I have stopped the Tini as of July 15th. Still on all the other meds. Now I feel many of my neuro symptoms and other symptoms returning.

Anyone else have this experience when stopping a cyst buster???

Ideas??

robi

PS If you're Charles05 .......... don't bother replying

Yes, this happened to me back in January. At the time, I was on Ceftin, Zithromax, and Tini. I was starting to feel a little better, so the LLMD had me stop the Tini. My symptoms came raging back within a week, and when I went back on the Tini, they got somewhat better.

Currently, I'm not on Tini, but I am pulsing Mino and Ketek every other day, and am taking Benicar daily.

My LLMD suggested I get off it because I was having too much pain from peripheral neuropathy and throughout my body. I am also on Ketek.

I am not feeling great, but it feels like a weight has been lifted since I got off the Tini a few weeks ago. I am no longer having those suicidal feelings that life isn't worth living, and the pain might be less.

I didn't have that experience this time around, but I have in the past, when the coinfections were still raging. This time, the depression/anxiety/rage/exhaustion that intensified when I started the tini lasted about a month after I stopped taking it. Yesterday was my first good day. I took 1200mg SAMe and 500 mg L-tyrosine, and that seemed to make a big difference. Today has been good, too, same thing. Dunno if it's coincidence or the amino acids (I think it's the aminos).

The hubby did 6 wks tini, then switched to Alinia. My understanding is that Alinia is an antiprotozoal (effective against babs, one hopes) and may function as a cyst buster, as well. The side effects are far less horrid than tini--actually, so far, headache only (and that may be from babs die off). So you might ask your doc about Alinia?

Hugs, all the best.

Just editing to add -- nope, the Alinia really kicked in this afternoon after being on it a week. Very achey, bad headaches, irritability....sigh.