posted
I know you all get tired of all of the questions but I have another one sorry. I began taking mepron/clindamycin 3 days per week and biaxin XL everyday for about 4 weeks now. Last week I got one of my head exploding headaches and pressure behind the eyes. LLMD told me to back off of the clindamycin until headache subsided. I was really sick and it scares me when I have these headaches. I started taking the combo again Monday and today the head pain& pressure with the wonderful nausea is returning. Once it begins I can't stop it. How much is to much I know it's good that the meds are working but how do you know if it's to much? Don't want to keep bothering the LLMD if this is what I have to do to get better. Soory so long if anyone has any advice please let me know. Thanks, mimi
Posts: 343 | From usa | Registered: Dec 2004
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I came to lyme through the CFS/FM route, and had those horrific headaches for more years than I care to recall. This was all pre-treatment and I couldn't find anything that would touch them. I was then given klonapin for muscle spasm and to help sleep, and received some headache benefit.
But the big breakthrough was Diamox (it's generic form)an older glaucoma treatment that reduces neural swelling so that your brain fits inside your skull. It's current use is for altitude sickness as it improves oxygenaton and mineral retention.
I rarely have any headaches anymore, and now since on Lyme treatment have only exprienced mild head pressure and an occasional slight headache of only the annoyance level.
You might run this past your LLMD and see what he thinks.
David
Posts: 20 | From DFW,TX, USA | Registered: May 2005
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posted
Bflat, Thanks for the reply I am glad your headache hell has ended It is good to know there may be an end in sight. I am allergic to sulfur and can't take diamox my LLMD wanted to put me on it for the swelling. Maybe I'll find something. Thanks again, I hope you are well. mimi Posts: 343 | From usa | Registered: Dec 2004
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Mimi, I so feel for you, pretty much in same boat. However, I get relief, at least for a day or so, from Relpax. Imitrex, too, though less long-lasting. These are vasodilators and must be used really sparingly. Do you have any of these migraine meds at hand to help you through this? My last heavy-duty "head herx" lasted about 16 days but finally relented.
Diamox didn't help me but was tried.
I'm not actually recommending this as it's pretty drastic but in REALLY unbearable cases there ARE such things as "therapeutic lumbar punctures." (Yeah, I'm not making that up!!! :-) ). Following a few days of spinal headache, I had two weeks of headache free bliss after my spinal tap.
Now that's pretty drastic, so I hope you don't suffer long enough to consider that!
Hope something gives for you soon...
Michelle M
Posts: 3193 | From Northern California | Registered: Apr 2005
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posted
MichelleM, Thanks for the help I don't have any of those meds but will ask for something. Thanks for the information about the spinal hope it doesn't get that bad but if it does at least now I know that I have another option. WOW 2 weeks without a headache sounds like heaven. Take care, I hope you are doing well mimi
Posts: 343 | From usa | Registered: Dec 2004
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It is good to know there may be an end in sight. I am allergic to sulfur and can't take diamox my LLMD wanted to put me on it for the swelling. Maybe I'll find something. 
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