that in 2 months I'll be off abx.

When I first started Ketek, I was extremely fatigued. That lasted for about 2 weeks or so. My GI was fine on Ketek. I even got really bad on my yeast diet and had no problems.

What makes Keek a wonder drug? We believe I got rid of a light load of babesia with Ketek, Plaquenil and Artemisinin. No Mepron! It was a light load though.


Posts: 4711 | From Washington, DC | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
timaca
Frequent Contributor (1K+ posts)
Member # 6911

Icon 1 posted      Profile for timaca     Send New Private Message       Edit/Delete Post   Reply With Quote 
how much ketek are you all taking?
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005  |  IP: Logged | Report this post to a Moderator
DanP
LymeNet Contributor
Member # 7501

Icon 1 posted      Profile for DanP     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm taking 400 mg twice a day within 2-3 hours of each other (total=800 mg).
Posts: 277 | From NY | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
Aniek
Frequent Contributor (1K+ posts)
Member # 5374

Icon 1 posted      Profile for Aniek     Send New Private Message       Edit/Delete Post   Reply With Quote 
Also 400mg twice a day.
Posts: 4711 | From Washington, DC | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
ICEiam
LymeNet Contributor
Member # 7519

Icon 1 posted      Profile for ICEiam     Send New Private Message       Edit/Delete Post   Reply With Quote 
Daughter has been on it since March, 800mg once a day, along with Mepron and Rocephin shots. LLMD took her off of all meds but 400 mg Ketek once a day. She still isn't feeling any better. Head hurts BAD between eyes, and ears and eyes hurt too.
Posts: 468 | From Las Vegas NV | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
liz28
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
It's not perfect, but it's a million times better than nearly everything else I've taken. The improvements it's given me include being able to exercise again, and reducing Lyme symptoms to the point where I can tell them apart from co-infections. It also may help with babesia.
IP: Logged | Report this post to a Moderator
timaca
Frequent Contributor (1K+ posts)
Member # 6911

Icon 1 posted      Profile for timaca     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks, everyone for your replies.

I just downed my first 400 mg tablet last night, and my second this morning. (I'm also on 800 mg/day). (AND I'm on IV rocephin too!) I could probably market my blood as some kind of antibacterial soap at the moment!

I hope it helps!


Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005  |  IP: Logged | Report this post to a Moderator
dontlikeliver
Frequent Contributor (1K+ posts)
Member # 4749

Icon 1 posted      Profile for dontlikeliver     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have been on it about 10 weeks and have improved considerably.

DLL


Posts: 2824 | From The Back of Beyond | Registered: Oct 2003  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 6 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
How expensive is this stuff? [thankfully, I have good insurance...but I don't want to run into trouble with it either]

I think a month or two on ketek would "finish off" my Lyme and babesia for good. Waddya think??

------------------
Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express!
oops!
Lymetutu


Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
janet thomas
Frequent Contributor (1K+ posts)
Member # 7122

Icon 1 posted      Profile for janet thomas     Send New Private Message       Edit/Delete Post   Reply With Quote 
It's $215 for 60 from an online Canadian pharmacy and double that at CVS.

My HMO declined to pay for a script for 60 but did pay for 14 at a time.

Am I allowed to post the C phar name? You all can email me I guess.

I take ketek along with IM Bicillin.


Posts: 2001 | From NJ | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 6 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
I think that's about the same price as zithromax. Thanks, Janet. I don't need the pharm link. I would get it thru my prescription service.

------------------
Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express!
oops!
Lymetutu


Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.