My question is, did anyone just completely go from having their sleep slowing fragmented...to having it go COMPLETELY away? I can't sleep on my own, naps or anythng on my own anymore...and am just balancing sleep meds now to just be able to rest some.

I feel tired at night, and at bedtime my head hurts like it wants to get into that sleep cycle....

I've done so many alternatives (GABA, Melatonins, valaria (sp?)) ambien, lunesta, tranadzone...only thing that works is Restoril. What is the pathway that needs to be open here?

Did anyone have this happen? Is it possible to somewhat get back to your old self? Do any of those transneuron tests help with finding where something in your brain isn't picking up chemical signals correctly?

Only thing I noticed that was effective was when I was on Biaxin...worked great for a few months. THen someone mentioned it just made them drowsy...I'm hoping that's not the truth, and my "right" abx is just around the corner still.

Insomnia is still a huge problem for me, and, like you, I'm trying everything under the sun to correct it. I also get the bedtime headache. Wonder what that is?

I use Temazepam (Restoril) when I'm desperate, but it has a reputation for ultimately disrupting the sleep cycle and being addictive. But ya know -- sleep itself is addictive, when you've gone without it for so long. I purely love sleeping through the night. Tempazepam works on one of the GABA receptors--that's all I know the pathways.

My sleep patterns are improving somewhat, and at least now I can sometimes sleep 6 hours at a time without sleep aids (rather than waking up every 2 hours IF I managed to fall asleep). I feel refreshed and awake when I get up, which is also pretty recent. Also, I no longer have what I thought of as "narcolepsy attacks", when I just had to lie down and sleep during the day.

My husband has gone from major insomnia to completely normal sleep. Well, not completely -- he sleeps and naps 12-14 hours a day, but he does go to sleep normally and naturally and at a reasonable time, sleeps the night through, and has dreams.

For him, the babesia tx made a big difference in being able to go to sleep, and the bart tx seemed to really change the quality of his dreams from nightmares to true dreams. Both of us feel like we went for years without dreaming at all.

My nervous system is so screwed; talk too fast, think too fast. I think my brain is like hamsters running and running around the wheel. Been major symptom of lyme for me. I will probably will have to go to rehab if I ever get well to get off Xanax, but you cannot go for weeks without sleep.

I had been taking L-Tryptophan in high doses for mood swings and sleep along with melatonin. For seizures I take Klonopin which will help sleep but I've taken it so long (16 years?) that I don't consider it a sleep aid. I dropped the L-Tryptophan about a year ago and was relieved to realize I could sleep.

For the next year I had off and on good/bad days but mostly bad in that I always felt I was in the wrong time zone. My pyschiatrist AGAIN said the melatonin should be taken at 5 PM to go to sleep at 9. And only take 1/2 mg vs. 9 mgs.

I adjusted back to 6 mgs at 7 pm and that seems to be the magic formula. I sleep thru the night! The primary thing I was missing was that melatonin has a delayed reaction. No one mentions this. I was getting out of bed at 8 AM when my REM sleep should have been kicking in. I was NOT sleeping worth a toot w/the melatonin at bedtime. Even w/the Klonopin, that's why I say taking it right works, not the Klonopin.

For what it's worth, you MIGHT find you are better off than you think. I was very surprised and skeptical but I couldn't keep on the way I was. Now that I am on the right cycle, I feel unstoppable. I get up between 6 and 7 most days, work and have fun and feel like I'm actually THERE when I talk others. I stay up at night doing my chores and my life is turned around.

I am very lucky. I hope any of this helps for you. I have been on abx for 3 years,doxy and biaxin or doxy and flagyl. I try to eat a clean carb free diet, no sugar and it makes a huges difference.

I hope this helps, espceially since insomnia was a horribd symptom for me for years. YES, it did clear up! And all those years I was on klononpin, it didn't matter. I needed help to sleep but at this point, the melatonin really works. I aim to lower it as time goes by.

There is a new insomnia pill coming on the market in Sept.

About 1 out of 3 Americans have insomnia problems.

It is called Rozerem.

I'm like you lymelady. It feels like the t.v. remote is constantly being switched!

There's not one specific subject that enters, it's like soo much is coming in!

Since getting a full nights sleep...I'm about 90% better with other symptoms!

Not happy about taking two meds. but going without sleep is bad for the immune system.

I read about that new sleep product also.
It's non-addictive, kinda in the same family as lunesta. The lunesta didn't work either!
I think I've tried them all!

My head is as screwed up in the day just as it is at night!
It's very hard to focus! I was told meds. for the focusing, wouldn't help.

I'm sure that for having it so long...maybe there's some damage. Who knows!!
Just glad my body is feeling better, and can do things I haven't for a long time!

I had been taking Doxy, Flagyl and currently Ceftin. Biaxin is not on my list to take.

Maybe non-sleep is just extreme toxins and die off?

That is my MAIN Lyme symptom. I'm sorta new to Lymenet so I guess most people don't know my story:

In fact, sleep trouble is one of the only Lyme symptom I really have, besides depression and general malaise.... for 15 years I've just been unable to sleep well - I startle awake every two hours or so - I was shocked when I turned up CDC positive on two different Westerns, and then tested positive for Babesia as well.

I was told that insomnia is really a Babesia symptom, and that when the Babesia is taken care of the insomnia goes - dunno if that's true.

Currently, because I am a basically healthy Lymie, (for which, after reading this board, I am most grateful), I am avoiding taking antibiotics (which, I know, is probably stupid) - I'm doing that crazy Salt/C protocol instead.

Its early days yet, but I find that before the salt/c, taking .25 or .5 mg Xanax to fall asleep was generally the rule for me, and falling asleep on my own was the exception.

Now, after about 12 weeks salt/c, taking the xanax is generally the exception, and I fall asleep most nights on my own... don't know what to make of this. Could be just placebo effect etc etc., but its been a nice change.

Anyway, Xanax works well for sleep. I found, after experimenting over these past 15 years, that nothing works as well, for me anyway. Not melatonin, not valerian, not ambien, not trazodone etc.

Just my 2c. We should find out if people do better with sleep after Babeisa treatment, or if that's just a rumor.