LymeNet Flash: is this bartonella?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » is this bartonella?

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Author

Topic: is this bartonella?

lymelady
LymeNet Contributor
Member # 6207

posted

Hi guys,
I have had to go on a round of erythromycin due to a very large abcess due to a dead tooth. Was herxing so bad on clindy, I had to switch meds.

Abcess is drained and things are looking much better toothwise but new symptoms have popped up I think due to erythromycin which is sometimes used to treat bartonella.

I have not tested positive for bart, just lyme and babs, but thinking bart is here also.

Symptoms are:
see sparkles when lights are turned off
scabby things on chest that were bumps on chest, one on face. Vit C cream is clearing them up. Scabby things are peeling off.

Vibrations in feet and legs, some in head like electric charges.

Eyes, which have been a problem (hazy, auras at night, blurriness of vision) are having stinging feelings in them since erythromycin

Every other day symptoms (feel crappy one day, better the next and so on and so on) regular as clockwork. No doc has been able to make me understand this wierd cycle, but read that bartonella quintana has a 22-hour cycle. Could that explain the totally reguler cycles of excerabation of symptoms. There has got to be a lurking infection or parasite I don't know about yet I am sure.

Babs meds have yet to do much for my vertigo and wondering if big stumbling block is bart.

You smart people out there might be able 5o give me a answer.

Thanks in advance for any help!!!
Lymelady

PS what meds do you start out with for bart (the gentle ones??) I am a huge herxer

Posts: 484 | From Fredericksburg, Va USA | Registered: Sep 2004 | IP: Logged |

Nal
Frequent Contributor (1K+ posts)
Member # 6801

posted

I just wanted to say that I get a lot of vision problems that are due to Bart (I did test positive on igenx). I went to the eye dr's and no one could figure anything out. The vertigo is terrible isn't it? You get nauseated with it as well? I know I do. As youve probably read, I have a ton of GI problems too and we are wondering if its due to Bart as well. I hate all of this-I really do. I wish you all the best!

Nancy

Posts: 1594 | From Colorado | Registered: Jan 2005 | IP: Logged |

lymelady
LymeNet Contributor
Member # 6207

posted

Yep, I think I am a congenital lymie and for years I have had idiopathic IBS (tests and tests and no known cause)

Also eye docs have diagnosed me several times with crap they made up simply because they did not know. One went and got a book and picked a disease he "thought" fit my symptoms.

Vertigo is a totally misery and my WORST symptom, bouncing, bouncing, every minute of every day. No spinning so no nausea but a total nightmare.

Thanks for reply!!!

Posts: 484 | From Fredericksburg, Va USA | Registered: Sep 2004 | IP: Logged |

lla2
Frequent Contributor (1K+ posts)
Member # 2364

posted

so what are you on or hte bart quin. that will help with the eye stuff and the vertigo? just curious..these were my two big problems with bart as well..adn septra ds and zithro worked well for me...just wondering what is workign for you guys..??

thanks,

Lisa

Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002 | IP: Logged |

lymelady
LymeNet Contributor
Member # 6207

posted

Beats me, getting ready to start because I just found out that I "think" I have it; levaquin?? is that the one you start with?

Help!!

Posts: 484 | From Fredericksburg, Va USA | Registered: Sep 2004 | IP: Logged |

lymelady
LymeNet Contributor
Member # 6207

posted

Posts: 484 | From Fredericksburg, Va USA | Registered: Sep 2004 | IP: Logged |

Lymeblue
LymeNet Contributor
Member # 6897

posted

I was twice negative for bartonella but gi and eyes symptoms persisted among other ones.
Sore soles at a.m and seizures are key symptoms for bart too....
Only the bart protocol have been slowly decreasing all this array of symptoms....of course after treating ehrlichia and babs for many months.....bart was the one bothering.
And now that you mentioned the vibration thing.....yes I used to have it too...
Bartonella infections are more common than lyme infections my LLMD told me that.

Posts: 983 | From The sky | Registered: Feb 2005 | IP: Logged |

SAK
LymeNet Contributor
Member # 7387

posted

I'm taking Levaquin 500mg and Pantoprazole 20mg (together) once a day for Bart. I've been taking these for about one week. I have vertigo, weakness, eye problems...

I just started on these meds based on the advice of an llmd who said that most Lymies have Bart. I'm getting tested too just to be sure.

Posts: 371 | From Up North | Registered: May 2005 | IP: Logged |

lymelady
LymeNet Contributor
Member # 6207

posted

Thanks for replies. this has been enlightning. I also went through a period of very sore feet early on, mostly heels.

I think bart is the problem and what is holding me back from improving at all.

The hardest (no, not the hardest)thing about this is having to be your own doc when the tests do not show what you have. Hard work.

Thanks again for everyone's help.
Lymelady
PS
Great news Cave!!!!! hope for all of us?

[This message has been edited by lymelady (edited 23 July 2005).]

Posts: 484 | From Fredericksburg, Va USA | Registered: Sep 2004 | IP: Logged |

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