I was bit by a tick about 6 weeks ago and since then I have had a whole range of symptoms. And since I was looking for that circular rash that I never got I did not link the symptoms to Lyme Disease. I had dizzyness, fatigue, stiff neck, irritability, rash (on my arms and legs) and aches and pains. So my doctor told me that I had allergies and sent me home. After a lot of searching on the internet I was convinced that I had Lyme Disease. My doctor is now treating me for it but I am on 21 days of amoxicilin(sp). Can anyone tell me if that sounds sufficient since I did have a rash and a stiff neck?
I am not sure what else to add to this but I am really worried that I am never going to feel normal again.
Thanks if you have read this far! Corinne
Posts: 17 | From Northern California | Registered: Jul 2005
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
No thats not sufficient for lyme good start you need to get a LLMD. Also red Dr b's stuff I posted in newbies link. Knowledge is power.
Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. "Lyme literacy" means, first and foremost, knowing how to diagnose the disease accurately. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead. Lyme Disease symptoms 2005 Lyme Symptoms 2005 Post for a LLMD in Seeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer. Support Links LLMD's
Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003
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valymemom
Frequent Contributor (1K+ posts)
Member # 7076
posted
My son removed a tick 1/9 and was put on amoxi for five weeks (1500 mg daily). The primary was going to give us 21 days worth but I begged for more and got 5 weeks worth.
My son developed symptoms 2 months later.
Everyone here recommends doxycycline as the first treatment (400mg daily). I wish I had tried that .........and for 2 months atleast.
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Corinne,
I know it seems like a lot to deal with. But at least you've taken control of your health.
Have you been tested for any coinfections? If a tick has lyme, there are other infections it may also have. They are discussed in treepatrol's newbie links. If you do have any, the quicker you find the better.
Posts: 4711 | From Washington, DC | Registered: Mar 2004
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi Corinne Start off by reading DR B s link on treepatrols newbiee page-- its in big red type--its very imformative and written in mostly plain english--
How much amoxi are you taking a day?--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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posted
Thanks for the responses everyone. I have not been tested for any coinfections but I did get the name of a LLMD and I will call the office to set an appointment on Monday.
Jay, I am taking 100mg twice a day and I am embarrassed to say that I am on doxycycline not amoxicilin. I think with all the reading on this that I have done I am getting myself confused.
I am reading through all of the newbie links and I cannot believe how much there is to know. I am thankful for this group because you are all so well informed.
Thanks again for the replies, Corinne
Posts: 17 | From Northern California | Registered: Jul 2005
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BostonLyme2005
Unregistered
posted
Hi Corinner,
I am Rob. When I became ill last year about this time, I was told I have allergies as well. Six weeks later, after the Profound Fatigue I had experienced in the first few days, then dead hands, burning hands, aches and pains, I was given Doxy for six weeks, 100mg, 3 x's a day. It was NOT enough! All I can tell you is that you may want 500mg or more in ea. pill, and take them for atleast three months. I have had some extra meds during the year for other things, so I am ok, but now I am in the heavy leg, tingling, spasms, foggy, stiff neck part. Hope you get well!
I am originally from Boston too, I grew up in Dorchester. I was visiting my parents in Plymouth in June and that's when I was bit by the tick. So when I first told my doctor here that I thought I had Lyme Disease they thought I was crazy.
Anyway, I am going to make an appointment with a LLMD on Monday and hopefully they can help with the doseage.
Thanks for the info, I am keeping a journal of all the things that I want to go over with the LLMD.
Corinne
Posts: 17 | From Northern California | Registered: Jul 2005
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posted
Corrine, glad Tree came along & gave you all the NEWBIE links! It's overwhelming I know.
I suggest printing off his current list, check them off as you read the most important parts FIRST, as it is going to take you many months to read everything there!
Glad you are being proactive for yourself.
Some guidelines from Betty/others on using this message board:
* Do NOT use all caps when posting; it's hard on our eyes. But I know one of our members has macular degeneration, and all caps is what she can see & read so exceptions like this are acceptable for good reasons.
* We chronic, late-stage lymies can NOT read long paragraphs. So please limit your paragraphs to 6-8 lines max of text and double space between paragraphs.
* You can EDIT your text comments anytime. You can NOT edit your subject line so please make it as specific as possible instead of ``help, question'' etc. in order to have more readers/replies in trying to assist you. There are between 30-40 NEW/replies to post daily so we can't read all the posts on our limited time here...thanks for understanding.
* If you use the ``quote'' icon, please DELETE [B] bold at the beginning & ending of the quote. This makes it easier on our chronic, late-stage lyme eyes.
* To just reply without quoting, go to the top or bottom of screen in the black & white area to reply or post a new topic. Many of us couldn't see it when we 1st started posting. Thank you for helping us all out!
Posts: 1 | From US | Registered: Aug 2015
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Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
Corrine,
Im just glad to hear you are jumping on the ball with this so early!! It took them 6 year to diagnose me with Lyme-I feel like hell too. Be prepared on possibly having to have a lengthy wait to see an LLMD. Hopefully you will get lucky and will be able to get in right away. I wish you all the best-heal up quickly!
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