LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Back at work! Yipee!

 - UBBFriend: Email this page to someone!    
Author Topic: Back at work! Yipee!
Amanda24
Member
Member # 7227

Icon 10 posted      Profile for Amanda24     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have not visited this page for the past month, and have only posted on the "finding a doctor" board.

A quick summary...Bitten by tick in N. Ga Mountains on March 26th 2002. Developed rash and flu symptoms and went to new family doc on March 29th. She told me that "we don't get Lyme Disease in Ga." Wew! I was sure relieved. ha.

3 1/2 years and 20+ doctors later and had to take short term disability from my job as a Sr. Finance Manager.

After 12 years of crunching numbers, I couldn't do my job anymore. Sever fatigue, confusion, horrible joint pains...blah blah...you all know the long list of symptoms. Was diagnosed with depression and anxiety.

I finally found this website...my literal life saver. With two daughters (3 and 5), a husband, and demanding career, energy and a sharp brain was a necessity.

I finally figured out that I probably had Lyme and then spend 6 months locating a doctor who would "believe" me. Tested negative according to the "all knowing" CDC guidelines.

I traveled from my home in Ga to Springfield, Mo to visit Dr. C. After reading so many of your posts about how wonderful he is, I took a leap of faith and made an appointment.

I went out of work on April 1st and was so sick I couldn't even walk upstairs to tuck my girls in. After sticking to the treatment protocol set forth by Dr. C, I was able to go back to work the day after my Birthday (June 26th).

As it turns out, I probably went back about 2 months too soon, but I couldn't wait for some sense of normal again. Also, I inherited a new boss while I was out and wanted to get back to my job.

As luck would have it, he actually has a friend in NY with Lyme. He UNDERSTANDS the disease!! I couldn't believe it. He is letting me work from home a few days a weak and is so understanding when I need to leave early because I am out of gas.

April 24th was my first posting on this website, and I was depressed, confused, sick, scared, alone, frustrated and on and on.

Today, thanks to all that I have learned from this site and speaking to someone I met here, I am LIVING life again.

Sure, it is a daily struggle and I certainly have a long way to go to get back to "normal" (whatever that is), but I feel in control for the first time in a long time.

It is true that knowledge is power. Thank you all for sharing your stories. Lyme is so scary, especially when you are living in a state that doesn't even recognize it.

The things I have learned from this site and others have given me the confidence to FIGHT! And fighting is what I do every day. But at least I know what I am fighting now.

In closing (sorry this is so long)...having to leave work and stay home made me see that I was focused on the wrong things. Prior to getting sick, my career was SO important to me. Moving ahead and making more money were my top priority.

Heh...I sure was missing out. Now my husband and children are all that truly matter. I don't work 65/70 hours a week anymore. I leave work early in order to conserve my energy for my family.

Since I have been back at work, people have told me I seem less stressed and so much more laid back. Me! Can you imagine? Nothing phases me anymore.

I am grateful for the lessons learned as a result of this Disease. THANK YOU DOCTOR C! Thank you for dedicating your life to helping the wondering Lymies who are lost and desperate to find the path to healing.

QUESTION...Over the past 2 months, 3 different people have contacted me through friends and relatives. They were exposed to a tick and have all developed rash, Bell's, flu symptoms.

Doctors have told them "we don't get that here" and sent them on there way. What advice should I give them? I get the feeling they are in denial.

The rash went away and they are feeling better, so they are convinced they couldn't possibly have it. I don't want to be a pest, but I can't just stand by and let someone travel the same dead end road I did.

Thanks for reading this obnoxiously long post. LYMETOO...thank you for your kind post. Note time on post: obviously still suffering from insomnia.

[This message has been edited by Amanda24 (edited 23 July 2005).]


Posts: 13 | From Atlanta, Ga | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
HaplyCarlessdave
Frequent Contributor (1K+ posts)
Member # 413

Icon 1 posted      Profile for HaplyCarlessdave   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Let's hear it for survivors of rotten health-...'care'.... systems! I'm happy to hear about such a miracle, and am glad you're back in the land of the living!
DaveS

Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000  |  IP: Logged | Report this post to a Moderator
Amanda24
Member
Member # 7227

Icon 1 posted      Profile for Amanda24     Send New Private Message       Edit/Delete Post   Reply With Quote 
I hear that! I came very close to giving in and giving up and taking antidepressants and tranquilizers for the rest of my life.

God Bless the Internet and information available. As much medical research I have done over the past 6 months, I am beginning to think I should have been a doctor. When did so many of doctors quit caring about the patients? Or perhaps they never did.


Posts: 13 | From Atlanta, Ga | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
lou
Frequent Contributor (5K+ posts)
Member # 81

Icon 1 posted      Profile for lou     Send New Private Message       Edit/Delete Post   Reply With Quote 
Medicine is a business here and too many docs got in it for the wrong reason. I also have the feeling that making your living off the misery of others tends to make some people hard.

Glad you are doing better. You sure lucked out with getting an informed boss!

Don't know what to tell you about those who may have lyme and aren't doing anything about it at the early stage. I have warned people, suggested to those with CFS or fibro diagnosis that they might have lyme. Have been told "The titer was negative." End of story. Brushed off my suggestion that the tests aren't reliable. Well, you can only try. If they don't follow up.....that is their decision. It is especially frustrating when they do this at the early stage and miss their chance of an easier cure. Not telling everyone they have lyme, just the really suspicious cases.

The big problem is that with so few docs who are knowledgeable, it is a huge ordeal to try and get it treated. So, if people aren't really motivated, they are not going to do all that is necessary.

[This message has been edited by lou (edited 23 July 2005).]


Posts: 8430 | From Not available | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by Amanda24:
I am grateful for the lessons learned as a result of this Disease. THANK YOU DOCTOR C! Thank you for dedicating your life to helping the wondering Lymies who are lost and desperate to find the path to healing.



He's truly a gift, isn't he? I'm SOOO happy for you and now you're out helping others! I don't know what to tell you to tell them. Send them the links....print off a few good ones...whatever it takes.

keep on keepin on!!

------------------
Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express!
oops!
Lymetutu


Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789

Icon 10 posted      Profile for HEATHERKISS     Send New Private Message       Edit/Delete Post   Reply With Quote 
Good for you Amanda! Everyone loves to hear good news.

Enjoy life,
Heather


Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
groovy2
Frequent Contributor (1K+ posts)
Member # 6304

Icon 1 posted      Profile for groovy2   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Amanda
I an glad to hear you are doing well-
You are lucky to have found a Doc
who knows how to treat Lyme--

Your friends are lucky to have
some one that can head them
in the right direction and
maybe change there lives.
I wish I had a friend to
help me 20 years ago--

If your friends need some convencing
have them spend 3 hours reading
posts from this site.

They will read of the tragedy that
has entered these peoples lives
through no falt of there own--
They too where told - Your Fine--
Lyme is Not around here--

So keep after your friends--
because thats what friends do--
--Jay--


Posts: 2999 | From Austin tx USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.